No, you should not give up, but you should also be realistic and find a way to work around whatever can't be changed...for example, substitute exercise like swimming, rowing, kayaking, sailing, etc.......We all suffer some of these indigities of the body as we get older, but there is plenty of life left to live..
There is a book called, Catastrophe of living, (or something similar) by John Kabat-Zinn. He uses meditation as a way to help people better manage their pain. That may help with the pain aspect.
I am actually really surprised with the lack of range of motion you have in your knee. I would have expected more. I guess I am rather ignorant about such matters. Would physiotherapy help? It sounds like a mechanical thing.
With regards to the activity, I agree with the doctor, but are there ways you could adapt the activity. For example, if you can't get on the horse by yourself, could you ask for help? Many people with disabilities ride horses, why not you too?
I was just wondering whether there were another expert forum here where you could get advice on your knee(s).
It is often said that drugs only manage symptoms but don't cure the problem. Sometimes meds are necessary though so that we can at least try to start addressing issues. Sometimes we can be too depressed or too anxious to do that alone, at least to begin with.
A tandem bike probably wouldn't work, would it?
Your own doctor may be able to help you problem-solve some of your issues. My GP often encourages me to find ways around my disabilities in order for me to participate.
J
That must have been really difficult for you and your family to have lost your father so young.
I can relate in that I took on a lot of responsibility for looking after my younger brother (until my older sister got jealous and snatched that responsibility). I also felt I had to protect my younger brothers and sister from things in our family environment. I felt I had to grow up young. My mother was depressed and anxious a lot and made threats regarding her life. The most comforting thing for me during my childhood seems to have been snuggling against cold concrete blocks at night when I went to bed (we lived in our garage). My family (parents) made sacrifices for us but I believe they made many poor decisions and actually sacrificed us and our well-being.
I felt the same way asking for help too. I would rather walk 40 km than ask anybody I knew, going in the same direction, for a ride. I think in some respects I was too proud to ask for help and perhaps too arrogant to acknowledge and accept my weaknesses. It is OK to ask for help or what you need. I am getting better at asking for help (or perhaps shifting responsibility). This is how I cope with things.
I think we work so hard to take on roles that aren't ours or don't belong to us that we lose ourselves. I think if we were doing what we were meant to be doing then life wouldn't be such a hardship or chore (despite us not minding driving ourselves to do the work and take on the responsibility). I think ascertaining our purpose and direction are important (important for us and our health and well-being).
Comments such as get a life or get over it are rarely very constructive. People I know speak about change a lot -but you don't change, we can't see you changing, etc. I find the negativity and pessimism drives down my mood further and severely affects my motivation.
I still have a lot to say but have a GP and psychology appointment to attend.
I'm sorry for starting this and not finishing it. I'll talk later.
J
I didn't mean I was a T or anything like that -far from it. I'm an uneducated person working on her parents farm (which I'm not getting paid for). My understanding of psychology (and psychiatry to a degree) and also myself (largely), has only come about through my experiences within the mental health services.
If I weren't so dysfunctional I may have considered a career as a psychologist (or maybe even a psych nurse. Maybe not.)
What I meant to say, or communicate, was that I was going to see my GP and T. I've been seeing my GP weekly for what seems like forever and this is about my third therapy session with this new T. The visits have left me feeling exhausted. Therapy is a joke in just about every sense of the word. I'm unimpressed.
Do you find your psychology degree helps you much with dealing with your issues?
My therapy has been so up and down I've often wondered if it would be better to go through that learning process and analyze myself and my own issues.
I guess it's a bit like doctors who shouldn't treat themselves. Perhaps it's a little too subjective and perhaps intense?
That's appalling that the doctor and his staff would treat you that way.
I also wish it didn't sound so familiar. I had problems with my breathing so went to an A and E clinic. I was sent home with a preventer inhaler (which I was later told would take two weeks to become useful) and a reliever which was useless. I was barely breathing and my family were told they should have called an ambulance. Idiot doctors who shift responsibility and don't assess properly in the first place.
Not all doctors are inept and incompetent though and some even show genuine concern for their patients.
Just for the record, I feel the doctor here is a good one. I feel, humble in a sense too.
I guess physical disabilities can affect us as much as emotional ones. I am beginning to think though, that being 'balanced' may minimize the total disability. I thought I had developed a bias towards some with physical disabilities because their disability is more visible therefore more acceptable. It's been hard having emotional difficulties and being rejected by health professionals, etc. At least with a physical issue people show more empathy and understanding (I guess that doesn't always equate to tolerance though). We're complex creatures.
Doctors, T's, etc often do that. They feel helpless at being unable to help us so they make us the problem. We, as patients, often accept that responsibility (blame) but it is not always our fault. Some people have such great big ego's they struggle to get past their own failures.
