WE NEED HELP! my grandson that just recently turned 3 has been having these unexplained episodes since he was 9 months old .There always about the same they start with a little weakness then some drooling then he cant move his left arm but continues to try and play he has full eye contact the whole time it then progresis to very clumsy with it almost looks like a full body cramp this goes on a few minutes untill he cant move at all . We have been to 2 university hospitals several neuros a cardioligists a pediatric ortho he actually had a episode while we were in the neuros office at his appoitment the dr picked him up and put the eeg on his head during the episode and said the brain activity was normal and that it wasnt seizures he has had 7 more eegs that came back normal .he has had 2 mris 2 cts 1 ct of his neck to make sure its not subluxation he has had a ton of blood work i even check his sugar during these episodes when this first started the first neuro put him on anti seizure meds just in case which never worked the only thing that does work to stop these episodes is the diazpam it stops and theres been times hes went three months without anything.hes a very normal 3 year old otherwise does everything hes supposed to never any delays in development.we dont no where elese to go any suggestions would be apreciated
You have really covered the bases at two Universities and getting him to all the various specialists. Maybe someone can diagnose it as he gets older or maybe it might just go away. Do any of the specialists have anything at all to tell you? Maybe someone on here will have a clue for you. Sorry that I can't help you.
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