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Cervical dystonia & occipital neuralgia

by we5fullers, Oct 29, 2007 02:56PM
I am a 33 year old women.  I was in a rear end auto accident 12 weeks ago (prior to accident I did not have headaches or neck pain).  Since the accident I have had a non stop headache and back and neck pain!  I have had CT, MRI and x-rays, they showed severe whiplash and bulging discs at c5 c6.  I am under the care of GP and Neurologist and have been diagnosed with Occipital Neurolgia and Cervical Dystonia.  We have tried many treatments (PT, many combos of meds, trigger shots), and have had no relief.  They are now wanting to do Botox injections (insurance approved procedure), but I would like to know if this is a safe procedure?  Side effects?  Effectiveness?  One of the side effects that is listed for Botox is headache, I already have one that I am tring to get rid of!!!  HELP!
Member Comments (3)

by jcverive, Oct 30, 2007 12:56AM
Botox rarely produces headache, and in my opinion the potential benefits outweigh the minor risks.

If Botox doesn't help, please ask your doctor to let you try Lyrica and/or Keppra. I have researched these meds and am very impressed with the reports. I am also taking them to lessen my own occipital neuralgia pain.

by we5fullers, Nov 05, 2007 12:52PM
To: jcverive
Thanks for your comment.  On Wednesday I had my botox injections done and for the first 4 days I kept asking myself "what on earth did you do?", my headache was terrible and the back of my head and neck felt like someone hit me with a sludge hammer!   My Neurologist said due to the amount of damage I had, the injections made the nerve mad, but I would feel the benefits in a few days.  This morning I woke up without a headache, YIPPY, my first in three months!  The back of my neck at c5/c6 still hurts, but at least I'm headache free, I sure hope it lasts.  

I tried Lyrica for four weeks, but the side effects were too much for me and I didn't get enough relief to continue with it.  I have alot of stomach issues, that is why I have had such a hard time getting relief.  

by jcverive, Nov 05, 2007 10:03PM
I'm truly extremely happy that you are experiencing well-deserved relief, and I hope it is both long-lasting and reproducible!  Lyrica gave me stomach problems at first when taken at the same time as the Keppra, but the problems went away when I took the pills at different times of the day.  

Congratulations, and best luck!
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