Re: Doctors Stumped

Posted By Alicia on July 06, 1998 at 13:28:29:

In Reply to: Doctors Stumped posted by Sarah on July 02, 1998 at 23:15:09:






My son, whom is to turn six months in a couple of days, has apnea and bradycardia problems.  He was 6 weeks premature and after coming home from the hospital had blue spells.  He was placed on a monitor being diagnosed with apnea of prematurity.  His spells continued for three more months and they then changed his diagnosis to apnea caused by reflux, but they never did any tests to support this diagnosis.  His spells came almost to a holt, with only having a slight spell once a week.  Then within the past 3 weeks it has came back.  They did an EEG to make sure it wasn't seizures, which was negitive.  They also tested his CKP levels, for RSV virus, and an EKG.  He has just been released from the hospital where they looked into the reflux diagnosis (which I thought was odd because he isn't a spit-uppy baby) they did a upper GI, a PH probe and a sleep study which showed nothing and disproved there reflux theory.  They now say they don't know what it could possible be, so they are going to just let it be.  I feel very uncomfortable with this and since I am in a very small town I though that you might have some more ideas, I am aware that you don't have all his information so it might be hard, but please try to help.
Thank you for your time.
Sarah
Sarah:
I can't help with your problem, but when my daughter was born, she passed her meconium and after having lungs suctioned, was put on oxygen in NICU for a week...2 weeks after bringing her home, she would just stop breathing
for no reason....She was choking on her own saliva and spit up...She also was diagnosed with apnea caused by reflux..I just wanted to tell you that I
know how scary it is to be awaken at 3am with the sound of a blaring monitor and a blue baby...I hope your baby's problem is diagnosed but mostly cured.