When I was sectioned and in the psych ward the psychiatrist kept telling everyone he was world renown. Whatever. He was so busy with his own stuff (that he was so great) he was neglecting his patients and forcing his values onto them. It's hard being in a vulnerable position when professionals choose to abuse their power. At least the doctor here doesn't seem to presume too much about people. It's just such a radically different approach from what I have experienced. Good doctors do exist.
Have you thought about getting a second opinion regarding your knee?
Having a T do that must have been very invalidating and hurtful too. I would be sorely tempted to get a new T.
Medhelp has been a great source of comfort and support. It has also been a great place to vent and I have had excellent advice from the experts here -Dr Gould in particular. I should stop with the endorsements or the poor man will float away because his head is so big.
I've been hurt indirectly by a surgeon. I feel that because he has so many responsibilities and demands placed on him he can't give 100% all of the time. He's a great surgeon, and person, but patients get fobbed off to registrar's because he has so many obligations. This has affected my health care. I refuse to have follow-up care and tests. He should have taken the time to explain. I haven't had a proper appointment with him since before surgery. This is a touchy subject for me and I'm still angry.
I've often felt that T's wished I weren't there or would go away. They get deeply offended by comments like those though.
Sometimes we just need to vent. If it helps, do it. Sometimes writing things down helps us to process them.
What are you thinking or doing about your activity at the moment?
J
Some people confuse having a label as being a label. When we lose ourselves and our identity in the label it can make life difficult and painful.
I heard one story where a patient substituted the disorder for her name. How sad is that?
Not so many names either. Many of us have the same name also, that doesn't mean we're the same though.
Maybe you're using your knowledge to avoid being labeled? I thought I could do this, avoid being labeled, by reading and perhaps masking or ?manipulating symptoms. I wasn't very successful with this though. I have a problem with being too honest (perhaps not always but most of the time). Back then, I think I was way too dysfunctional too.
I can over-analyze T's too. I was curious about one of the expert's behaviors (not Dr Gould's) and I had to make a conscious effort to step back and respect both his privacy and the boundaries he set for his forum. I'm interested in the content and the conversations so that detracts from my need to know (and to give advice).
I probably use to deflect too but now I really value therapy time so I am less inclined to acknowledge their needs. I even feel resentful when they go away because I feel I should ask how their break, etc was. While it may keep them motivated and interested I feel it doesn't help me much. OK, so I'm selfish.
What about using that time to work on your own issues? What are you so afraid of? That people will see that you're capable of being vulnerable too?
You will have answers and they too are important. I hope the delay doesn't affect any possible alternate solution.
I never use to view doctors as people but more as objects, I guess, fulfilling a role. My GP use to point out that he was human and could make mistakes too.
Doctors should be aware of their limitations.
I just had an oncology appointment earlier (which I had intended to cancel but didn't) and while I was bemoaning the system, etc she politely said they have 15 minute allotted appointment slots and also defended registrar's level of competency. I accept that some are excellent but some really need to work on their people skills and the accuracy of the information they are imparting to the patient.
I think many of us take for granted just how vulnerable we actually are. We're resilient but we can also be quite fragile.
Perhaps your doctor needed to clarify the expected outcome and potential risks better with you.
My doctor didn't clarify or check my understanding of the procedure he was going to perform. He said he would put a probe in here, make an incision there and dissect down to that. At no time did he tell me he was going to cut my nipple. I think that was an important detail. I had more surgery so that was kind of irrelevant. Not being given important facts which affect the ability to make an informed decision is frustrating (even if you do do your own researching). I also feel angry when I ask specific questions and they placate my fears only to find they were founded.
You can get sloppy outcomes regardless of whether money is an incentive or not.
I used the word iatrogenic a lot. That really seems to irk some health professionals.
In my experience those asking for money for their services are sometimes the best. There is that whole philosophy of if they aren't good enough then people won't call on their services and then they have no income. People learn to become more people-oriented too. In my experience that ratio of good to bad is still woefully low.
They hurt you and then tell you to live with it. It can then become hard to take responsibility for it because we feel so angry, hurt, rejected, violated, etc.
Being right or wrong doesn't help anyone. It just keeps some of us angry.
It gets a bit scary when they report 7.5 million visitors to the site per month. I just hope they're not all to the forums I post in.
I've had posts deleted and moved. I've also said some pretty harsh things.
I use to be a very private person but my health issues have been very public so I figure who cares anymore, what do I have left to hide (quite a lot actually)?
I don't think too many people would keep abreast of what goes on here in all the forums -there're just too many.
What is worse is when other health support group owners/ leaders yabber amongst themselves about individuals. I don't think that respects either the person or their confidentiality.
