Need your prayers.

I am coming to all of you again because last time all of your support and prayers worked. My sister had her 19 week u/s today and called me to tell me it's definatly a boy and that everything is fine. After she saw the dr. she called me back hysterical and said that her baby has a choroid plexus cyst on his brain...1-2% of babies will have this between 16 and 24 weeks. Out of those only 1 in every 300 will be diagnosed with Trisomy 18. I feel better now that I have done the research...but that still doesn't take away all of the fear. I am asking for all of your prayers again in the hopes that this cyst will be gone by the next u/s.

[EricaB28]

I am so sorry to hear that!! Of course, your sister and the baby will be in my prayers..I really hope the cyst is gone at the next u/s..when is that scheduled for? Do they have any idea how long it might take for it to go away?  I am so sorry this is happening...please let me know if there's anything else I can do. You will all be in my prayers
xo Erica

[bam1014]

Steph, that's so sad.  I'm sorry to hear it.  Your sister and her little bean will be in my prayers.

[smr08]

I'm so sorry that your sister is going through this. I will add your sister and her son to my prayers. Please keep me updated on this.

                      (((hugs))) Lori

[ArmyPrincess819]

I'm so sorry to hear that Steph I will keep in my thoughts and close to my heart. I wish for her and her baby nothing but the best. I'm here if you need to vent. Good luck.
Big hugs,
AP

[mikaleen]

I'm so sorry, your sister and her baby and you will all be in my thoughts and prayers...did they see anything else that would make them think trisomy 18?  When does she go for another u/s?  After 24 weeks?  I hope the next u/s brings better news.

[steph9803]

Thank you all. I can't think of a better group of people that I would want on my side in a time like this. From what I have read if it does go away it will be gone by 28 weeks. She said that they will do another one at 24 or 28 weeks. I can't take any more loss. Four years ago this summer is when we lost everything to the hurricane. Three years ago this June the man that practically raised me passed away in my arms... As some of you know it will be two years in June when I gave my all trying to save a 4 week old baby that I loved like my own. Then I lost my baby in August of last year. My sisters baby is due in June and as you can see I have had something terrible happen every summer for the past 4 years...sorry this is going on for so long. I just hope and pray that this is all just one big scare! Here is what I found about Trisomy 18.

What Is Trisomy 18?
Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births.  The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy.  

Unlike Down syndrome, which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. 50% of babies who are carried to term will be stillborn, with baby boys having higher stillbirth rate than baby girls.

At birth, intensive care admissions in Neonatal units are most common for infants with Trisomy 18. Again, baby boys will experience higher mortality rates in this neonatal period than baby girls, although those with higher birth weights do better across all categories.

Some children will be able to be discharged from the hospital with home nursing support for their families. And although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community.  A small number of adults (usually girls) with Trisomy 18 have and are living into their twenties and thirties, although with significant developmental delays that do not allow them to live independantly without assisted caregiving.

[Dani711]

Steph, I am so sorry you and your sister are going through this.  My baby last time was diagnosed with both Trisomys which is why it had NO chance.  BUT they were able to look at my u/s and KNOW there was no chance right away.  As hard as it must be for her I think there must be a great chance of a healthy baby if they think it may go away.  Whatever my baby had, we never had the option of waiting.  I know what she is going through, and it is my fear this time as well, but let her know I will add her to my prayers!

[steph9803]

Dani- I have told my sister about you before and what happened with your pregnancy. Then this morning while we were talking before she had seen the dr. I told her that you were having your u/s tomorrow and how I can't wait for you to get the all clear. I know you had told me what happened, but I didn't remember what had caused it. You're right though, there is a chance that it will dissolve by the 28th week. That is why I'm here asking for all of you to keep her and Kayden in your prayers.

[GMB08]

steph...geese...how much more bad news can u take...im sorry for the agony you and your family must be going through...............your in my thoughts..............

[mapes10]

I have already said a prayer for that sweet baby, and I just pray that God will strengthen your family now to stand by them.  I know you have had such a rough time, but I truly hope this can be your summer miracle that erases some of the past pain.  Take care, and keep us posted.

[hazleyez]

Hey steph I ma so sry this is happening to your family as the other poster said how much more can you take. geeze.. Im praying that you all will be getting better news and that sweet baby boy is better by the next U/S.. big hugz to you and the family.

[steph9803]

Thanks GMB, mapes, and hazleyez. I have to have faith that this is going to be a better year. Her next appt. is March 4th (me and DH's anniversary)...I am going with her to every appt. from now on. I was supposed to go with her that morning, but my daughter had strept throat. I was afraid of passing it on to her. I felt terribly guilty so I promised her I would be with her at every appt. from now on. Her husband can't get off work very often and I will never let her go alone again. Her next u/s will be in 8 weeks...then we will know if the cyst is still there. If it is then he is sending her to a specialist. I have faith that it will be gone though! You all will be the first to know when we find out. Thanks again for all of the prayers and hugs! It helps more than you know.

[ArmyPrincess819]

Best wishes to her and her baby......