tethered spinal cord headache

[laurel269]

the patient is 14 yrs. old and growing rapidly in height. he has a tethered spinal cord and for the past 8 weeks has had a constant headache in varying degrees can the headache be related to the tethered cord? is surgery to correct this recommended?  his doctors are baffled as they have run many tests including scans.

[selmaS]

  Same with me I was 48 when finally given a dx, I pulled all older MRI reports and found it was on an older MRI report, I was never told about the tethered cord....

My PFD surgery has helped tremendously and I am so happy I had that surgery, I am holding off on the TC release as I also have EDS and have more issues with scar tissue, meds, and feel it best to hold off as long as possible.

[LeagueCityREALTOR]

My NS warned me of the cerebral issues and that was one factor in deciding to do my surgery immediately, before my situation worsened.
Of course, I am so thankful I was diagnosed when I was, but am still puzzled by how many medical doctors, including neurologists, missed the diagnosis for 57 plus years, and my symptoms are pretty obvious, now that I know what the symptoms are.

[selmaS]

  I must agree with u, from all I have read on tethered cord, it can actually pull the cerebral tonsils down causing a situation like chiari, and the symptoms to boot....in fact my NS was going to do the release but did the PFD instead, and if the cord was too tight I would have had issues right away, lucky for me it is stretched a bit and I am ok, still have HA's and bowel and bladder issues, but putting of surgery as long as I can.

[LeagueCityREALTOR]

Following my surgery for tethered cord release, my headaches decreased significantly, almost disappearing. With the cord heavy and constantly pulling prior to my surgery, I do think the tethered cord was a big factor in my headaches.

[DrNoopurMD]

Hi,

Tethered spinal cord usually does not cause headaches. What all tests has he undergone?
Was a magnetic resonance imaging (MRI) AND CT scan of head done?
Please refer to the link below.
http://www.boston-neurosurg.org/publications/faq/tethered_cord_MP.shtml
This hospital is doing some pioneering work in the filed of tethered spinal cord in children.