I am a male in my 20's with ADHD.
A few years ago I tried
RitalinRitalin
Ritalin la
Ritalin-sr for a period. It worked very well for my symptoms but caused chest pain, pretty severe actually. (10 milligrams 2-4x/dy)
I then tried
AdderallAdderall
Adderall xr (adderrall). It also caused some minor and fleeting chest discomfort--but much less than
RitalinRitalin
Ritalin la
Ritalin-sr. However it caused my heart to really race and beat hard (at around 5 mg) in addition to
insomniaDepression and insomnia
Insomnia concerns
Primary insomnia
Sleeping difficulty. Like
RitalinRitalin
Ritalin la
Ritalin-sr, it also worked very well for my symptoms.
Next I tried
Strattera which did not worked and only caused side effects (80 mg/dy).
I thought perhaps I had an underlying heart condition making me so sensitive to stimulants, so I stopped all medications for nearly 2 years and was checked out by a cardiologist (2 actually).
Both cardiologists said my heart is fine except for mitral valve prolapse (with minimal regurgitation). My thyroid is also normal. I even had a stress echocardiogram which was normal. They said it would be ok to use stimulants "as tolerated".
I've tried so hard to do without meds, using fish oils and exercise, avoiding alcohol and getting proper sleep. However, this is simply just not cutting it and so recently I decided to try Dexedrine at a very low dose. At 1.25-2.5 mg it was easier on my heart rate than Adderall
(adderrall), but still I could notice a definite, although fleeting chest discomfort (like a little bit of pain and pressure).
I do not want to try a TCA or MAOI nor add a beta blocker to a stimulant.
From the research I've done I think that leaves me with about 3 options. The first is Provigil, but it is contraindicated with mitral valve prolapse. The other 2 are Focalin and Desoxyn.
Although Desoxyn is supposed to have the best CNS vs PNS activity, I can just imagine the song and dance I'd have to go through to get someone to prescribe it.
So, I'm considering Focalin. My understanding is that methylphenidate has the least peripheral actions of the stimulants and that focalin contains only the active "d" isomer whereas Ritalin is a racemic mixture of "d and l".
My question is whether Focalin would really present an advantage over Ritalin in terms of peripheral side effects (heart primarily). Although it's marketed under the premise that it only contains the active "d" isomer, thus allowing for half the dosage and theoretically half the side effects, I've read that the "l" isomer is actually very poorly absorbed.
What I really liked about Ritalin was it's fast onset and short duration (no insomnia, flexibility of dosing). Obviously I could not tolerate the chest pain.
Getting to the point, I have 3 questions:
1. Is the L-methylphenidate isomer very peripherally acting (heart, lungs), or just "inactive"?
2. Do you think Focalin would truly be a reasonable alternative to Ritalin for me?
3. What are my other options?
Sorry for the long-winded post. I'm just very frustrated that I won't be able to find an effective and tolerable tx. Thank you.
Thank you, sounds very reasonable...I'll talk to my Dr. about giving that a shot.
Psychology professor Diane McGuinness, PhD: "Methodologically rigorous research indicates that ADHD and hyperactivity as 'syndromes' simply do not exist"
Neurologist Fred A. Baughman, MD: "We are not mis-diagnosing or over-diagnosing, mis-treating or over-treating ADHD. It has been a total, 100% fraud throughout its history"
The Australian National Association of Practising Psychiatrists (NAPP): "[ADHD] is not an inherited genetic disorder or organic disease" and "scientific evidence to support ADHD as a disorder is unproven".
