has anyone heard of moebius

[moebius_mummy]

i had a very complicated pregnancy i had a single vessal umbilical cord i had 7 ultrasounds they all came back very well i had polyhydrumnius i think that is how you spell it or what you would call excess fluid which was a large warning sign i went right up to 38 weeks an got induced when the horror began my daughter was far from healthy she was missing half her left arm she had a very small jaw which made life hard for her to breath so she had a tracheostomy put in sh cant feed by mouth so she had a gastrostomy put in she has webbed fingers an a hole lot more along with it but i need to know does anyone know about this syndrome she has called moebius i cant find anyone who knows i just dont kow what to expect an it scares the hell out of me we are sueing our hospital at the moment but no money int he world will replace what we go through or what they have taken from me any advice would be great or any info on moebius would be great to or experience you may have had because im all out of what to do next

[rissa]

i have personally never heard of that, but i do wish you the best of luck and will pray for you and your family.:)

[sm8]

Never heard of this syndrome and was curious so did a search and came up with this web site

http://www.ciaccess.com/moebius/

Hope it can be of some help.  Good luck.

[Christie2004]

I'm curious; what are you suing the hospital for?

Here is a link that may provide you with some info and contact/support information.

http://www.ninds.nih.gov/health_and_medical/disorders/mobius.htm

[Christie2004]

Here is an excellent article:

http://www.emedicine.com/neuro/topic612.htm

[Kassimom]

I was wondering too, why are you sueing the hospital?

[Angel4JohnnyB]

How do you sue the hospital if the syndrom (syndrome) is genetic????
Guess I'm wondering why you are sueing the hospital also.