Does any one else have family history of MSK

[srichfie]

I have MSK, and started having stones and infections when I was 15. I have 4 kids, daughter 18, son 16, daughter 13 and son 2. My 16 year son just found out he also has MSK, he has to have surgery to have 2 stones removed next week. Does any one else have a family history, or have you passed it down to your kids? Are there any studies on this that any one knows about? Any advice?

[MSKshelly]

when i was 19. They do not know if MSK is hereditary they think it is likely to be though since it is something you are born with,  SO far I do not know of anyone else who in my family who has MSK.  I have 5 kids.  The oldest of which I put up for adoption at 17.  She has already had stones etc and I am most concerned about her but not in a position to get her to be tested!  The other 4 do not show signs of MSK.
They are 26-14

I do know of others who's kids have it though.  My doc said there really is not a screening done to see if they have it or not.. maybe should be and told me to have my kids drink lemonade, lots of water and take magnesium to help prevent stones.  I have tried they seem unconcerned about stones.

THE BEST ADVICE I CAN GIVE TO YOU WITH A SON WHO NOW HAS IT IS
GET HIM CHECKED 24 HOUR URINE ETC. TO FIND ANY AND ALL METABOLIC ISSUES.  HAVE HIS VIT D LEVELS CHECKED TOO SINCE HELPS TO GET THE CALCIUM IN THE BONES.  TOO HIGH CAN MAKE STONES THOUGH SO HAVE IT NOT SO GREAT!  Doctor's do not know much about biofilm infections the research is just now catching up to the medical professionals but I have many articles on it and a
13 page research paper I am working on about it also.  IN the last 2 years many articles have come out confirming our theories about biofilms and stones!

BY TREATING AN PREVENTING MORE STONES AND INFECTION YOUR SON CAN BE ONE OF THOSE MSKER'S WITH LITTLE PROBLEMS!

I hope you will stay here and be a part of us,  Check back often and keep us posted!

It is only together that we are making a difference for MSKr's now and in the future!

Shelly

[summertime26]

I was diagnosed at 17 when I passed my first kidney stone, but I was born with MSK. I had infections continuously while growing up, but did not pass a stone until I was 17. My mother and maternal grandfather both have had problems with kidney stones, but not to the extent that I have and they haven't had any problems for years and years. I also have a cousin and great aunt on my mothers side who both have had kidney transplants, but not concerning with MSK. I am the only one who has actually been diagnosed in my family, although my mother's side seems to have kidney problems.

I also have a 3 1/2 yr old son. His pediatrician had an ultrasound done on him this year to check and see if any polycystic kidney disease. The results showed no signs of it. I will probably periodically have him checked throughout his life, just to be precautious.

[Neicee831]

I too started having pain at 15 felt like someone was sticking a sword in me.  Was misdiagnosised for 10 years.  Went to ER and was told that I had gastritis.   Then at 25 after having my 1 st child MSK was found.  I was sent to Cleveland Clinic and was told that someone in my family would have MSK.  Well at 17 my 1st boy was diagnosed.  Thankfully he has only had a few rough days since.  He is 22 now.  Me on the other hand feel yucky almost everyday.   Have also seen a nephrologist at OSU hosp and he told me this is like an orphen disease and just hasn't been explored much.  He did tell me that when our stones get diagnosed that in the center of the stone there is a nitus and if you have one then there maybe help in helping you.  But 10% of the people don't have a nitus and guess what I am in the 10%  of course.  So pain continues on.