Author Beverly Eakman: "These drugs make children more manageable, not necessarily better. ADHD is a phenomenon, not a 'brain disease'. Because the diagnosis of ADHD is fraudulent, it doesn't matter whether a drug 'works'. Children are being forced to take a drug that is stronger than cocaine for a disease that is yet to be proven"
Psychologist John Breeding, PhD: "The diagnosis of ADHD is, itself, fraudulent"
The Consensus Development Conference, held by the US National Institutes of Health, came to this conclusion: "[W]e do not have an independent, valid test for ADHD, and there are no data to indicate that ADHD is due to a brain malfunction
Barry Turner ,medical ethics lecturer at university of Lincoln october 2005 -
"ADHD is a behavioural disorder not a disease.I consider that it is wrong to give children powerful central nervous system stimulants for this.There is no evidence of any etiology of disease in this condition.
Therapy ,psychology and nutrition have all been demonstrated to work for this condition.It is a learned behaviour and it can be unlearned"
I wouldn't believe in ADHD either if I didn't have it.
Children on fish oil capsules showed improvements in attention, behaviour and vocabulary.
If your child has attention deficit hyperactivity disorder or ADD, the solution may be as simple as giving your child fish oils.
An Australian study suggests daily dose of fish oil helps calm children with attention deficit hyperactivity disorder.
Children in the study were given a commercially available dietary supplement containing a combination of fish oil and evening primrose oil, in a ratio of four to one. They were given just under a gram of fish oil a day.
The results showed that children on the active fish oil capsules, rich in omega-3 fatty acids, had improvements in attention, behaviour and vocabulary. They were able to concentrate better, they were calmer, less impulsive.
The reason why fish oils are important is possibly because 60 per cent of our brain is composed of fats, the most important being omega-3 fatty acids, such as those found in fish oil, and omega-6, like those in evening primrose oil. And as many people are deficient in the omega-3 fatty acids, it can cause several problems.
There's a growing body of research that's finding evidence of links between omega-3 deficiency and mental health problems like depression and schizophrenia. And research is also suggesting that some children with developmental problems, including dyslexia, can benefit from taking omega-3 supplements.
The fish oil conducted in this study had higher concentrations of EPA and DPA. Researchers are starting to think that perhaps EPA is the important one of the two. So when youre looking for fish oil supplements dont just look at the volume of fish oil, but the amount of EPA and DPA in it as well.
Fish oils have been shown to be safer than Ritalin a drug commonly used to treat ADHD. As this drug has been linked to suicidal thoughts, hallucinations, aggressive and violent behaviour and heart problems.
http://www.938live.sg/programming.aspx?Editorial_Id=2497
Mental consequences: Increased addiction (ciggerettes, caffeine), increased anxiety when not on drug, agitation with extremely hyper people, losing sight of the "big picture" and often times spending too much time hyper-focusing on the little tasks...I miss alot of my old flaws... So I don't take my medication on the weekends or when I find I don't need it, it isn't ME, it just helps me along my journey that would too often venture off the road and crash if I didn't.
Anyone who has ADD knows how hard it is to function in a society that condones all the things we somehow do best. I completely lack self-control. Not only has this gotten me in trouble with school (kicked out of class, suspended, poor performance, low self confidence, bad reputation, arrested, etc) but most importantly it has caused so much damage to relationships with the people I love and care about.
I just want to stress how important it is to remember that taking medication is just part of the solution. There are some really great books out now that do a wonderful job of explaining that ADD is a WONDERFUL thing if you learn how to take control of your life and find a balance of solutions that works for you.
Well just realized I got a little off topic...as to answer your question:
It can take quite a while for which ever stimulant you are taking to work effectively because finding the right dosage can be extremely difficult. If after a week you feeel absolutley no improvement or worse (too much medication), you want to call your doctor and let them know. Be patient.
Also if you haven't yet read Delivered from Distraction, it is expectional.
There is no such thing *** ADHD "medication" the term is "poison".
If you find drugs prescribed for ADHD provide you with relief then im glad but maybe also try ;
cough medicine,alcohol,aromatherapy or standing on your head.All of these other options have as much scientific basis for trying but they arent known to cause brain shrinkage like ritalin is.
