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Cluster Headache doubt?

Hi people,

I'd like to keep my anonymity, so it would be good if you just call me Rama, and I'm 21.

I am very happy to find such a society activation, i'd never came to the idea checking for such a website even though websites are my profession.

First, i would like to tell you a story of how my head aches started.

I remember my first, and i can clearly say, my worst headache of my life, i was just 6 years old, if there's a factor measuring headaches, then that headache would multiply with the maximum, i remember i ripped my hair off from my head, even cold, very cold water on my head didn't help, i guess it was the child mentality that even made me kick the wall with my head. After that headache, my family told me that for just one second i lost my consciousness, and the next day that i woke up, i can clearly say, i never felt the same like i was before, and it was hard to notice such a thing with 6 years, it's hard for a kid to feel, not to mention accept, a difference in its life.

So far so good, i did not have and big problems with headaches after it, maybe i had some that changed my mood, and forced to do stuff that i didn't like made me have headaches too (like learning/studying areas that werent my interest), but never considered with what i had with 6 years and what im having now. But when i turned 16, the headaches came back, very rough headaches, couldn't describe them in my words, even the neurolog said to me it might be from my sleeping disorders, the fact was true, the headaches were reduced when i started working which stabilized my sleep, and then i even quit smoking which reduced them even more. So with 18 i was a bit freed from the worse, it's not that they stopped or the headaches volume dropped, NO, they just got more rarely, from 16-18 i had them like every 2nd or maybe 3rd day, from 18 and on they dropped to a single event per month.

I wasn't really concerned about them until i read about cluster headaches, i've seen some pictures where they show the symptoms, and yes, the part of the brain that hurts (it changes time to time), thats the part where my eye lid closes a bit, even after the release of the pain. And it feels like the headache is around my eye everywhere, but sometimes the whole part hurts. As i said, i wasn't really concerned until i got another shocking experience, which totally changed my character at the time when i was on the headache, i nearly punched my mother cause she was not listening to me that i need silence, i seriously dont know how i controlled myself. Apart from that, the clock ticking was so annoying, that it felt like a hammer on my head, i even heard the clocks on the other rooms, this was even usual on all of the headaches, until this one, i could hear the electricity on the wall (the cables inside), and to prove it to my self, i turned all the electricity off, and i didnt hear the noise anymore, and i did that twice, just in case to have total evidence (but i really am very aware of reality, i dont think i hallucinated that). One of the results at the end of the pain, i've realised that i had blood under my forehead skin, that totally freaked me out, so i began researching for cures, apart from Ibuprofen that helps time to time, if i take to late, than im f****.

What i've noticed on the internet by researching is that psychoactive substances (also known as psychedelic drugs) have a immense effect on eliminating cluster headaches (remember, i was never sure that i have cluster headaches, but it was the most matchable symptoms that i've found). It takes a lot of courage to share this with you, and i think now you understand why i chose anonymity to write here down. I tryed one of the helping Psychoactive Substances, even though i've read a lot about it before testing it, from what i've learning, it wakes something very spiritually and religious in a person, but might have huge negative effects, but i've notices that it depends on what kind of person you are, and from that nature, i am a very positive person who laughs all the time and thinks about Peace nonstop. Anyway, so one day i've decided to test it (LSD), even though it took me months to get to it (those druggies and their way of dealing, very very sad). I must say that i've enjoyed what i had from it, but im not here to explain an effect of a drug, but to confirm in a way that it helped, it cured the headaches for nearly 6 months, then i've started having the headaches again.

Now here i am. One of my choices is to try another psychoactive substance which is natural, magic mushrooms, and i have people who said that they helped them even more than LSD. But im hesitating. Hesitating because i want professional tips before i choose another solo choice for my self.

Another thing that i would like to add is a conversation with one of my colleagues who says had KINDA the same problem, and we share (shared acutally) a same different problem too, which i  think connects with the headaches.
It's a Nose problem, since i live in the world, i cant remember that i breathed air with my two holes from the noise, i definitely noticed that one of my nose channels is closed inside, i can breathe with it but it's like using 10% of it, and it hurts the other channel which gets overloaded. I do even have serious problems with smells, for example Parfumes give me headaches very fast, from what i've noticed, its Ammoniac thats causing this, but im not sure if it's the right chemical.

And finally, i'm having hair loss at the top of my head, behind, which is very uncommon for a 21year old, i can clearly say, hair loss started with 19.

For the readers, i hope i was clear, please feel free to ask any question.

Have a nice day.

Rama
3 Responses
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449909 tn?1233409897
Your headache doesn't seem to be connected with the shape of your skull, I am sure it would have struck your neurologist if it were too out of the ordinary.

You mention 'pain on the brain'. You may mean pain on the head. (For your info, brain as such is insensitive to pain. Yes, if you can cut it without injuring anything around it, the person concerned will not have any pain, but will suffer the consequences.)

Lidocaine might not have worked in the dentists room for many reasons. It is very very unusual for it not to be effective totally in any person.

