Migraineurs Support User Group
TMJ MRI- I got results
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A place for migraineurs to discuss anything and everything related to migraines. Topic suggestions: Think of this as a support group for migraineurs. Reach out to group members when ever you need support. Give your support to fellow migraineurs. You, as a migraineur yourself, probably have a wealth of knowledge to share with others. The knowledge that you have could vastly improve the quality of life for another group member. Share share share! Discuss your current acute and preventative treatment plans. Ask others about their current acute and preventative treatment plans. Discuss past acute and preventative treatment plans as well... we can always learn something from what didn't work! Discuss your own personal tips and tricks for lessening the severity of acute migraine attacks. Post about your upcoming GP or Neurologist appointments. Ask other group members questions about what to expect and suggestions on how to prepare. Update fellow group members on your progress... both on set backs (so that we can provide support, suggestions and hope!) and on successes (so that we can congratulate you and so that you can provide other group members with hope!).

Founded by marileew on September 27, 2009
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TMJ MRI- I got results

I got my MRI results today for my TMJ.  The x-ray prior to that demonstrated arthritis in both jaw joints.  The MRI looked at the discs, which are both dislocated anteriorly in the more closed mouth view & one of them is still out of place anteriorly in the open mouth view, where the other goes into place in the open mouth view.  The doctor has asked staff to put in for approval on what he wants to do- arthroscopic lavage of the joints & they put some fluid in and also botox injections at trigger points to try to relax the muscles.  The TMJ problems is one of my migraine triggers.
5 Comments
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875426_tn?1325532016
correction- arthocentesis is what he's proposing I think.
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764912_tn?1322715443
Hey it sounds like a logical plan.  When are you suppose to have it.?  
Keep us posted.  
Thanks
Tracy
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875426_tn?1325532016
Well, they were planning to put in to the insurance and said that day, on June 23rd, to expect a wait of two weeks on approval and after that, if I go ahead, I expect they would schedule the arthrocentesis.  I'm concerned right now about the doctor's experience, as I learned today he is just two years out of residency.  I'm hopeful it will be alright and think I don't want him trying to manipulate the discs back into position during the procedure, in case it made something worse than now.
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875426_tn?1325532016
Well, that doctor decided he wasn't experienced enough.  I saw another dr., a very experienced one last week.  He called me today.
Hi!

Dr. McCoy called and he said the disc is torn on the left side of my jaw and that is the one with no reduction.  There is a little arthritis on both sides, but not major.  He said he had major arthritis on one side himself and a therefore a replacement.  He says his colleague has had a torn disc for 30 years and lives with it without a lot of problem.

He says he doesn't know if surgery would help me or not.  He acted unsure about it, particularly because it is the right side that I have the most pain in and he doesn't know why that is.  If it were a tumor or something progressive it would be different.  I responded I thought my function situation was getting worse.  

But he thinks a lavage of the joint might have a 60 percent chance of success.  However, it is not a long term fix (which I had been told already) so he doesn't know if it should be done or not.  It washes out some kind of chemical made by the body due to inflammation.  

I said, so there's not a whole lot of hope and he said, I didn't say that.  He'd like me think it over and to come sit down and talk at an appointment.

I asked him about botox, which the previous dr. had wanted to try.  He said it targets the nerves and a person has to look at the muscles and everything and target the injections, not just do it.   He said they had done a few and it helped some with major muscle spasms, but didn't really think it would help in my case.  He said they don't do the injections anymore because they hadn't had that much success with it.
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875426_tn?1325532016
It's been a while since this happened, but here's an update:

When I requested that the experienced surgeon do surgery and residents watch, I was told residents would be involved, so I opted not to go back & I got my records.  It looked like the surgeon was not contemplating just a lavage of my joints, because his note said arthroscopic surgery (which I had read was more invasive than arthrocentesis).
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