Pain management

[summertime26]

I finally got into see a pain management doctor last week. For the past week and a half I have been having constant pain on my left side. I was slightly nervous about going to my new pain dr because so many people have treated me as though I am a drug seeker. I expected this one to be the same way. BUT, he was great! He stated that he has never had anyone come into his office presenting with this kind of pain, and that he didn't really know how to handle it. But, they prescribed me a big amount of pain medicine to keep me from having to go to the ER as much when I am trying to pass one and it hurts so much. They also wanted to try me on Levasin, a smooth muscle relaxer they give people with bladder spasms and interstitial cystitis. They seem to think that it may help with the pain as well. They are also wanting to try a procedure in which they will put an injection in through my back and numb the nerves on the side of my spine that transmits to my kidneys, hoping that by doing this it will help my pain I have in my kidneys. He has no idea if this will work, but he said if it does then eventually he can numb them completely. Also, he suggested that if that doesn't work, he can put a medicine pump in me that can distribute pain medicine directly to my kidney.

I wanted to gather everyones opinions on this and see what other peoples' pain management docs were doing for them. Please let me know if you have any other options we could try. Thank!

Summer
w/ calcuim oxalate stones

[MSKshelly]

Yes, nerve ablation is A LAST RESORT OPTION TO CONTROL THE PAIN.
The test will tell you IF it will work for you.  It is important though to find the cause
of your kidney pain first... even with pain management.  
Have your read the articles on the health pages?

1. Keep hydrated and watch your meat intake


2.  Have then check your Vit D levels

3.  Try natural or script antibiotics long term

4. IF pain levels continue, try a TENS unit,


5  Then consider the procedure they discuss above or doing Dr. Wolf's procedure to remove some of that calcifications.  Just consider your options
at that point.  Nerve ablation is not something you want to try as your
first thing!  

I know some time back a MSK patient had a procedure for the pain in which her kidney was removed and the retransplanted back in her own body without the nerve
connections.  I wondered though how that would help the infection esp. low level bacterial infections etc. since it did not deal with the root issue etc.  Last I heard
her potassium levels took a nose dive and they are struggling to keep them up...
that is a very important things to control!  This could be from the reconnecting process...

[MSKshelly]

Whoops my son is talking and I distracting me lol!

All I wanted to add is that your not alone and we all can get very
desperate to get out of this horrible pain!  PLEASE though take
one step at a time and do the least risky first!

Shelly

[Nittanylion85]

who is this doctor and where are you located? I cant find anybody who will treat me please help?!

[summertime26]

I was referred to Comprehensive Pain Specialists. They have offices in Hendersonville and Nashville.

[Nittanylion85]

I have been trying to get help from my doctors for a while now, and no one will help me. they say my pain isnt real. Do you have any suggestions?

[MSKshelly]

PM me and I will send you several articles that might help.  If those articles are not enough pm me again and I have a research article I am working on with a letter I will give you for your doctors.  This is really all I can do at this point, but the articles have many references for your doctor to prove the problems in your kidneys etc.

Also if you go to our MOARKIC  website there is a menu item for MSK, with a letter/article I wrote in 07 on the biofilm theory.  I now have a lot more info etc, on that!

It took a long time to get my docs to listen too but copying the many people here that are hurting a long with some of these articles they now believe me.  The article on the procedure by Dr. Wolf even if you decide not to have his procedure done it does state however very clearly that he selected only MSK patients with pain and no stones in the ureter or signs of UTI, only those with the calcifications in the collecting ducts.  This is a significant affirmation of our pain issues.

Sorry, I did not get back to you sooner.  Having some issues of my own lately!

Shelly

[summertime26]

Just wanted to leave everyone a quick note. We did the nerve procedure last thursday. It did not work for me. I woke up the next day with my left side aching so bad I couldn't breathe. I go back to my pain doc on this month to see our next option. I pray all of you are doing great!

Summer