Hi,
Thanks for writing in.
Benign Paroxyssmal Torticollis of infancy is a benign disorder which usually gets better with age and is completely gone by the age of 5 years. Most of the epiodes occur within first 12 months of life.
The following link has information about parents whose children were diagnosed with BPTI, it may be helpful to you.
http://www.makingcontact.org/index.php?ci=183
Thanks!
For discussion with other families, try this website, if you haven't already.
http://www.benignparoxysmaltorticollis.com/
Best rgds,
Thomas Antony