ADHD doesnt exist-
Psychology professor Diane McGuinness, PhD: "Methodologically rigorous research indicates that ADHD and hyperactivity as 'syndromes' simply do not exist"
Neurologist Fred A. Baughman, MD: "We are not mis-diagnosing or over-diagnosing, mis-treating or over-treating ADHD. It has been a total, 100% fraud throughout its history"
The Australian National Association of Practising Psychiatrists (NAPP): "[ADHD] is not an inherited genetic disorder or organic disease" and "scientific evidence to support ADHD as a disorder is unproven".
Author Beverly Eakman: "These drugs make children more manageable, not necessarily better. ADHD is a phenomenon, not a 'brain disease'. Because the diagnosis of ADHD is fraudulent, it doesn't matter whether a drug 'works'. Children are being forced to take a drug that is stronger than cocaine for a disease that is yet to be proven"
Psychologist John Breeding, PhD: "The diagnosis of ADHD is, itself, fraudulent"
The Consensus Development Conference, held by the US National Institutes of Health, came to this conclusion: "[W]e do not have an independent, valid test for ADHD, and there are no data to indicate that ADHD is due to a brain malfunction
Barry Turner ,medical ethics lecturer at university of Lincoln october 2005 -
"ADHD is a behavioural disorder not a disease.I consider that it is wrong to give children powerful central nervous system stimulants for this.There is no evidence of any etiology of disease in this condition.
Therapy ,psychology and nutrition have all been demonstrated to work for this condition.It is a learned behaviour and it can be unlearned"
You are just confusing all of us ADD sorts playing around out here in fairy land.
Think before you roll out the bloviators rug and inflict all of that rotton stench of decaying, discarded refuse on us all.
retch!
my words fail me.
Begone!
Lady AXXIOM
The name is dontakedrugs not "meds" and that is because there is no such thing as ADD medication.You cannot medicate to rectify a biochemical disorder that doesnt exist.
If you read above you should note "There is no evidence of any etiology of disease in this condition"ADD drugs are poison.
You think i should think before i post?Well ill leave you with some more food for thought -
Thursday, January 5, 2006
Reported risks spur new study of ADHD drugs
By Andrew Bridges
The Associated Press
WASHINGTON Reports of sudden deaths, strokes, heart attacks and hypertension in both children and adults taking drugs to treat attention deficit hyperactivity disorder are spurring new government study into the medications' safety.
Sales of drugs to treat ADHD have increased sharply in recent years, with use growing at a faster rate among adults than children, according to a recent study by Medco Health Solutions, a prescription benefit manager. Spending on ADHD drugs soared from $759 million in 2000 to $3.1 billion in 2004, according to IMS Health, a pharmaceutical information and consulting firm.
The Food and Drug Administration said it had received reports of what it called "serious adverse events" including deaths in association with the therapeutic use of the drugs. The agency considers the reports "rare though serious," FDA spokeswoman Susan Bro said Wednesday.
The FDA's Canadian counterpart, Health Canada, yanked the ADHD drug Adderall (adderrall) XR from the market for six months last year in response to reports of 20 sudden deaths and 12 strokes in adults and children using the drug. A number of the cases involved children with structural heart defects.
The panel eventually concluded there was inadequate evidence of increased harm from Adderall (adderrall) XR compared with other available therapies, a conclusion the FDA also reached based on data on hand.
Now the U.S. regulatory agency is asking its Drug Safety and Risk Management advisory committee to examine ways of studying further the potential cardiovascular risks of the drugs. The few studies that have looked at longer-term use of ADHD drugs provide little information on those risks, the FDA said.
The committee is to meet Feb. 9-10 in Gaithersburg, Md.
"The issue of drug treatment of attention deficit disorder in children has been a controversial one without this issue of cardiovascular risk, too. It adds another concern to what will certainly be an interesting conversation," said Arthur Levin, the FDA committee's consumer representative.