Lidocaine (Xyolocaine) is available in two strengths., 2% and 4%. 2% is used for injections as it is more dilute, and of course more purified as it is going to be put 'into' the body (meaning, to be filled into a syringe and given through a hypodermic needle into the body) And 4% is the strength usually used inside the nose or throat, on the surface. The effect wanes off in ten minutes or so. You may use either as nasal drops, in the way described earlier.

ENT specialist means Ear, Nose, Throat specialist.

Hope this helps.

Best rgds,

TA

Helpful - 0
Avatar universal
very detailed understanding Tom, thank you.

for answering some of your doubts, no i never banged my head anywhere so the blood on the forehead appeared just twice in my life from the headaches. I have a big head which sometimes makes me really doubt that it could be an easy deformation from my skull but i do think it is more genetically since i have it from the moment where i was born, even thought the form is normal, just a bit bigger, and yes my vortex is a bit flat, some call it a Balkan Skull.

The side of the pain on the brain changes, i must say from the history, they are kind of equally, though i would suggest that the right side (from my point of view) had a bit of more actions. I also tried to see if the nasal blockade is the same as the head ache one, but no, they differ, not all the time, but they do differ, and the nasal can switch the side for less then 5 minutes so i guess it would be impossible to know which side of the nasal blockade was occurring on the head ache initialization. Regarding the perfumes, what I've noticed is that it is the female perfumes that trigger the headaches, they dont have the same potential of the headache but it clearly the same art.

And the lose of consciousness, i think i misinterpreted it, i did not lose my consciousness from the head bang, I've lost my consciousness at least 20 minutes after when the head ache totally dominated me spiritually.

For adding more information, i have this ability (or disability might be the right term) for cracking my neck since i am 12-13, the crack sounds very scary to people who never saw or heard something like that before, but to me it is a release, i can clearly feel the rush of the blood to my head going faster, i just feel more aware, it is like drinking coffee, but the effect is much faster.

Finally, regarding Lidocaine, i am very curious every time a doctor does something to me, so i always ask what they are doing to me, and i remember being a bit immune on lidocaine at my dentist, which he was surprised why it didnt really have effect on me. On reality, it had, but i had to take 4 injections to have the normal effect, and i can clearly say, i hate the feeling of lidocaine, it totally removes the life sense out of me, a very depressive chemical.

I would really like to repeat the explanation of the Xylocaine and what topical solution means. I'm a bit confused about the word Injection (which fears the hell out of me) and then droping them on nose. Are you talking about the same substance?
And could you please explain me what an ENT specialist is, i think i need to be prepared when asking my doctor about those things.
Regarding you question for the specialist i visited, apart that i did my blood test which was normal and i went to a Neurologist, all he said was that I damaged my sleep which later i FIXED but still never got rid of the pain.

Anyway, thanks for the reply, that was a very detailed answer.

Rama.
Helpful - 0
449909 tn?1233409897
Hi 'Rama'

Your history is very interesting; we will try to organize your story.

21 M has episodic severe headache from age 16, the frequency dropped from about 10 per month to once a month by age 18 (allegedly as the sleep became regular and smoking was stopped). You feel the description of your headache is similar to cluster headaches. During headache you have severe irritability on hearing sounds, and you are able to hear the hum of live electric cables. You noticed blood beneath the skin of forehead after one (Or all?) episode of headache. (You sure you didn't bang your head?)


Apparently, no treatment helped. But LSD relieved the headache, and you were headache-free for a 6 mth period. Now it has come back.

You have a one sided (which side? Same side as headache?) nasal obstruction. Perfumes trigger headache (same type of headache?)

You have a patch of hairloss at the vertex for 2 years.

You remember having had a very severe headache at age 6 for which you banged your head, lost consciousness (for a second), woke up next morning without headahche.

(Have I got everything right?)
=================

Your nasal condition and the headache may have a relation. Visit an ENT specialist. Which all specialists have you visitied? What all investigations have been done already?

Since you are on the verge of trying another psychedelic drug, I would like to suggest you something which might help. Buy this medicine and keep for using during the headache and see if it aborts the same. Xylocaine 2% for Injection or 4% topical solution.(Known also Lidocaine). This is a local anaesthetic. You are going to use it as nasal drops to see if it aborts the headache.

At the onset of headache, lie down and let the head hang over the edge of the cot, so that it is at an angle of about 30 degrees, and turn the head to the side of headache. Insill a few drops (About 1 ml) into that nose (same side of headache).  

Get up after half minute, sniff the medicine in (just that it doesn't drip out of the nose, if you sniff too much it will come backward into the throat where its effect is not required. And the taste is sour). See the effect after a few minutes.

You may repeat the drops after 15 minutes. Some people have allergy to this medicine, so I would suggest you to visit the ENT and let him/her do this for you at the first instant. He can do this precisely by soaking a cotton-tipped applicator with this medicine and placing it inside the nose at some precise locations. Alternatively, you may visit a hospital just to test allergy to this medicine, just instill one or two drops into the nose and see if there is any allergy. If there is no problem, you can safely try it for 'treatment' for headache at home.

Best rgds,

Thomas Antony
Helpful - 0
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