analgesics and migraines

I have a rare bone disease which causes severe daily pain.  It is incurable, but unfortunately not life threatening.  I have been on oxycontin 40mg three x's dly, oxycontin short acting 5 mg 9 x's dly, and soma three times dly for the past 5-6 yrs.  I'm not sure if my body had simply grown tolerant being on the same dose dly for 5-6 yrs or if it was because of the increased demands my body had to go through this past year, but I made the difficult decision to increase my oxycontin to 50mg three times dly.  I have also been on fioricet and imitrex PRN for my many headaches and migraines.  I suspect that my headaches have increased in frequency and intensity to the point that I have them daily because of all the meds I take.  I take 2 fioricet [4 maybe once every two wks] a day or 1 or 2 imitrex to control the headaches.  I have tried to substitute excedrine for migraines to avoid taking either the fioricet or imitrex.  Some days I can get by with taking 2 - 4 excedrine.  If I'm right and these headaches are being caused by the analgesics the only solution I see here is to somehow wean totally off the oxycontin.  The bone and muscle pain is unbearable and I cannot walk without the oxycontin but the headaches incapacitate me too.  I don't want to simply exist.  I want to participate in life.  I also have been receiving zometa IV for the past 3 yrs with minimal pain relief and this year the main researcher [National Institute of Health] of my disease, fibrous dysplasia (FD), said that they no longer believe zometa to be effective treatment for FD, which was used with the goal of helping to decrease the bone pain.  So we with FD are back to nothing but analgesics.  Any suggestions?  

[122 Tactical Fighter Group]

As another chronic pain patient about all that i can tell you is that by the time that I quit the analgesics the pain really wasnt much worse either on or off the pills.........the pills can play tricks on you and they do.........I have had moderate success with lots of hot water - capsiacan, a pepper juice that Walgreens carries (works with exothermic heat - the "ben gay" effect) - and muscle stretching exercises...............good luck to you in your efforts

[Romanfaith]

Thanks, I've set up a medication schedule for myself to gradually wean myself off of the oxycontins.  I did try a topical capsiacan cream and had a bad reaction- my skin turned red, rash, and felt like fire.  I've spend thousands of dollars on "natural" pain relief and bone strengthening vitamins and minerals with no success and paid $5,000 for a TENS and microcurrent machine, which also did very little to minimize the bone and muscle pain.  It finally occurred to me that I cannot correct a genetic mutation through vitamins, mineral supplements, or by eating a special diet. But I hate having to rely on narcotic analgesics and the stigma that goes with it. Since my bones break easily and are incapable of regenerating fully mature new hardened bone, thanks to fibrous dysplasia, I stick with water exercises.  I'm not giving up hope.