Dear Amanda,
From your letter, you seem overwhelmed.
You have brought up many concerns; weight gain, an unusual side
effect and the discomfort of being on medication so many years.
As you have mentioned
PaxilPaxil
Paxil cr is
effectiveEffective strength cough syrup treatment for your anxiety and
panicPanic disorder
Panic disorder with agoraphobia attacks. There are alternatives, such as Celexa or Prozac which may cause less weight gain. With any medication proper diet and exercise are important.
I am unaware of Paxil causing the side effect you mentioned. It is also possible that it is a symptom of anxiety. Consult your
psychiatrist for a proper evaluation.
Finally the medication you are on is effective. Many patients with panic disorder need chronic medication to keep the disorder in remission.
Best Wishes
HFHS M.D.-SW
*Keywords: Paxil, Panic Disorder, Anxiety disorder
withdrawal, as well as the comments offered by users
of this forum. Of these, Amanda's experience most
closely matches my own. When I stopped taking Paxil,
the only noticeable side-effect was that I would
experience an intense (yet brief) moment of dizziness /
disorientation whenever I moved my eyes or closed
them quickly. This lasted for about a week, and was
very difficult to cope with.
I'm guessing the doctor who replied to your query has nothing at all to do with anti-depressants. Otherwise he or she would know that Paxil in particular has really nasty withdrawal side-effects for many people. They include what you described, plus, nausea, vomiting, headache, insomnia, vertigo and dizziness. I have tried 10 times or more to withdraw, and just couldn't do it until now. I am taking Wellbutrin as well, and the reason I started it was help with those symptoms, but it only helped to a small extent. Mind you, I was only taking 5MG of paxil a day. In the end, it was only determination and grit that got me through it. Actually, after a week the symptoms are still quite vivid. Herbs that have helped are Kava Kava for the overwhelming irritation and anxiety, and Valerian for sleeping. I came upon your question while searching for further help, of which there is little. It's not "all in your head", and an easy way to find out is to go back on it to see if the symptoms subside. I suggest that you listen to your innate wisdom, rather than relying solely on MD's advice. Respectfully, yours in suffering.
I have been taking it for a year and have really felt
a great deal better on it. This past week I was busy
with work and so on and just didnt get around to
getting a refil. I was off it on thursday, and by
monday I was feeling pretty strange. I should first
mention that I felt a gradual depression come over me
over those days. It was not an intense depression but
enough for me to notice. Then by sunday I was geting
what I now call the neuro-shivers, meaning that when
I moved around I got this wave of dizziness through
my neck, head, and eyes. It is one of the strangest
sensations I have ever felt.
This information I discovered is a little scary, and
made me think a lot about what it would be like to
get off paxil completely. I have also gained weight
on paxil. Though I have an improved diet since being
on it, I find that I gain an average of 2 pounds
every month. (This may also be a lifestyle issue, but
I feel it is worth mentioning as a possible side-effect)
THIS MAKES ME MAD!!! Trust me I am glad that paxil helps
me conquer my anxiety attacks, but I just wish there was
a way to better inform people before they get on these
drugs. I guess I blindly trusted everyone who contributed
to me being put on paxil, and I wonder where I would
be if I researched the effects of it myself, before
getting hooked.
-timothy
If doctors would try listening to the patients instead of patronising and looking down at them we might all be a little further along the road as regards medical discovery.
I would like to state again that this forum service and your responses are greatly appreciated, but this kind of statement beggars belief.
But after a couple of weeks it just went away and I haven't had any problems since.
I have found that smoking small amounts of marijuana at a time have helped me through times of anxiety. It is so stupid that this plant is illegal. It is a natural non prescription and it works! I haven't tried St. John's Wort, but may consider it if my doctor doesn't push me on an SSRI again.
You were not imagining your side effects. I have just experienced the same incapacitating symptom of Paxil withdrawal. It is like a dizziing zap when you move your eyes whether they are open or not.
Is there a recommended procedure to go off Paxil? My symptoms lasted 3 weeks and I gave up and went back on. Could a doctor please respond?
I did not associate this new behaviour on the lack of Paxil in my system. I didn't know what was happening to me at all but was worried and frightened enough to see a doctor at a walk-in clinic on the following Monday. I found it extremely difficult to explain what was happening to me. He had never heard of these symptoms before. He did the normal in-office tests...blood pressure, heart rate, reflexes...all was normal. He told me that he felt I was just highly sensitive and not to worry.
