cystic hygroma

[safia]

hi this is about my sister in law she has been diagnosed with a cystic hygroma and has an amnio that has returned negative so it is not chromosonal, she has another appointment 04 13 i just wondered if anyone else has experienced this?    any reply will be gratefully received  thanks safia

[Megan0701]

Wow. *sigh* If nothing else, I'm glad you have some answers. What a beautiful name :) Your sweet Emma Grace will be in my thoughts tonight. How are you holding up? I imagine it's quite the roller coaster. I hope that these results brought you some closure. Love and strength sent your way momma! xoxo Megan

[believe607]

hey. so sorry it took me so long. hard to find the time to get to the computer. but anyways. we found out that we had a little girl! Emma Grace. she did have trisomy 18. or edwards syndrome. thank the Lord we got some results.
Can't wait her one sweet day in heaven!

[Megan0701]

Still no news? You're so sweet. My little girl is doing well. We just celebrated her 3rd birthday on Thursday :) She's a pistol....that's for sure. She definitely keeps me on my toes! Let me know what they tell you!

[believe607]

Yeah. the nurse said the paper the doctor signed was permission to test the other viles. i haven't had a call yet. i made sure the nurse knew i wanted her to call me asap if she got results of any kind. i haven't called them yet since i have my follow up thursday. i'll just ask them then. How are you doing? how is your little girl? i bet your having as much fun as i am with my little 3 year old! i love her sooo much. she keeps our hands full !!!  i wouldn't have it any other way!

[Megan0701]

So the other viles....when were those taken??  I so hope they can find some answers for you.

[Megan0701]

Yes. I will agree with you on most all of what you've said. But like Becky said, this thread is about babies still in the womb with a CH/LM. My child, as well as most others on this thread, were given a 50-70% chance of having a chromosome abnormality. Those are the numbers...bottom line. I have NEVER treated this condition as a death sentence....never. As a matter of fact, I think I've given nothing but hope on this board. There are reasons that pregnant women take this condition seriously....because it is a serious condition. This is not just about children who are born with the condition. This is about children who have this condition in utero and can be subject to fetal demise because of the condition.  I know about the exit procedure, a friend of mine delivered her son that way because of his LM. I'm also very familiar with Dr. Waner because another friend of mine takes her daughter to see him for her LM. Yet another friend of mine has watched her daughter turn gray while doctors tried to shove a tube down her throat through the swelling of her LM in order to get her breathing again.  I'm not naive to the life of someone living with this condition. I have no doubt that all of these children will grow up to be wonderful, successful adults, and I have never so much as implied otherwise. If you would like to start a new thread using the term Lymphatic Malformation, then by all means. This thread was started YEARS ago and was continued by all of us who have received a cystic hygroma diagnosis. Seemingly, you're the only one who has been confused by the term. I will continue posting in this thread as I have done for the last 3 years. I want this to be a place where women who are desperate for support can come to and feel supported. Not judged and criticized for not using the correct "terminology."