I am 45. I've had RRMS for 20 yrs. Ihave had SPMS for 5 yrs(?). I am EDSS 8 or more. I'm on LDN, baclofen, (alertec) midafinil, 4 aminopyridine. I'm off betaseron now for about a year because I can't get funding because apparently I've progressed too far. Comments? Neuro and MSclinic just say "too bad..***** to be you". I see a feeding tube in my near future. My kids are 7 & 9. Any treatments to try and slow this thing down? I'd like a bit more time.