Would MSK be seen during laser lithotripsy, standard x-ray, or sonogram?
I'm 20 years old, and have had kidney issues since I was about 8.
A quick history -
Frequent kidney infections- (at high point could occur every month)
(Possible duplicate kidney, one nephrologist said I had one, the other said he didn't see it?)
Bilateral reflux, had deflux surgery at 17
At 19 found a several stones in the left kidney, the largest was over 2cm
90% calcium phosphate, 10% calcium oxalate
Had 2 laser lithotripsy surgeries to remove stones, x-ray after 2nd surgery showed stones still - and also a new one on the right side
After my deflux surgery they said I shouldn't get infections anymore, and for a year I didn't have any. But November, December, May, and Now I've had them. So clearly there's something going on that they're back (I've had my deflux mounds checked - they're still in place)
Yesterday I was prescribed antibiotics for my infection, but later in the night I had a lot of pain, nausea, a fever with sweating and chills so I went to the er and had a ct scan to make sure there were no obstructions (there were none)
I've never had an IVP, only x-rays and sonograms (last night was my first ct scan, but the doctors didn't even give me measurements of the stones)
If I had msk, would my doctors see it on any of these? Or would they have seen in while doing the lithotripsy?
Thank you for any thoughts on this - I already have scarring on my left kidney and really want answers before I start to lose function from these infections
I was diagnosed with lots of stones in 95 and not told I had MSK till 2003.
The IVP is the gold standard for MSK diagnosis though some have been diagnosed with other x-rays, my understanding is that is difficult.
As long as you have stones in your kidney, at all obstruction or not, you can and will have infection. The bacteria attach to the stones forming biofilms. If you would like some articles on this to take to your doctor send me a pm message and your e-mail address.
Your are not alone. Read through the many posts here and the health pages on the top right and I believe you will begin to understand what is going on in your body, MSK or just kidney stones.
My 19 year old has been tentatively diagnosed with MSK and it sounds like she has the chronic biofilm infections that you talk about. How do you treat these infections and who should we try to get her to see since the urologists and nephrologists that we have been seeing don't seem to have any idea what to do with her symptoms. She has passed at least 3 stones in the past 5 months but it is the infection symptoms that have caused her to basically not be able to live her life. Thanks for any help that you can give us.
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