Posted By Sharon on November 06, 1998 at 15:43:34:
In Reply to: HENOCH SCHONLEIN PURPURA posted by GWEN on November 06, 1998 at 01:06:44:
mY QUESTION WAS REFERRED OVER TO THIS SECTION FROM GENERAL FORUM, SO I AM HOPING NOT TO HAVE TO WAIT TO LONG FOR A RESPONSE. IN FEB. 1998 MY 12 YEAR OLD SON WAS DIAGNOSED WITH HSP. HE HAD DEVELOPED BRUISING AND RASHES ALL OVER HIS FEET, LEGS BUTTOCKS, ARMS AND A LITTLE BEHIND HIS EARS. THE ARMS HAD DEVELOPED INTO WHAT APPEARED TO BE LARGE BLOOD BLISTERS. HE ALSO HAD SEVERE SWELLING IN HIS ARMS BUT ESPECIALLY HIS LEGS. HIS RIGHT LEG HAD SWELLED TO THE POINT THAT HE COULD NOT WALK FOR ALMOST A WEEK. IT TOOK APPROXIMATELY THREE WEEKS FOR HIS TO BEGIN RECOVERING,WHEN HE DEVELOPED ANOTHER OUTBREAK MAINLY ON HIS FEET UPPER LEGS AND THE BACK OF HIS ARMS. OUR PEDIATRICIAN NEVER FULLY EXPLAINED THE DISEASE TO US OR ANY POSSIBLE LONG TERM EFFECTS. THE PEDIATRICIANS NURSE WAS THE ONE WHO HAD SAID MY SON WOULD NEED FOLLOW UP URINE TESTS FOR SOME MONTHS TO COME. WHEN I ASKED MY PEDIATRICIAN ABOUT FOLLOW UP TESTS HE SAID IT WAS TOTALLY UNNECESSARY UNLESS I COULD SEE THE BLOOD IN HIS URINE OF AFTER A BOWEL MOVEMENT. IT IS NOW OCTOBER AND MY SON IS GETTING OVER A BAD COLD WITH FEVER SWOLLEN GLANDS(ALTHOUGH I DID NOT GIVE HIM PRESCRIBED ANTIBIOTICS), HE ALSO HAD A BAD STOMACHACHE AND VOMITING. AT THE START OF HIS COLD I TOOK HIM TO A WALKIN MEDICENTRE AND ASKED FOR A URINE TEST TO CHECK FOR ANY SIGN OF HSP. THE DR. PHONED LAST NIGHT AND INFORMED ME THAT THERE WAS SOME BLOOD IN HIS URINE TEST. NO PROTEIN WAS REPORTED, BUT I SHOULD TELL YOU THAT IN THE FEB. OUTBREAK HE DID HAVE PROTEIN IN HIS URINE WHICH THE PEDIATRICIAN SAID WAS TO BE EXPECTED BUT THERE WAS NO MENTION OF BLOOD AT THAT TIME. I HAVE LEARNED QUITE A BIT ABOUT THE DISEASE THROUGH THE INTERNET BUT I DO NOT KNOW OR REALLY UNDERSTAND THE SIGNIFICANCE IF ANY ABOUT THIS BLOOD IN THE URINE. COULD YOU PLEASE ADVISE ME ON WHAT THIS MIGHT MEAN. AND WHAT MY NEXT MOVE SHOULD BE
Gwen My name is Sharon. My grandson has HSP since September. I am still looking for answers also. A web site I found that is a forum talk about HSP is located at: www.he.net/~brumley/renal/doctormessages/1068.html. Also, Dr. Green's House Calls is helpful. www.***@****. From what I am learning, blood in the urine means there is a possibly of renal involvement, but not necessarily so. This is a strange disease. Some cases are familiar, but each one being a little different as to how far the disease goes. I am not a doctor or a nurse, only a very concerned grandmother. Good luck.
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