migraines with sleeping seizures

[sleepgirl123]

I am 36 & have had migraines since I was 21. I recently was diagnosed with sleep apnea, about a year ago. Almost 6 months ago, I started having seizures only when I have migraines & only when I sleep. The doctors thought I had epilepsy @ first & then thought it was due to the migraines. After seeing one that my husband recorded, they are not sure what the cause is. They seem to be localized to one side of my body, grand mal in type, with eye fluttering & eyes roll back into my head at the end.Sometimes i do vomit & have incont & once I have chewed my tongue.

[CSNAflower]

oh yes there is!! 31 yr old female here, healthy as anything before all of this and one morning, i woke up feeling strange, deja vu and my scalp was sensitive. i took a shower to fight off a migraine-i have had too many to count over the years but always managed to deal with them on my own mostly-and when i went in the shower, i blinked......i woke up 15 minutes later, out of the shower, dry, in ANOTHER ROOM, with a chunk bitten out of my tongue. i was confused, disoriented and had no idea where i was, i could barely talk, walk, i was just lost. in la la land. my hubby came home, took me straight to the ER and as i sat and tried to fill out my info to be seen for my tongue, i went down again. i dont remember anything other than waking up on the table with white lights in my eyes, IVs in my arm and i freaked out. my head hurt, neck hurt, eyes hurt, EVERYTHING hurt. i was disoiented again, couldnt talk, had a shuffling gate, had to have help to do anything and everything for over 2 weeks after. i found out i had 2 grand mals back to back and have had migraines ever since. these headaches put me on the floor puking my guts out. i cant walk, talk, nothing. ive had multiple partial seizures since then and i lose my speech and motor skills for 2-3 days after. im lost, confused, forgetting everything and very very slow. everything is in slow motion. if you knew me, you would know that is the polar opposite of who i normally am. CT scans all normal, chest and head xrays all normal, no bleeding that has been found, no lumps or tumors seen, my EEG was normal(supposedly) but i remember sitting in the chair twitching from the last seizure when i took the EEG. something is WRONG with my brain. no one knows anything yet. ive had another seizure while i slept (i think i did but i was asleep so i dont know for sure) i peed myself, i was locked tight when i woke up and i was a walking zombie for 3 days after like a hangover from hell and a migraine so bad i had to get pain pills for the first time in my life. i feel for you. i hope we can find answers. i went from a healthy mom of 3 married to a soldier to a ticking time bomb in the matter of minutes and its been 6 weeks now. i see a neurologist tomorrow morning and im going to BEG for answers. Im taking Topamax right now, 25 mg and it is helping but i still feel like crap compared to the beginning of september. i was put on Dilantin in the ER and i had such a bad reaction to it, i was almost admitted to wait out the side effect. so no more Dilantin for me! tomorrow i start 50 mg of Topamax and as long as i take it at night on a full tummy, its fine. no side effects other than my sense of taste is on and off throughout the day. i can handle that if it helps me from having any more tonic clonic seizures. :)

[sleepgirl123]

I am seeing a neurologist. I take 2 different migraine preventetives & 2 different seizure meds 2 times a day. They are not working. My doctor is setting me up for video monitoring at a leading university research hospital to try & find answers. I have had EEG, ct scan & MRI with no real answers. Is there anyone else out there like me?

[chantelle912]

Dear Sleepgirl123

I suggest you go and see a neurologist a.s.a.p.  and go for an MRI.  To have any kind of seizure is not normal!  Insist on an MRI.  

I also had severe migraines and insisted on an MRI.  The MRI showed that I have a large pituitary tumor.  

Please go and see a neurologist a.s.a.p.  

Ask your neurologist to prescribe EPLEPTIN 300MG and NEUREXAL 100MG
This medication is for epilepsy and severe migraines.  I am on both of these medications for 3 months now and they are great!!  My headaches are not as severe and often as before.  

Please let me know when you went to the neurologist.  

Kind greetings Chantelle