My son is 16 years old and has been suffering from headaches every day for the last 7 weeks. He has not been able to attend school and is now on home instruction through the school. He does have some sinus issues and had surgery about 4 weeks ago to remove a mucocele from the left sphenoid sinus. His headaches persist every day and he now (since his surgery) has daily joint pain, daily weakness, occasional dizziness, and occasional mental fogginess. The headaches only subside by using Vicodin taking no more than 2-3 per day. I don't believe sinus explains all of the symptoms. He has had 2 MRIs, 2 CT Scans, spinal tap, numerous blood tests, test for West Nile, Lyme, meningitus, mono, Valley Fever, and a few more I am forgetting. All come back normal, except for a large amount of polypoid soft tissues in both sphenoid sinuses which show up on the MRI and CT Scan. These polyps are new since the surgery since they didn't show up on the MRI before surgery.
Before this, he was in excellent physical condition and very active. I have taken him to 2 Neurologists, an Allergist, an ENT, a primary care physician, and a pediatrician. No answers yet. I tried calling 2 infectious disease doctors and they tell me that we need to know what the disease is or he should have an unexplained fever before they will see him. We don't know what is wrong and he does not have a fever.
He is taking Pamelor 20 mg for headaches, Vicodin for pain, Veramyst spray for allergies, Zyrtec for allergies. Previously, he was on a round of Augmentin before surgery, Levaquin after surgery, and tried various other pain relievers such as Darvocet, Fioricet, an Imitrex without success.
People tell me to take him to a University or a specialty clinic. I have made some calls, but they want to know what specific doctor to see. I don't know what kind of doctor he needs.
Does anyone have any ideas what this could be? Any ideas on what type of test to try next? Recommendations for a type of specialty doctor I should take him to? Any other recommendations?
I am all out of ideas and REALLY need some help for him. He wants his life back.