At least this is sort of moderated.
I've waffled on again. Take care.
J
I don't think too many people read my posts anyway. They are way too long and boring and even confusing.
So who has hurt you and how?
I would possibly be one of those people. Not that I mean to be bad or set out to not believe. A belief in a God isn't that simple for me. It is one of many things I struggle with or have struggled with.
I went to an Anglican school but I feel a greater affinity to Baptist. That is not through an understanding of religion, more through a perception. I have enjoyed sermons and singing, etc.
I looked at returning to church where I could participate (and perhaps have some needs met) but people wanted that commitment to God. I was pressured and weak and gave in to them. I can't accept religion on those grounds because it goes against things I believe in. It made me feel dirty when that commitment which was sacred to me and something to do when I did believe, was forced when I still had doubts.
My brother is probably a strong Atheist. He has shown us documentaries that say Christianity is based on Egyptian history and folklore. I should have said shown my parents. I haven't seen much of his stuff on religion, war, stone henge, etc. Or the Titanic. That's another myth (conspiracy). That's another example of greedy wealthy people. Many people believe it was the sister ship, the Olympic, that sunk. A ship which had many mishaps so was 'disguised' as the Titanic in an effort to claim insurance. It just wasn't suppose to have gone so fast and so far away from assistance. Neil Armstrong walking on the moon was a load of crock as well. People in positions of power try and exert control all the time. Some do it for the good of everyone, some don't.
We had our kitchen bench top installed a couple of weeks ago by two South African guys. That had a lot to say about their previous country of origin. They say many wish the country would go back to Apartheid as they had more freedom then. They had horrific stories to share. Stories of women being raped and then beaten within inches of their lives with male members forced to watch then tied up by their feet and immersed head first into pots of boiling water. What is wrong with some people?
You would be pleased to know that they are deeply religious. One struggled after having ptsd from the war but between his mother and his church leader he made it back.
Greed affects many of us and plenty of people take our environments and health/ life, etc for granted. I do. And I have a strong appreciation for the outdoors. My own personal struggle has confused a lot of things.
It's the innocent people who're hurt that is part of the tragedy.
I've seen a couple of episodes of, Secret Millionaire (or some similar title). Many people just have no idea. Sometimes it is also us, the drunk or the homeless on the street, etc that need to make changes. It is not always someone elses fault.
Why would you be fearful? Do you not trust in God's plan for us? Do you not believe that everything happens for a reason?
I get your anger or that you're angry. What are you doing to make a positive difference? One person can make a difference.
Are your emotions generated by your sore leg and your inability to experience nature as you have done in the past?
I think it can be too burdensome to worry about everyone. I personally don't see that as benefiting anyone. Least of all you. If anything, it shuts you down.
How are you managing without the anti-depressants and what's happening with the over active thyroid?
J
No offense taken. I only came to medhelp to get information about breast symptoms I was having at the time. 10 months later I am still here. This site has helped me heaps. It has given me more than I could ever have anticipated.
Are cars bad, are manufactured foods and medications bad? Is anything actually good?
I find a lot of the time it is the hypocrites who go to church. My aunt and uncle go and sit in the front pew and they are the worst. It is about show and not substance. I find that a lot of people can be very superficial.
I have found many deeper and more grounded people here.
It can work many different ways though (and it is judgmental judging those who judge).
You're right, it is your right and your decision to choose your own path and direction.
Everybody makes a difference!!
It absolutely should anger you. It is best to use that anger to do something positive about it though. My GP keeps (or kept?) telling me that anger is destructive. I think he was right. Anger can make you extremely bitter and take you further away from recovery or the choices you need to be making. Been there, done that.
There is a saying, mental health either makes you bitter or better.
What do you choose?
You need to tell those people to back off as their comments are not helpful. That's reassuring to know that others have had similar problems fixed.
I believe one should be kind, considerate and respectful regardless of whether one ever meets them again.
I have found that not trusting is more about a person not trusting themself. If you feel confident about yourself and your ability to cope then let people throw things (challenges) at you. I think worry about yourself (how you deal with situations) first and worry about others next. You can't change anyone else.
I wouldn't choose to live my life by those rules. I have spent a lifetime of not trusting others -it's extremely damaging and lonely. Do you drive? Driving requires a degree of trust. Trust that others will stay on their side of the road, etc. Don't tell all you know? It pays to be sensitive with what you do choose to share with some people. Again, if you trust in yourself it shouldn't matter what you disclose. Not that I'm an expert on self-disclosure -far from it. I actually find sharing enriching. Gets rid of some of the clatter (unimportant things) too.
It seems extremely unrealistic. I don't see it happening in my lifetime. Who knows? With everybody killing everybody else it could be a possibility.
