Medullary Sponge Kidney Disease (MSK) Community
Recently Diagnosed with MSK
About This Community:

This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Recently Diagnosed with MSK

I was just diagnosed with MSK 2days ago... My doctor didn't seem very knowledgable about this disease-seeming that she had the same print out that I found on the net & she still couldn't really explain much about it.

Well - I have never passed a stone {at least not to my knowledge}, however I have had a few UTI's ... But Im in so much pain. Its painful {especially to my stomach, flank, and mid & lower back} when I walk, sit, stand, or sometimes breathe.

I'm in pain ... I'm scared ... and I'm feeling alone!!
3137679_tn?1342985245
Hey, you don't have to feel alone! I found out just back in Feb of this year that I have MSK! I too suffer with pain, pings and pangs mostly. I cramp and my back hurts a lot.
Try to stay possitive. Its not easy I know. I don't feel like doing much of anything any more and I use to be so active.
Go to You Tube and type in Medullary Sponge Kidney and there are a few ladies on there that can maybe lead you in the right direction. There are also lots of people on here that can help too.
Hang in there.
Diddy
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Medullary Sponge Kidney Disease (MSK) Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank