My 5 year old niece has been diagnosed with Nephrotic Syndrome and has been
given the usual treatment of Steroids for this disease. However she has not
been responding to the treatments and can not stay off of the steroids for
any length of time. They have tried to bring her down fast, slow, minimal
dosage, etc.. but within a week she is back in the 3+ range in protein in
her urine. This syndrome was diagnosed about 4-6 weeks after a tick bite
(she lives in Nebraska). They have ruled out Lyme disease, but our family
has heard rumours of another type of tick bite (Lone Star Tick) that might
be contributing to the disease.
My question is: Is there anyone out there that specializes in the area of
insect bites that resemble, or cause nephrotic syndrome? Is there any
literature available that addresses this situation? My sister is at
her wits end with the doctors treating her daughter like an experiment.
She has had two episodes where she was in the hospital due to her leg
Thanks in advance for any help you can give.
Renal disease is just one complication of Lone Star Tick disease, but usually the onset of the disease is heralded by nervous system characteristics that I doubt you could have missed. I'd like you to look at an article on the Centers for Disease Control website....http://www.cdc.gov/ncdod/EID/vol2no1/walker1.htm
I would recommend calling the biggest university affiliated medical center in your state and ask for a referral to a pediatric nephrologist as well as an infectious disease specialist. Nephrotic syndrome is most frustrating to treat as response to therapy is very slow and it takes time to very slowly taper the steroids to prevent any rebound disease or relapse. She may require months to taper, but this should be guided by a nephrologist.
*KEYWORD: tick disease, kidney disease, nephrotic syndrome,
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