confused and distressed

[oremor212008]

I had grande mal seizures (not sure if i spelled that right) until i was six years old.  Well actually the seizures stopped when I was five but my doctor (who was a substance abuser at the time) left me on the medication for another year.  when he was terminated the new doc took me off the meds but a few weeks later these severe migraine headaches started.   When I was a child they would make me vomit, I couldnt be aropund bright lights or noise.... the usual.  During my teenage years they progressed to another level... during the migraines I would be paralyzed on one side of the body or the other.... never the same side twice.  And now as an adult they've gone even further.... during the event my body totally shuts down.... I can barely breathe, loose all sight, complete body paralysis, and twice when the ambulance has arrived at the scene my body temp has been in the mid sixties range.  I have seen several neurologists but even with the information provided by the hospital tests they haven't a clue.... noone knows whats going on and two of them actually told me to ignore it and hope for the best:{
  At the beginning of the year I had 3 grande mal seizures that were timed by nurse practitioner I was living with at 7 min  each, and each resulted in temporary memory loss for the three days prior two.... i even forgot that I had been promoted!  again neurologists have no idea whats goin on and wish me the best..... does anybody out there have any ideas or suggestion? cuz I cant keep just living with pain of this level happening every week