Re: 10 yr.old with upper GI pain

Posted By donna on March 22, 1999 at 13:45:04:

In Reply to: 10 yr.old with upper GI pain posted by Peggy Butcher on March 11, 1999 at 13:29:01:






Help! My 10 yr. old daughter has been experiencing upper GI pain,behind the breast bone area,and esophagus for 2 yrs.It is a burning pain that comes on about 9 pm. lasts through the nite and into mid morning.Blood and stool tests,ultrasound,24-hr PH,upper GI,and HIDAscan all appear normal.She has been on 40MG Prilosec,10MG dicyclomine Zantac,and Pepcid,ect.all with negitive results.Psychologically,she is bright, well adjusted and well liked both by her peers and teachers.Home life is stable. She misses 3 to 4 days of school a wk.
Miscellaneous history: She has developed mild asthma the last 2 yrs.Orange juice causes painfull bladder spasms.She has grown 5 ins. in 7 mons.and has a good appetite when not in pain.She weighs 90 lbs.Diet restictions from milk products etc. had no affect.
  when she was 4 mos. old ,she was exposed to fiberglass insulation.This coused her to pass digested blood in her stools and vomit blood over a 2 days,befor we discovered the cause.Her GI Dr.does not believe that this is a contributing factor.
  When she experiences pain,her face goes pale and dark circles appear under her eyes, she becomes lethargec.Pain is sometimes accompanied with vomiting,this does not bring any relief.
  As a mom I am desprate to get help for my daughter Emily. Anything you can offer me in the way of direction etc. would be grae appreciated.
Sincerely, Peggy Butcher




Peggy --!  I was just reading your post about your daughter -- poor thing.  My daughter, who will be 10 in 3 months, was just recently diagnosed as (possibly) having Cyclical Vomitting Syndrome.  She has 'attacks' as I call them, every 4 to6 weeks or so, and this has been happening for over a year before we finally realized how much of a cycle the attacks came on. When I read about your daughter getting dark circles, it immediately sounded familiar to me, as mine gets them around the time an attack comes.  Her attacks usually always occur in the middle of the night, last about 3 hours or so, with awful vomitting, abdominal cramps and diarrhea. Although my daughter does not get lethargic (not yet anyway) during an attack, in all of the reading I've been doing on the subject, that seems to be a very a common occurence.   I found a site, but I don't have the exact web address -- this is how I found it:  www.yahoo.com, then I typed "cyclical vomiting syndrome" in the search box (use the quotation marks), and it brought me right to the CVS site, with some helpful information.  Doctors do not seem to know too much about this syndrome -- I hope this information helps you, and I hope your daughter is doing well.  Feel free to e-mail me if I can pass on any other informaiton to you!  Donna