A posting to the FDA Web site did not identify any of the drugs by name. However, the most commonly used ADHD drugs include Adderall (adderrall) XR, made by Shire Pharmaceuticals, and Ritalin, made by Novartis Pharmaceuticals. Various other companies make generic versions of Ritalin as well.
Shire spokesman Matthew Cabrey said the company had not been told of the meeting but added it may send representatives. Novartis did not immediately return a call seeking comment.
When my son was 4 he could not sit to eat, listen to a story, or even be hugged. He was one of the youngest patients the hospital had put on Ritalin, and believe me I was scared. He listened to "Brown Bear" that very day! It opened his world. Is it such a stretch to think that a child with obvious damage shown on an MRI (rt. frontal/temporal lobe and global effects) is so different from kids where we dont have the technology to see the damage as well? We know early intervention works for every issue but in this area we hold off treatment due to the stigma people who are underinformed and who do not have to watch their children suffer being punished and cry and not have friends because they want to be good but just can't stop themselves endure daily. You can label it whatever you want. But if the ADHD label brings relief and strategies and understanding to people, then we need to consider it (in a careful, systematic way of course). No one can deny another's experience. These days there actually are neurological tests that support ADHD diagnoses. Symptoms and careful, loving team work, being an advocate for yourself or your child are what is most important. Nothing can be accomplished by hurting eachother. Of course there are people who are misdiagnosed with adhd when they should not be. However, there are many more who have suffered with no help and have been thought to be lazy, underachievers when the appropriate support would have made a huge difference. I have seen it time and time again.
Note: To this Forum, Sorry for the 3 posts in a row but true to an ADD'er I am impatient for conversation and I hate to wait for input. LOL Thanks
Over the last couple of weeks I have gone 'cold turkey' off my 75mg Efexor + 2 Ritalin in the morning which was not planned but once I started I continued to see if I could find the real me.
I was diagnosed AADHD with moderate depression 3 years ago and I know I have a disorganised house with paperwork everywhere and lots of jobs started but never completed. I go off on my "brain tangents" I call them and get a good idea and then another good idea so there are lots of balls in the air so to speak. My answer I thought for this behaviour is that I am afraid that if I complete a job then there may not be something else for me to do so there are lots of jobs for me to do, cannot get bored this way. My husband reckons this "excuse" is wearing a bit thin now and that I am more intelligent than this to allow this to happen.
Since being diagnosed my disorganisation etc has got worse - I never used to be like this which is very interesting. That is why my husband believes the meds have not been good for me.
I have been off the meds now for 2 weeks and I think nearly over the terrible withdrawals. Maybe my motivation will come back and I can get on with completing all the jobs that I have started.
ADD does exist and my son was diagnosed with it first 3 years ago and then it was my turn. He has suffered severe anxiety for years and depression and the meds have helped him a lot.
Good to get your feedback when you have time. Cheers, Lionness
I have been an ADHD sufferer all my life. Now at age 37, it still plagues me as I wasn't put on medication in childhood.
I am a classic case of where the condition in not treated in childhood, it can most likely carry into adulthood.
It has left my life incomplete, many goals and dreams fallen short of acomplishing, along with a depressing weight of failure that wasn't deserved even though I tried desperately
to do the right things.
It really pisses me off that there are arrogantly ignorant individuals who are trying to impose their seriously lacking opinions of the medical facts that has been learned about ADD/ADHD in just the past 15 years. Especially with modern medical scanning devices, have learned to map the different brain centers, and how they work in relationship with each
other under various stimuli or situations. To you IGNORANT OPPRESSORS, SHUT the F**K UP!!! You don't know what its like, no idea, to have, and grow up with ADHD. Being labeled weird, shunned, not allowed to fit in with your peers, academics are yet another terrible struggle as ADHD people need more one on one time to learn and perfect subjects like mathmatics, or large volumes of information. Fact is with class overcrowding nationwide, teachers only on the average can spend only 3-5 minutes of quality time a day with each student in thier classes.
