daily migraines

[brainpain]

i have daily migraines. my migraines started in 04 when i was diganosed with pituitary tumor.i had a crainotomy in 06 and tumor is gone. i have been diganosed with ice-pick migraines. i have noticed the pain has spread behind my left eye.
.this pain from the time i wake up till i go to bed. i am getting very moody (anger) and so restless. my left eye waters and i have to keep it covered in any brite lite. i have had my eyes checked and i have 20/20 vision.i have started having some memory problems. all my pain is on the left side top of ear to center top of heasd into left eye. i do have grandmal seizures and take dialintin.i have had a mri this month for follow up pituitary and was normal.i dont take any meds for migraines,my doc tells me they cause rebound headaches. i have nausea and vomit sometimes. i feel hopeless .
shouldent my doc give me something to try to help with this pain? could the migraines cause my memory loss?

[jessa1981]

Hi!! i'm not sure what dr. said no meds 4 migraines( i'm asssuming nothing over the counter works??)  anyways i find that most dr.s are *****!!  they don't seem to hear us when we explain our pain and how it affects our everyday life.  I get angry too..i don't have any logic behind the way i feel and everyone seems to think i'm nuts. I pray you get relief, and the help you deserve.  Just a thought, when my headache really gets going i sit in my hottub and try sooo hard to clear my mind..it helps 5% of the time!!haha!!  good luck....jessa

[brainpain]

thanks for your reply. it's my family doctor that wont help. i did go to a headache specalist and got diganosed with ice-pick migraines. i had to stop going to her because she is 50 miles away and i was going to my neuro surgen and 3 other docs i couldent afford or keep up . i have tryed everything over the counter,nothing helps. it has taken over my life.my house is like a cave, it's dark and quiet. oh i wish i had a hottub!!  

[marileew]

You should try to get a new family doctor. Also, you could try going to the ER.

Or, a walk-in clinic.

All of these options will be less expensive than going to a specialist if you can't afford to see a specialist on a regular basis.

You absolutely need to find a doctor that will help you with pain management. You should not be in a situation where you feel hopeless.

As for ice-pick headaches... do you know what triggers them other than light? Do you find that some movements trigger them... such as bending down or turning your head sharply? I would suggest avoiding such movements, this might help with the pain

The watery eye and restlessness... this sounds like a cluster headache to me? Cluster headaches are also called "suicide-headaches" because they have often driven people to suicide. They are worse than child-birth pains... which is a type of pain that most women would describe as the worst pain they have ever felt. If you do have cluster headaches, your doctor is actually putting you at risk for suicide. And, if anything were to happen to you ever... I would consider your doctors lack of care manslaughter. Cluster headaches are well documented, in the medical community, as suicide headaches. This is a well-known fact. Ignoring someone who has cluster headaches is like ignoring someone with a loaded gun in their hand. (p.s. cluster headaches, despite their name, CAN be chronic daily headaches... it is rare, but it is possible)

Anyway... enough of my little rant there...

Back to helping you...

I am sure you already keep a headache diary for triggers. But just in case you don't, you should. I am sure you already avoid alcohol and chocolate... which are two triggers for cluster headaches... which it sounds like you have... but if you don't, you might want to try avoiding those... unless you've already tried for a month or so and found it had no effect. Also if you smoke, you could try quitting to see if that helps.

You could also go to the ER and ask for oxygen and an injection of sumatriptan. Don't get your hands on theses things yourself please please please... you could kill yourself with oxygen by mistake... and even the type of under the skin injection that you'd be giving yourself with sumatriptan, it's not a good idea to do it if you aren't trained already and you don't first try it around medical care, you can do it wrong and end up not getting the medicine, or you can give yourself gross blisters or welts and stuff. So, just go to the ER and ask for these things. Tell them you have a 10/10 headaches and a watery eye and you are restless (cluster headache symptoms, hense why I'm suggesting a cluster headache treatment and not just morphine or something).

Now... if I'm totally wrong about the cluster headache thing, and you really do have classic migraines... then, well... they'll probably give you a triptan and morphine at the hospital. Which will probably work if you have a classic migraine.

Also, tell them at the hospital about your doctor who is denying you care and ask them to refer you to a new family doctor if they can.

Or.. try and find your own. I feel terrible for you that your doctor is not providing you with care.  

Oh, and make sure you tell the hospital and any new family doctor about your medical history too. It is possible that your current doctor isn't being a big jerk and the reason that they are not providing pain treatment has something to do with your removed tumor and crainotomy. i doubt it. but, it's possible. so, they should know about it. anyway, even if that is the case... there must be something you can take for the pain... and a good doctor will eventually figure that out with you even if they have to do a TON of research to figure it out.

[brainpain]

thanks for your respond.my neurosurgen told me my hypotlamus was damanged from the pressure of my tumor. my tumor had grew into my optic nerve. i have headaches every day. my triggers are heat ,bright light,loud noise,choclate.my left eye was almost swelled together and bloodshot and my doc tells me to go home and sleep.my doc has my records from my headache speclist 2 neuros and neurosurgen.i cant afford to go to these docs there all 50 miles away.she sent me to a neuro and he diagnosed me as to having ice-pick migraines .he gave me zomig nasil spray ,it helped 50%. i took the report to her and she ignores it. the neuro has moved away and the only neuro ,headache specialist is 50 miles away. i have had my migraine to hurt so bad i just wanted to die. she put me on depression meds. i just am at a loss with her. all the docs here are all in the same hospital. we have a clinic but there not excepting new patients. i will take charge and look around .thanks