Posted By Tracy on November 20, 1998 at 19:55:37:
In Reply to: 17 month with
neonatalNeonatal cystic fibrosis screening hepatitis/intra-hepatic bile duct paucity posted by Susan on November 20, 1998 at 16:54:17:
Our daughter was diagnosed with this at 1 month old. What I am looking for are answers to these questions: What are the signs of liver failure? Will her eating habits become disrupted with this disease? Sleeping patterns? Can this disease sometimes cure itself? And if not what are the life spans with no transplant? Any and all info would be greatly appreciated.Thank You.
Here are some great
resourcesResource optisource that may help you find the answers you seek.
http://www.gastro.com/liverpg/neonhep.htm
http://www.icondata.com/health/pedbase/files/NEONATA1.HTM