I finally had to go on disability in 1999, also beginning a 5 year up-hill battle to finally get my ADHD issue addressed, and medically treated. I just kept getting "passed" around no "Medical/Mental Professional" wanting to deal with the reality of that I had extensively researched why I was labeled "HYPER" as a kid, and learned of many others getting proper medical treatment for thier condition.
In late spring of 2002 I sent via e-mail a 7 page letter of complaint to NIMH about how I was being treated/misdiagnosed/neglected where I lived. Many Doctor's names were mentioned, as well as my whole life story living with ADHD. That shook a few cages in the local medical community. I did it before they knew I was going do something so socially acceptably drastic in trying to get help: Notify the national mental officials whom ALL practicianers in every state have to ultimately answer to. Also it brought about an investigation on who/why were these individuals dressed up as DEA or ATF who were conducting "Raids" for a brief time on several doctor's offices during thier patient/business hours. Terrifying/Manhandling patients, and treating everyone in the office like criminals being detained in a crack house raid. They would threaten the Doctor that they were above the law, and they would revoke the Doctor's license if He/She kept prescibing ADHD Stimulant medications for ADHD people. After my little stir-up letter to NIMH, these "Raids" all suddenly stopped. But many Doctor's were frightened to help ADHD people for quite some time in the years that followed.
By November of 2004 after further psychiatric tests, changing of Doctors, and year on Wellbutrin(Did nothing!), Straterra(What a Joke!), I have been finally prescribed Adderall (adderrall) XR. A great victory won for me after a lifelong of ADHD suffering.
my Doctor tells me to take 40mg of Adderall (adderrall) in the morning
along with 1mg of Clonazepam, and 100mg of Zoloft. Almost exact
to what I suggested in my letter to NIMH. Well IT'S WORKING GREAT! I have been on this regiment for over 2 years now, and have had no bad side-effects. I can eat during the day medicated, but most of all GONE! is the scatterbrainess, mind going in all directions at once yet going nowhere like a car stuck in the mud. GONE! Is the impulsiveness "off the wall" quirps, spaz-outs, etc. Adderall (adderrall) has replaced it all with calmness, thinking before acting, great focus and attention
span, concentration at optimal performance, less fidgetiness
while sitting for long periods, and I able to study/learn/retain significant amounts of complex technical information. It makes it to main memory now where it didn't before.
I am contemplating returning to college for another degree. I still have to put many parts of myself together as my life was also filled with Mental/Physical/Sexual abuses. I am glad to know relief from ADHD for the first time in my life. It angers me why I wasn't on this medication in childhood. I was the victim of a well meaning handicapped Mother, and my Grandparents who raised me for her. Thier ignorance in saying No on ADHD medications that my school's Principals, Counselors, and Teachers were pleading with them for years to put me on, set the road for inevitable disasterous hardships I would endure.
My family is mostly passed away now, and I had to persevere alone in getting help to control my ADHD. Stick with stimulants for treating ADHD. They have been tried and proven for decades
in treating the condition.
Thank you for you time in reading this testimony.
I am 34 and have recently been diagnosed with ADD and your comment:
"It has left my life incomplete, many goals and dreams fallen short of acomplishing, along with a depressing weight of failure that wasn't deserved even though I tried desperately"
I think Desperately is the Key word... i know the feeling.
nails it on the head form me. That is my life. I barely made through high school and college. The kicker is my entire family everyone finished either Med School or some graduate school. except me. I thought I was adopted for a while. My mom must have ADD and my dad is pretty intense too.
Focusing is so difficult for me. I will say the 2 times I tried cocaine I felt a clarity and profound sadness. The hangover the next day was awful so no fear of me trying that again.
I tried Ritalin but felt it made me too anxious.
Did you try different medications to find the right one?
And what other pointers could you give a person new to this diagnosis?
Much Appreciated.