Take care
J
I am very sensitive to hurt and don't like to see people (or animals, etc) in distress.
Perhaps if you looked at others in the context of their life experiences, maybe that would then at least make you a little more empathetic (sympathetic even) to why they do the things they do. Often it is because they have been hurt and traumatized themselves. That doesn't necessarily make it right, or give them the right, to hurt others but it makes it more understandable.
I don't love myself, I don't believe others like me, how am I realistically suppose to love and trust in a God? I understand it isn't suppose to be that difficult, but it is for me? Perhaps I am just really ignorant about the issue?
I am fine at looking at things in terms of spirituality. Spirituality encompassing most positive qualities, etc. Just not a God. That doesn't mean I don't give it that name though when I have a dialogue with him (I prefer to view God as a male. Some people are very particular about the gender of their God).
I just view people in terms of perspective and personal experience.
For example, I had issues with the doctor who threatened me with ect. I was able to regain a sense of power and control, eventually. I possibly still hold some anger and resentment but I try and turn it around. Perhaps, he as a doctor, was doing what he thought was in my best interest? Perhaps confronting a male Indian wasn't it my best interests? Although I still had the right to challenge his treatment choices.
In India, someone is given unmodified ect every 90 seconds. Has that affected how he views and treats things/ people? I still don't think very highly of him. I still don't believe someone should force their values or culture onto someone else. Actually, the mhs do that by labeling people.
People have to learn things themselves sometimes.
Like killing endangered species for the trophy and money. I feel that is wrong. I don't get the Japanese and their horrendous whaling either. Or what some do to animals. Tie dogs, etc up and then kill them and eat them as delicacies. It is so different to what I believe and have been brought up with.
I personally wouldn't kill an animal unless there were pretty extreme circumstances.
Dad gave me a knife when I was younger and told me to go and kill a sheep. No way! I am not doing that -ever!! In fact if I had of done that then I probably would have killed people by now. I am lucky in that respect that I am so sensitive.
Hope is everything. Without it we become lost.
Probably nothing. It doesn't mean we can't aspire to be better people today though.
J
I was more into the chainsaw but Dad wouldn't show me how to use that. I taught myself once my parents went into town and I was home alone. I don't recommend doing that though. It could have been very disastrous.
We had an animal last year that broke its hip and so was put in the freezer. I couldn't eat poor little Stumpy. I eat very little red meat these days.
I wouldn't have believed I was capable of homicidal thoughts. ?Several years ago I became quite unwell and would have gladly killed people. I was extremely angry about a lot of things. In that space I don't think anything really matters and I don't think you see the consequences. I don't care to analyze it at the moment. Maybe on Thursday when I go to therapy. There always seems too much to address though.
Should they be locked away? I think that may isolate the problem but it doesn't strictly limit it. In my country people were being released on parole and then committing serious offenses. In an ideal world rehabilitation would be effective or preventative measures and early intervention strategies would be in place (or there would be no offending in the first place). Our country has even gone crazy and banned smacking as part of good parental correction. That doesn't stop child abuse.
I think my bad phase came some time around the Uni Tech murders. It was easy for me to understand how or why this occurred.
I'm not a horrible person. I don't even like killing flies or slaters on firewood.
I think my lack of discretion is due in part to symptoms I have and also to the fact I have been hurt. I have had personal diaries given to doctors, etc. Having a mental health issue seems to make others think I don't deserve privacy or respect. People push and pry and probe some more. Many people don't seem to understand what no actually means. I think hospital can strip you of your dignity and respect. It can take everything and usually does (and more).
I use to be very quiet and shy. Probably now I'm a little too out-spoken. I don't know what verbal diarrhea would indicate? Maybe a lack of self-respect. Perhaps any self-respecting individual wouldn't admit to having so many negative thoughts and feelings?
Possibly. Someone also mentioned some Thich Nhat Hahn stuff which kind of makes one more receptive too. It is possibly a thirst for learning about the world and new perspectives (which can only benefit my mh issues). For so long I didn't realize there was more than one path. Life consists of many. Some with twists and turns.
We can't change the past. We may be able to make amendments, etc in some situations but we can't go back and relive moments. Don't I wish we could change moments in history.
How do we live with guilt and shame? I think part is understanding that we did the best with what we had, and knew, at the time.
J
I hope you feel better soon.
J
I don't want to participate in this conversation at the moment. I am not avoiding, and it is not you or anything you have said or done. I am struggling with some issues at the moment (plus our kitten is dying) and ... my mood is low and I don't want to talk.
I am really, really sorry and I hope this doesn't hurt you. I would say still write but I don't want to commit myself to anything. Others may be willing to engage, I don't know.
Take care.
J