Maternal & Child Community
Prader-Willi Syndrome
About This Community:

This patient support community is for discussions relating to breast feeding, childhood disease, colic, child discipline, immunization, lactation, newborn care, post partum depression, Sudden Infant Death Syndrome (SIDS), and special needs children.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Prader-Willi Syndrome

I was wondering if there are any mothers out there that are raising a child with a syndrome called Prader-Willi Syndrome? If there are, could you please share your experiences both good and bad that you have had with your child? I am trying to get information and have people share their own experiences with a child that is living with this syndrome because my child was diagnosed with this syndrome at three weeks after birth and he will be three years old in November of 2008 and i'm just trying to prepare myself for his future.
Related Discussions
2 Comments Post a Comment
Blank
13167_tn?1327197724
Have you checked out the Prader-Wlli Syndrome Association?  They look like a wealth of information of networking and support.

Best wishes.

http://www.pwsausa.org/index.html
Blank
554610_tn?1215905711
Hopefully you still check this forum.  My daughter has three children with the middle one having Prader Willi Syndrome.  He is 4.  She did try to log in and reply to you but something went haywire so I thought I would try.  We are in Australia.  You both need support with this syndrome.  Perhaps you can answer if you want to communicate.
Cheers.  
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Maternal & Child Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Children's Health Answerers
13167_tn?1327197724
Blank
RockRose
Austin, TX
134578_tn?1404951303
Blank
AnnieBrooke
OR
4268628_tn?1375044776
Blank
Flickan
Monroe, WA
4851940_tn?1385441629
Blank
jemma116
United Kingdom
Avatar_f_tn
Blank
MrsVirginia_001