By Thursday, eight days after having stopped the Paxil, I went to my family doctor as the symptoms were worsening. He basically echoed what the walk-in clinic doctor had said. He told me not to worry and it would go away. He said if I worried about it I could produce all kinds of other symptoms and make things worse. He renewed my Paxil prescription while I was there.
I began to take the Paxil again that night (20 mg/day). The next day I experienced none of those dreadful symptoms. I felt perfectly normal once again. As I mentioned earlier, it occured to me not at all that the lack of Paxil was causing these symptoms..and both doctors did not appear to know about the possibility of this occuring at all. I only realized it after starting the Paxil again and being rid of the hell I was in for eight long days.
So what happens now? If I ever have to come off Paxil again, what then?
I finally went off cold turkey. It has been two weeks. The yucky physical symptoms were there for 2 or 3 days (shaking, sweating achy) but the other disturbing symptoms are very similar to what you all describe. I have increased bouts of anxiety. I can't handle even the smallest issue without breaking into a gut tightening, heart pounding panic. I'm scared to go to bed, because then I'll sit awake and worry and wreck my body even more from all this worrying! The eye comment was very interesting to me. I have told a NUMBER of doctors about how I feel this wierd wave of pulsating and dizziness in my head that creeps up unexpectedly. It never occured to me that it could be related to my eyes, but I'm pretty convinced it's possible. I move my eyes to one side or the other and that wierd feeling comes back again. It feels......wooly on the inside of my head, the pounding I mean. Can anyone relate to this more?
thanks
Regarding the "zap-like nervousness"...I get this feeling too if I do not take paxil for 2-4 days. It is hard to describe but it is almost like getting shocked. It sort of feels like someone "unplugged you" for a split second. I do not get it when I move my eyes though...just seems to happen whenever it is low in my system.
It is very difficult to get off. I too have gained 20 lbs. over 5 years being on it.
BUT, I tried to go off the drug cold turkey (ignorant fool that I was). The first day off the drug was fine; the second, third and fourth days I became increasingly irritable and physically weak. By the end of the fourth day I was in bed with an increasing heavy sensation throughout my body as if everything were turned off. I felt as if I were melting into the bed. I could not get up. My son visited me on the fifth day of my ordeal and thought I was dying. I could not hold my arm up to him to kiss him. He rushed out to get my Paxil. Forced me to take my usual dose. Then, lectured me for about 15 minutes.
I am afraid of this drug, but I still need it for now. I have also gained much weight, about twenty-five pounds. I do not like what I look like, too.
I was happy to read that some people have had no problem coming off the drug. Maybe I will be able to go off slowly with the help of my physician this time.
It stopped working for me after about 6 years. Doctor put me on another anti-depressant (sorry, can't remember which one, may have been Prozac, Wellbutrin, or Effexor)and at the same time SLOWLY weaned me off the Paxil, reducing it by 5 mg. every 2 weeks. I had no withdrawal symptoms this way. but I think you really need to also be on a similar drug for it to work this way.
There is a question which I wanted to ask,
for anyone who had been depressed for a long time
do you experience unexplained hair loss, dry skin, and other physical symptoms of illness, which doctors say you are
perfectly fine?
Puddin
puddin_***@****
I have been off Paxil before and have experience little or no side effects. But I will keep you posted.
Right now it's from 30mg to 15mg (I am cutting the blue 30mg pill in half and taking the smallest piece)
I am going to my doctor to discuss this further.
Good luck all
I have been hooked on paxil for 5 years and can't get off of it. Every time I try, I get physically sick
with the symptoms you all mention. I consider myself a drug addict, if I don't get my fix on time I get sick. Help!
The other fact remains; it has been years now that this medications has been out... and I am certain with all of these posts (along with all others on the web) that both doctors and pharmaceutical giants know about this issue and do nothing about it.
Well, I have had IT! I want OFF of this ****!!!!
THANKS
Val
scott
kind of like a support group, because everyone i tell this too seems to think its just me and not the masses.
stay strong
Notfeelingwell_2 - were you the one that asked people to call you b/c you were not doing well? If so, I did call you and you were at the Dr. Please feel free to call me or write to me. I have the same user name at paxilprogress. That is a much much better site than this one. Please take a look.