MEDULLARY SPONGE KIDNEY DISEASE (MSK) COMMUNITY
i feel like crying because of confusion and happiness

i feel like crying because of confusion and happiness

i am feeling overwelmed right now with finding this forum. i am sitting here crying because i'm sooooooooo cunfused and filled with joy all at the same time. i am a mother of 4 beautiful kids and i live my life the past 10 years in and out of hospital or the emergency room, because sometimes i have severe pain and am sure that i have a stone and i get there and nothing and they look at me like i'm nuts. i've been diagnosed msk for 10 years now and have always been told it means nothing and theres no way the 40 stones in each kidney could cause pain. i've been looked at like a hypochondriac and come to find out msk really is something and theres help for it. 2 months ago i started bleeding bright red only when i went to the bathroom and no one could tell me where its comming from. my right kidney has 40 stones in it with 20 if those around 1.5cm and about 10 of them being around 9mm and the rest passible. the other side is the same but with less overall stones cause they cleared them all a year ago with 3 blastings. i am left very speechless by this sight and i hope i can feel very comfy here. i need people who know what this is like to hear my story. thank u to whomever made this community.
Tags: happiness
Related Discussions
  • pain for a month (1 replies):
    Can anyone help. I am a 62 year old male and was diagno...[more]
  • MSK (1 replies):
    I cannot believe there are so many people like me out th...[more]
  • MSK (6 replies):
    Hello everyone!! Im a new member, there is a little rel...[more]
  • supplements (4 replies):
    Hi Everyone I am so pleased to find this forum. Other ...[more]
  • MSK pain (3 replies):
    (New to this forum) I am in British Columbia,Canada(55 y...[more]
489228_tn?1291535054
Audra,
   I am so glad that you found us and shared your story with us.  You sadly, as you will find reading through the pages of posts on this site, are not alone. Welcome, {HUGS}, you are among friends!  There is many articles and great info in the Healthpages on the right hand top side of this forum.

Together we are also seeking and have found some solutions for dealing with the kidney pain and MSK!  Having pain, that doctors can not explain when we have no stone in the ureter and no infection showing on standard tests or cultures, is sadly typical for us..  There are several reasons for that, and YES WE DO HAVE PAIN FROM THE STONES IN THE KIDNEYS.  I would encourage you to send me a private message with your e-mail address and I will send you some information, or pdf articles that might help you too.

I also have an article on our MOARK IC website on MSK and biofilm infections.  Honestly with the rate and size of stones you are making you very well make have infectious stones, that are the result of biofilm infections  Right now I know that is most likely all Greek to you but I will help you to understand the best I can.  I would be glad to call and talk with you if you would like as well.  I can tell you I have lost count of the number of MSK patients just like you I have spoken too over the last 2 years, I am sure it has been 100's!

  Here is a link to an article I put together on some options we have found for treating the chronic pain issues::

here are also some specific articles on MSK and pain in the health pages here:
http://www.medhelp.org/health_pages/Urology/What-To-do-For-the-Pain/show/577?cid=185


One of the biggest things that really is growing in acceptance is getting your Vit D levels checked. So far all but one of us with the pain and problems has been very low.  

Again, Welcome glad to have you aboard!  There are many great people on this site
and I hope you will hear from them also soon!

I look forward to talking with you!

Shelly
Blank
Post a Comment
To
Comment
Post A Comment
Go
Blank
Pain Tracker
Track location and severity
Start Tracking Now
MedHelp Health Answers
Submit
Top Digestive Answerers
168348_tn?1333651418
Blank
ChitChatNine
489228_tn?1291535054
Blank
MSKshelly
1787629_tn?1337796362
Blank
bambamm
Clermont, FL
RSS Expert Activity
1741471_tn?1336957856
Blank
LIVE WEBINAR TOMORROW!-SUPER BODY, ... Blank
May 22 by Michael Gonzalez-WallaceBlank
2126606_tn?1335910182
Blank
Fibromyalgia Awareness
May 11 by Clare Waismann Kavin, RASBlank
2126606_tn?1335910182
Blank
Opioid-induced hyperalgesia reduces...
May 03 by Clare Waismann Kavin, RASBlank