Migraine associated vertigo, can anyone tell me if this sounds like it.

[patty818]

Hi
I"m new here, I've been having some problems since july this year. I will tell you about 5 yrs ago I had BPPV and was treated with eply manuever, then headahces and neck pain, had trigger point injections and they worked. I'm also hypothryoid and in my 3 yrs postmenopause I guess,909 no period in 3 yrs, I'm 53 yrs old. I have anxiety disorder and health anxiety. This past July i was doing and exercise that required going to the ground and coming up quickly and about 2 hours after doing it had an awful vertigo attack. I went to my GP doc and he sent me back for eply, it helped but then the headaches and neck pain returned so went back to neuorologist and had trigger point injections again, except with these it messed up my thyroid med and took it out of my body and things went crazy again just like 5 yrs ago, but at that time didn't realise it was the injections that sent me into awful anxiety, well this time around my endocrinologist thinks the steriod injections killed the meds and made things awful, that was all 10 weeks ago and hoping the steriod are leaving the body now, still having anxiety to some degree most days. Well the dizziness has been with me for 6 months now so I went to and ENT and he thinks its vestibular migraine or MAV. My question is, does this type of magraine cause daily dizziness and off balance feeling? I feel like i'm rocking or swaying no matter wether i'm sitting, walking, laying down, standing, it happens all the time and 90% of the day everyday. It makes my anxiety come daily which makes it worse. I worry all day, the only time I'm not worrying is when i'm asleep and I don't do that so well. I have xanax to take for the bad days. I'm now worried about what i'm reading about MAV that it never goes away. Can someone please tell me if my symptoms sound like MAV. I first have the day before the dizziness and headache get bad this vision thing I call it looking like gray vision like a very light fog almost white, then the dizziness and off balance start, the off balance feels like I'm walking on marshmellows and the dizziness is a rocking sensation thru out my body, sometime i feel like i'm fallling forward when sitting, or backwards when I sit back, then this slight headache not a total headache, anxiety, hot flashes, chills, muscle aches in my legs at time, can't watch tv if the things in the picture are moving fast, can't watch traffic move, stores cause dizziness, lightheaded at times, shaking hands could be panic, fear and worry all the time. Could anyone tell me if the headache, dizzy, nausea, vision thing be MAV. If anyone can help I would appreciate it.
Thank you so much

[AKC_75]

Hi and welcome to the Migraines & Headaches Community.

Dizziness is a common side effect of migraines. I deal with it frequently. You are going to think I'm nuts but I swear it works...Meclizine. 5mg three times a day as needed. Works wonders for me.

[Thyroid_Thyroid_Thyroid]

"I feel like i'm rocking or swaying no matter wether i'm sitting, walking, laying down, standing, it happens all the time and 90% of the day everyday."

MAL DE DEBARQUEMENT

Mal de debarquement is a rare neurological disorder that occurs after a sustained motion event, most commonly a cruise. It is characterized by its main symptom: a long term feeling of constant rocking or swaying after the triggering event. MDD is not caused by structural ear problems or diet, but instead is a neurological defect in the pathways of the brain. The part in error sends signals that the body is rocking, while the ear's balance system and eyes contradict that. This inconsistency leads to mental fatigue, confusion, and brain fog as the brain wars within itself over which input to believe.

THE SIGNS OF MAL DE DEBARQUEMENT

You have a rocking, swaying, or bobbing in waves feeling. This feeling of motion is very specific and different from dizziness, vertigo, or spinning.

Your rocking sensation began after some triggering event than involved usually repetitive motion, like a cruise or turbulent plane ride.

Your rocking feeling has been happening long term, months to years to decades. It is normal to feel rocking after disembarking from a cruise for several days. It is not normal to have the swaying feeling for longer than a month.

MOST DIAGNOSTIC SYMPTOM -->: The sensation of rocking strongly decreases while driving a car, riding in a car, or are otherwise in passive motion. On the other hand, trying to stand still while closing your eyes makes the swaying feeling more noticeable.

Fatigue and brain fog, especially on badly rocking days, which modestly to severely detracts from concentration, memory, and focus.

The feeling of rocking and brain fog is strongly aggravated by stress and anxiety.

You become more intolerant to flashing lights and strobe effects, even while driving. These include flashing caused by the sun passing between tree trunks while driving, flickering lights bulbs, and certain computer monitors.

Other balance ear conditions have been ruled out.

Woman are above and beyond the most common patients with this disorder, but some men have been reported. Most experience onset in middle age, 40s and 50s and 60s including before menopause.

TREATMENT OF MAL DE DEBARQUEMENT

It's still under research as the disorder is quite rare and under studied. Most people are just forced to live with it. Some people have reported that it abates over time, but many patients have had it for decades.

Some patients have found doctors willing to prescribe stimulant other types of medication offlabel, such as Ritalin.

Doctors Bernard Cohen and Mingja Dai are at the head of the Mal de Debarquement field. Consider searching their publications of contacting them regarding some of the experimental treatments they are developing.