I will try to keep this simple: I was on
PaxilPaxil
Paxil cr (40mg in the morning) for about 10 years (since the age of 15) and was doing fine (diagnosed with clinical depression and anxiety
disorderAdjustment disorder
Anorexia nervosa
Asperger syndrome
Autism
Autoimmune disorders
Bipolar disorder
Bipolar disorder
Bleeding disorders
Borderline personality disorder
Bulimia
Chronic motor tic disorder). Then, in fall of 2003 I came down with what doctors finally diagnosed in December of 2003 as viral spinal meningitis. Either the
recoveryRecovery position - series of the meningitis took a long time (highly unlikely they said), or it threw my meds off to a high degree. For 10 years no problems, and then out of the blue, I started the original symptoms of the meningitis with
feverAllergic rhinitis
Coccidioidomycosis
Febrile seizures
Fever
Fever blister
Fever blisters and canker sores
Herpes labialis (oral herpes simplex)
Histoplasmosis
Malaria
Rheumatic fever
Scarlet fever,
chillsChills (my wife came home to find me under all the blankets in the house), nausea, headaches, and my wife says she remembers me having a stiff
neckCervical spondylosis
Head and neck glands
Herpes zoster (shingles) on the neck and cheek
Irritated seborrheic kerotosis - neck
Lymph tissue in the head and neck.
Melanoma - neck
Neck lump
Neck pain
Neck pulse
Neck x-ray
Oral cancer--hence, viral spinal meningitis. Those physical symptoms subsided, but mental ones took over, such as mass anxiety and panic attacks, extreme tiredness (Paxil can cause tiredness by the way, as many antidepressants can), feelings like I wasn't there (derealization some call it), and feeling like I was confused all of the time, along with being dreadfully scared and maybe even a little paranoia. After trying me on Wellbutrin, Lexapro, and back on Paxil, they seemed to get me to a level of Paxil that worked. What did stupid me do--I felt things were going well and the Paxil was making me gain weight, so I messed with my Paxil and came down from 40 to 30 mg. My symptoms all started coming back last July '06 and it got the point where they switched me to Effexor XR and Clonazepam (I was hospitalized while they really upped the dose for about 5 days, including the weekend). I had been taking 225mg of Effexor XR in the morning, along with 2 mg of Clonazepam in the morning and another 1 mg around noon or 1pm. That had been my regiment since last November/December and I have done pretty well.
Well, my psychiatrist, not wanting me to be on the Klonopin too long, has taken me down by 0.50mg to 2mg in the morning and 0.50mg at noon. That was 3.5 weeks ago. I have had increased anxiety and tiredness, as well as feeling not here and confused. I was wondering if this is normal, and if it is more likely contributed to my generalized anxiety disorder and me psyching out about changing my meds or if 0.25mg can make this big a change in my physiological makeup. I don't want to be on meds forever, but I need them, I need them, but I hear terrible things about Klonopin. Please let me know regarding this. Thanks ahead of time.
Also, my wife and I wish to start trying on a child this fall. Do I need to be off of the Klonopin before we start trying. I have heard the bad things about Klonopin and do not want any chance of something happening with our child. Will my being on Klonopin have a chance of any negative effect in our child. If there is even a chance, I will not be on it.
The only thing I know for certain is that breast-feeding while on benzo's like Klonopin can be harmful to the child. Try switching to something with a better half-life like Valium, and wean off very slowly.
The doc will have better information, but I just wanted to share that piece with you.
Good luck.
All of a sudden a week ago my doctor wanted me to taper off the Klonopin because it is HIGHLY addicting and a "controlled substance" If you just stop takeing it cold turkey no matter how long you have been takeing it for....you will have MAJOR side efffects! My body is so addicted to this drug that if I miss a dose...I can start to feel an anxiety attack comeing on, even if there is no reason for one! Just withdrawal from the medicine. Sorry, my point being is that he all of a suddenly wanted me to go from 0.5 in the morning to 0.25 in the morning, 0.25 in the afternoon, and 0.5 at night before bed. I tried it for about 3 days and had MAJOR anxiety issues and have been feeling like an attack is going to happen. So basically he just cut it in half! I was freaking out when he told me to do this. I ended up going back to my regular doesing before he changed it...Now I feel fine, "back to normal". So there is no way for me to get off this med unless takeing another anxiety med while getting off this one. That would mean me takeing a "non-habit forming anxiety med". My body is so addicted to this Klonopin and I don't even take as much as you do. I would end up back in the hospital without it (if I just stopped it). So yes I say Klonopin is not good. If you can get on something that isn't a controlled substance...find alternatives. I was freaking out majorly when I had to change doses!
I was tols to NEVER get pregnant on the neds I am on because I would have to have an abortion due to the effects it would have on the baby (negative ones). But as far as males go...I am not sure. You shoudl definately just tell your doctor whats up and what you are experiencing. He/She needs to get you on the right track and hopefully you can get off the Klonopin! I am going back to see my doctor next week because I don't know what to do myself!
Dang sorry this is long! LOL It is just nice to see that someone else is on the same drug as me! It is a hard one! I wish you the best and I know how it feels to have anxiety issues, but it isn't anything you can control...or at leats thats what I have been told. Sucks because I want to get off these meds too! I send my love...:-)
My opinion, at that dose is that you should consider inpatient treatment for this. Whatever you do, do NOT cut anymore than 0.25mgs per week. What kind of doctor are you seeing? I can't believe a doc would actually let you even get half way to that level, unless of course you are abusing it.
Please seek help, and don't go chasing after withdrawal fears. Even at that high dose, the brain can heal as gradual dosage reduction occurs. And when I mean gradual, I mean 1/4mg every 2 weeks. Yes, this means about a 2 year taper but this is the safest way.
I'm in the same boat as you, just on a lesser dosage, but everythings relivant. You just will need to spend much more time and patience than a typical withdrawal patient, and do NOT do it by yourself. At your dosage, you need professional supervision indefinitely.
Don't go to those anti-benzo sites (benzoisland.org) like I did looking for answers, because all you will get there are horror stories that will just put more fear in your head. I would suggest reading the Ashton Manual at benzo.co.uk, which is a very informative document by Professor Ashton. She is the queen of benzo withdrawal. Don't go any further than that though.
Good luck to you partner.