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Infant Migraine Variants
My Son has been diagnosed with a migraine variant Benign Paroxysmal Torticollis. Can anyone please give me any information as to what I can do to prevent his attacks. He is only 7 months old and his Neurologist has no experience with treating this and said that so far her research has provided no recommended treatment. I know that she has consulted with the headache clinic in New York, but I thought maybe if I could find another family that has delt with this they might be able to at least point me in a direction. My son is only 7 1/2 months old and having attacks every 3 weeks or so.

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For discussion with other families, try this website, if you haven't already.

http://www.benignparoxysmaltorticollis.com/

Best rgds,

Thomas Antony
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Avatar_universal
Hi,

Thanks for writing in.
Benign Paroxyssmal Torticollis of infancy is a benign disorder which usually gets better with age and is completely gone by the age of 5 years. Most of the epiodes occur within first 12 months of life.
The following link has information about parents whose children were diagnosed with BPTI, it may be helpful to you.
http://www.makingcontact.org/index.php?ci=183

Thanks!
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