I was found to have severe medullary nephrocalcinosis in march of 2008 from a CT scan, after many years of UTI's, back and groin paid.
My doctor is stating that this is idiopathic, but in my own research online I have yet to find any idiopathic diagnosis of medullary nephrocalcinosis. I am just finding that this is used as a descriptive term in radiology.
Can someone give me some advise? I have had a second opinion and just wondering if I should see a third.
If anyone out there has the same condition or has heard about it or maybe there are other tests that can be done? Anything at this point would be great
Idiopathic means of unknown origin. That is true, no one knows what causes MSK
so that could be all he is saying. Nephrocalinosis, means calcifications with in the kidney. I believe the term is used when there is a significant amount of calcifications and
mainly describes the calcifications in the Nephron or inner part of the kidney. My understanding is that these types of calcifications are classic pattern of MSK. I found it often called Randall's Plaque!
Patti I would encourage to read through the posts and health pages, most of us have the neprocalcinosis.too. Then post any questions that might have too!
Just to back up Shelly's statement about nephrocalcinosis meaning calcification within the kidney....That's how my MSK diagnosis was found. I had a CT scan because I went in for blood in my urine and back pain on my left side. I had nephrocalcinosis in both kidneys. Just follow what Shelly has stated and read around the message board.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.