Maternal & Child Community
UPDATE on Jesse
About This Community:

This patient support community is for discussions relating to breast feeding, childhood disease, colic, child discipline, immunization, lactation, newborn care, post partum depression, Sudden Infant Death Syndrome (SIDS), and special needs children.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

UPDATE on Jesse

5907431?1279062526
Sorry it's been so long ladies!!!

Jesse is now 10 months old! I can't believe it. He is growing so quickly!
We are still awaiting a liver for him. He is as high as a child can be on the list, until an emergency comes up
(which I pray does not happen!) He is not able to gain any weight now, and is not able to eat as much as he used to. He is still on a feeding tube, which doesn't seem to be helping him much at all. :(
My brother-in-law is still being worked up, and hopefully we will know soon if he is a complete match. They are taking forever with this last test, no one knows why. It's frustrating at times since they wanted to see him transplanted already.
More than anything, I just want to spread the word about this disease that only occurs in infants. I want to raise awareness everywhere.
If you are interested, we have a site up for Jesse called babyjesse. org  where everyone can stay up to date with him and his progress, as well as send donations and learn more about this disease, Biliary Atresia.
You can also stay up to date through Twitter (babyjesseFound) and Facebook (The BabyJesse Foundation).
(I hope I don't get in trouble for posting this stuff, not exactly sure what all the rules are)
Thank you all for your support and prayers during this trying time in our lives.

I hope all those babies are doing well and congrats to all those who got their BFP's and those having their babies soon!!! =)

~Chantal~
Related Discussions
2 Comments Post a Comment
Blank
127529_tn?1331844380
Thanks for the update. Praying that he gets his transplant soon. Take care.
Blank
280369_tn?1316705641
Thank you!! I hope he gets it soon as well. Time is ticking and waiting is the hardest part of this process!
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Maternal & Child Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Children's Health Answerers
13167_tn?1327197724
Blank
RockRose
Austin, TX
134578_tn?1404951303
Blank
AnnieBrooke
OR
4851940_tn?1385441629
Blank
jemma116
United Kingdom
4268628_tn?1375044776
Blank
Flickan
Monroe, WA
Avatar_f_tn
Blank
Bsmom09
Avatar_f_tn
Blank
gyspy09
PA