Hi I'm in Australia and had terrible ms symptons June 2007.
Bilateral face pain lasting 6 weeks (dull aching, burning feeling)
Tingling in both feet for about 3 months 24/7
Under both feet have numbish feel but are not numb to touch
Face is the same like I have had a shot of novocaine
I twitched all over for couple weeks
Mild dizziness which worsened with head movement
Tingling in both hands slightly
June 2007 had mri of brain and whole spine without contrast, all clear on 1 1.5 telsa machine
December 2007 had repeat mri on 1.5 machine all clear
Jan 2008 had mri done with contrast all clear
Jan 2008 had negative L.P.
My first neuro told me its not ms due to the clear mri and she doesn't know whats wrong with me
Today I am dizzy 24/7 mildly
Even if I hold my head still I'm still dizzy
To move eyes makes me dizzy it just never goes away.
My feet are still numbish underneath, my feet and ankles burn, my back burns when I'm moving about.
My ears feels clogged and itch a lot, I sometimes feel like there is water in them
I feel like my ears need to pop, like when your on a plane
If I get into a hot car my feet tingle.
I am due to go for repeat mri with a 3 telsa machine, and am too worried as I'm afraid it will show ms or not show anything.
I know these are all ms symptons and I know ms symptons worsen in the heat.
I'm female and almost 37 years old
What are the chances of this still being ms with 2 clear mri's so far and a neg L.P.
I also recall having face pain and burning feet and dizzy feelings before years before having the 2007 mri's.
If it was ms wouldn't it have showed up on mri by now?????????
I understand your feelings of being in limbo, but thus far nothing in your post suggests MS.
Your testing is negative for MS and your symptoms are not specific for MS (many other conditions may cause these same symptoms, but the MS community is so vocal and intelligent, that when you search your symptoms online, I am sure MS appears in the results).
Most neurologic symptoms worsen in heat -- not just MS. Older people with stroke is a great example.
I recommend woking closely with your neurologist and an otorhinolaryngologist (ENT) and even a neuro-otologist (an ENT who specializes in the nerves).
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