Male, 18
When I was 14 years old I started having episodes(which did not include headaches) where I would: Lose the center plane of my vision, feel completely disoriented, confused, and completely depersonalized; and would have pins and needles in my extremities and mouth area follow by numbness. When I have these episodes they last until I go to sleep. I used to get these episodes about once every 2 months, and they have been happening less and less frequently(haven't had a full blown attack in about a year). However, ever since my first episodes I have been in a permant state of migraine aura which consists of: Seeing falling circles, afterburn on images when I move my eyes, "fireflies" when I look at bright surfaces like white walls and the sky, visual snow which looks like tv static, and worst of all Brain Fog. I have been in the ever worsening brain fog state for 4 years now and I am looking for any solutions. The brain fog feels like severe mental exhaustion, like the kind you get from pulling all nighters, only it's like that all the time starting from the moment I wake up. The brain fog has gotten so bad that I am completely spaced out all the time and not able to study. I have trouble keeping up in conversations and learning new things, or performing anything that takes any amount of thinking. I was very bright before all of this.
I have been in and out of Neurology clinics for the past 4 years and every one seems to agree that it is Migraine Aura but they all say that it shouldn't last this long. So far no one has been able to provide me with a solution.
I have had MRI, EEG, EKG, and all sorts of other tests all of which have come back clean. I have been prescribed: Gabapentin, Maxalt, Celexa, Adderall, and Verapil, none of which helped and I am currently not on any medications.
The doctors that I have been going to see don't seem to care at all about all this. They just keep prescribing new random meds without any rationale just hoping that they are going to land on the right one. They also seem to want to blame it on anxiety but I'm anxious BECAUSE of my condition. I'm not saying that anxiety is helping me any but I am saying that it isn't the root cause.
Please I'm in desperate need of help as this keeps getting worse and worse. It has made my life very difficult and taken all the joy out of living.