pediatric cdh plus migraine for 2 years

[kgw43]

Our previously healthy, happy, athletic, now 10 year-old son experienced a rapid onset of a transformed migraine when he was 8 (not due to med. overuse).  After two years of trying every traditional and alternative headache protocol available (altering diet, lifestyle, acupuncture, psychotherapy, preventitve and abortive meds, inpatient DHE protocols...), and both inpatient and out-patient treatment with some of the best headache neurologists in the country (Dr. Joel Saper at MHNI, Dr. Stewart Tepper at NCH...), he is debilitated by a moderate CDH with superimposed migraines lasting a month or more. I am interested in your thoughts on (1) the true prognosis of such a long-standing, intractable headache (i.e., is there any empirical validity to the non-commital suggestions that some neurologists make that he may grow out of it?), and (2) is it wise to continue trials of preventives in spite of no meds ever affecting his headache?  

It has been disheartening to watch his health care providers gradually retreat into hopelessness, which, while understandable as a human response to chronic pain, is unacceptable as a physician's response.  Thank you so much for your perspective.

[noops01]

Hi,
All this while have you been able to identify a trigger for his migraine attack? Please try to find a trigger for his headaches mostly it is a food product like MSG as already mentioned, sodium nitrate used to preserve hot dogs and bacon, chocolates, cheese, beans.Good luck!

[Judy_77]

You mentioned altered diet. How so? Did you check out MSG, processed free glutamic acid. Also aspertane or (nutrasweet). If not check out www.truthinlabeling.org as they have lots of really good information.

Difficulty in diagnosing MSG-sensitivity is compounded by the industry practice of illegally advertising "No MSG," "No MSG Added," or "No Added MSG" on labels when products do contain MSG.

Good luck....and keep searching...the answer is out there...