MEDULLARY SPONGE KIDNEY DISEASE (MSK) COMMUNITY
Would MSK be seen during laser lithotripsy, standard x-ray, or sonogram?

Would MSK be seen during laser lithotripsy, standard x-ray, or sonogram?

I'm 20 years old, and have had kidney issues since I was about 8.
A quick history -
Frequent kidney infections- (at high point could occur every month)
(Possible duplicate kidney, one nephrologist said I had one, the other said he didn't see it?)
Bilateral reflux, had deflux surgery at 17
At 19 found a several stones in the left kidney, the largest was over 2cm
90% calcium phosphate, 10% calcium oxalate
Had 2 laser lithotripsy surgeries to remove stones, x-ray after 2nd surgery showed stones still - and also a new one on the right side

After my deflux surgery they said I shouldn't get infections anymore, and for a year I didn't have any. But November, December, May, and Now I've had them. So clearly there's something going on that they're back (I've had my deflux mounds checked - they're still in place)
Yesterday I was prescribed antibiotics for my infection, but later in the night I had a lot of pain, nausea, a fever with sweating and chills so I went to the er and had a ct scan to make sure there were no obstructions (there were none)

I've never had an IVP, only x-rays and sonograms (last night was my first ct scan, but the doctors didn't even give me measurements of the stones)
If I had msk, would my doctors see it on any of these? Or would they have seen in while doing the lithotripsy?

Thank you for any thoughts on this - I already have scarring on my left kidney and really want answers before I start to lose function from these infections
Related Discussions
3 Comments Post a Comment
Blank
489228_tn?1291535054
I was diagnosed with lots of stones in 95 and not told I had MSK till 2003.
The IVP is the gold standard for MSK diagnosis though some have been diagnosed with other x-rays, my understanding is that is difficult.

As long as you have stones in your kidney, at all obstruction or not, you can and will have infection.  The bacteria attach to the stones forming biofilms.  If you would like some articles on this to take to your doctor send me a pm message and your e-mail address.

Your are not alone. Read through the many posts here and the health pages on the top right and I believe you will begin to understand what is going on in your body, MSK or just kidney stones.

Hope that helps!

Shelly
Blank
Avatar_n_tn
My 19 year old has been tentatively diagnosed with MSK and it sounds like she has the chronic biofilm infections that you talk about.  How do you treat these infections and who should we try to get her to see since the urologists and nephrologists that we have been seeing don't seem to have any idea what to do with her symptoms.  She has passed at least 3 stones in the past 5 months but it is the infection symptoms that have caused her to basically not be able to live her life.  Thanks for any help that you can give us.
Blank
168348_tn?1333651418
Mine was DX'd with an x-ray with the dye following thru .. they took x-rays ev 5 mins or so .. is it called x-ray with IVP follow-thru or something like that where you glow LOL.
Blank
Post a Comment
To
Comment
Post A Comment
Go
Blank
Pain Tracker
Track location and severity
Start Tracking Now
MedHelp Health Answers
Submit
Top Digestive Answerers
168348_tn?1333651418
Blank
ChitChatNine
489228_tn?1291535054
Blank
MSKshelly
1787629_tn?1337796362
Blank
bambamm
Clermont, FL
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank