Dr. Noopur: Forgot to ever update you. Thank you so much for your reply because it pointed me in the right direction!!
I went to the Cleveland Clinic (which is near University Hospitals) and was accepted into an occipital nerve study there in 2009, Dr. Nagy Mekhail was my physician.
I have had an occipital stimulator since June 2009 and have had very good results, with daily pain levels going from an average of 8 on a scale of 1-10 to a 3, which is a life changing difference. I do have to run mine 24/7 without interruption because the pain comes back quickly if i do not.
Hi,
Thanks for writing in.
You have not mentioned the names of the two specialists that you know. These are two doctors who have been doing remarkable work with Occipital Nerve Stimulators for chronic headaches.
Dr. Jasper is Medical Director,
Advanced Pain Medicine Physicians,
Tacoma, WA.
Dr. Salim Hayek is with the Division of
Pain Medicine, Department of
Anesthesiology, University Hospitals
of Cleveland, Cleveland, OH; and a
member of the Outcomes Research
Consortium, Cleveland, OH.
http://www.painphysicianjournal.com/2008/march/2008;11;187-200.pdf
Hope this helps!