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Re: MSK Concerns?
by GrammaWeasy, Oct 22, 2009 10:24PM
Hello, I am new on here and was diagnosed with MSK in Feb. 2009. I have other serious medical conditions, but they are taken second seat to my kidney problems at the moment. I have had approx. 15 diagnosed and treated kidney infections in the past 21 months, most treated with oral and IV Cypro. I had bilateral stents placed for 6 weeks in Feb. 2009, at which time they removed many stones from both kidneys, found a lot of calcification in both kidneys, and a lot of scarring and narrowing in both tubes, more so in the right. I am suffering many complications due to this condition alone and it only seems to be getting worse. I have been on low-dose preventative antibiotics, to no avail and I suffer a lot of pain and tremendous bloating, and edema, high blood-pressure, tachycardia, and this is effecting the other health issues. One big problem is the edema in both legs, I also suffer from neuropathy and atrophy in both legs and hips, (now beginning in arms) and use a metal crutch to walk and a wheel chair. This is made worse by the fluid retention. I would like to be able to talk with people who are going thru similar things, or know people who have MSK. I would like to participate in research programs, and I am concerned about the hereditary factors, as well as the real possibility of dialysis and kidney transplants. I welcome any suggestions, comments, or directions and thank you all in advance.
From a concerned MSK Gramma.
From a concerned MSK Gramma.
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You are far from alone and are in the right place! Many of us suffer from chronic uti's pain etc.I personally live on two full strength antibiotics as well as some natural ones too! There is a lot of info and research on this issue here as well.
PLease read through the old post and pm me for some other articles and info as well.
Also you can check out the articles on MSK and pain:
http://www.medhelp.org/health_pages/Urology/What-To-do-For-the-Pain/show/577?cid=185
Go to our MOARK IC website and click on the menu item for MSK as well. I will also be glad to talk with you more one on one and send you some articles that may help you!