My daugher was born (1989) with
DuodenalPeptic ulcer Atresia. The condition was
surgically corrected at birth. When she was 6 she suffered two months
of excruciating stomach pains. After (seemingly) running out of
options, exploratory surgery was performed. The '
shuntCyanotic heart disease
Transjugular intrahepatic portosystemic shunt (tips)' was open,
though the surgeon reported 'extensive' internal scarring. When she
left the hospital she was told to take
Propulsid 5mg. three times a
day. She has been doing so ever since.
She has periodic 'tummy aches' but nothing dramatic.
My questions are as follows:
Is there any long term problem with taking
Propulsid?
Does the internal scarring portend future problems as she grows?
Has there ever been any follow up on the health and lives of children
born with this condition?