UPDATE ON DS, open forum if needed

[stephd]

Ok well this may be kinda long but I will try to make it as short as possible.  Anyway just got a call from the dr about Troy and this is what she said.  His bloodwork was good.  His X-ray not so good....but not terrible either.  The x-ray showed a small amount of stool backed up in there (this may be why he is having all this pain) so she is putting him on a stool softener, we have to do this for a month.  HOPEFULLY THIS WORKS!!   I am relieved to be at the root of his problem (I hope).  Anyway then she preceeded to tell me that he has what they call spina bifida occulta.  She said it is not bad and not like what you generally know about spina bifida.  He does not have a "hole" in his spine or anything.  But it has something to do with his L5 disk.  This is just a malformation of the spinal cord.  (My guess is it will cause problems later on in life)!  I dont know tho.  Anyway - she wants to send him for a more defined x-ray to MAKE SURE this is it.  Cause they were not 100% sure this is what this is, they did however see something.  So she is calling a neurologist and asking them if they want a x-ray, CT or MRI done to see it more clearly.  So we have to wait and see.  I am supposed to hear back either this afternoon beofore I leave work or when I get home.  So this is my story.  I WANTED TO CRY!  It is so hard being at work and hearing this stuff, I gotta fight back the tears!!  Keep us in your prayers please.  To top it all off I had to go for my AFP test today....I hope this is not a sign from god!!

[markysmom]

I will definitely say a prayer for you.
I don't think this is a sign from God though. I am sure your tests will be fine and everything will work out.

[Want1more]

Oh Steph,
I'm so sorry, I will pray for you and Troy! I hope he will be ok. It must be terribly to hear all that at work, there must be so much going on in your head, hang in there, be strong for him! Your a great mom....I'm thinking of you sweetie! oxoxoxox
P.S. I have my first Dr. appt today, I'm so nervous!

[pearl451]

I am so sorry you have to go through this. You know how it goes though. It may be nothing. I have heard of children having stool stuck & backing up their system. hopefully that is all the problem is. I will be sure to pray for you & Troy. I know how hard it is but try to stay positive just for his sake. Please please keep us posted & if there is anything I can do just let me know!

[pearl451]

I found this so it dose not seem as bad as you might think! Hope it helps!

Spina bifida occulta is common. Two studies undertaken in Great Britain in the mid 1980s suggest that 22% or 23% of people have spina bifida occulta. Even though there is a very slightly increased chance of a slipped disc, very few people with spina bifida occulta will ever have any problems because of it. If a person has no symptoms from spina bifida occulta as a child, then it is unlikely that they will have any as an adult.
Most people will not even be aware that they have spina bifida occulta unless it shows up on an X-ray which they have for some unrelated reason. It is usually just a small part of one vertebra low in the back which is missing.

[stephd]

The dr said that this type of spina bifida (if that is what this truly is) is not something to be too concerned with.  But it still is scary in my book.  I just hope my little man is ok.

[stephd]

Thank you and yea I read that already so it did make me feel a little better!  I just wanna know what we have to go for now!  That is what the dr said tho, that you dont know it unless you have an x-ray!!

[stephd]

markysmom:  Thank you for your prayers.  Im sure everything is ok with this one too.  Cant help but to think tho....you know how your mind can be!!

want1more:  Dont worry girl, you will be fine today.  When do you go?  Here's to you getting some good news.  Are you feeling any better??

[jen023]

So sorry to hear what you and your son are going through. I am praying for you both and hope that everything turns out okay for him. (((hugs))) !!!

[DollChina]

I am sorry you are going through this.  At least you had one problem solved and now you can focus on the next challenge.  You and your family will be in my prayers and please try not to stress yourself out.  We have great technologies and doctor and they can fix anything.
Dolly

[JJety]

I'm so sorry, honey!  I sure hope everything turns out okay.  I'm glad they're sending him in for a more definitive diagnosis; hopefully that will bring some good news!!!

[diamondtracy]

Oh poor you, I felt so awful when I read about your little man, I can't even imagine what your emotions must be doing right now, I was almost in tears reading your post. Best of luck  and be strong for you little man.
P.S. I'm in the 1ww club again! Our last IUI if it doesn't work we've got 1 shot at IVF.

[stephd]

Thank you.  I hope everything is ok with my little man too.  He is my whole world!!  Its not THAT bad but it still makes your mind run like crazy tho!!

Good luck to you!!  I hope you get a BFP!!!!

[Want1more]

I'm feeling much better since I hit the 8 week mark! I'm so hungry all the time now and tired early at night. I go to the Dr.s in one hour, I'm so nervous. I'm 8 weeks 3 days today. I'll update you when I get back! Take care, Kendra~~~ oxoxoxox

[stephd]

yes please let me know what they say.  Oh my 8 weeks already, seems like you just told me you got your BFP!!

[stephd]

Ok I talked to the dr. again last nite and she said that they want to do an x-ray for now just on his spine and when we get the results from this then we will move forward with going to Children's to see a Neurologist.  I am taking him tomorrow to get his x-ray.

[pearl451]

Oh Steph~ I hope all is OK. I am glad they are moving it along though so you don't have to wait & wonder! Please let me know what happens!!!!

[myfantasy29]

I will say a special prayer for you~~~

[amy524]

Steph - No reflux, eh?  Just as you thought!  I am sorry I did not get a chance to email you back.  I truly truly hope that everything works out.  I am so happy that you went ahead with further testing and although no one wants for anything to be wrong, imagine if you hadn't done any tests!  I will be thinking of you and your little guy.  BIG HUGS!!!!!!!!!!!!!!  Good luck tomorrow at the x-ray!  Keep us posted!

Amy