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184527 tn?1240973404

1st Appointment at Stanford

Hello all,
It has been awhile since my last post. Some great news, I am 5 months pregnant with a little boy and all the tests came back with great results. No SMA or other genetic problems. At 43, that makes me happy. Some may recall that my neuro dropped me last year as a paitient because I would not go on any medication. I had my reasons as I explained to him but he said if it (pregnancy) did not happen by now it never would. HA! I do have a 16 year old with SMA. Anyways, I had my fist appointment with my new Dr at Stanford and it went really well, he said he is willing to work with me regarding alternatives to meds and wants to see me back every 4 months instead of 6 like the other fart. He mentioned some exciting news on the treatments and said they have more breakthroughs that will go public after January. Here is a link  with more info on lisinopril: :D

http://med.stanford.edu/neurology/resources/081709.html
7 Responses
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Avatar universal
Congratulations on your healthy pregnancy!  And, also, on finding a good doctor you can work with.  :)

Stephanie
Helpful - 0
184527 tn?1240973404
Thank You...
Helpful - 0
848718 tn?1257138801
Congrats on your pregnancy, and on finding a good doc willing to work with you!!

I hope the remainder of your pregnancy and delivery are easy on you!!

Best,

SM
Helpful - 0
572651 tn?1530999357
The nice thing about this going into clinical trials is the drug is already FDA approved - it doesn't have to go through those tests before the phase studies can begin.  I hope it starts soon and that the results are promising.  

We really need an affordable treatment.

The only thing that bothered me about the press release though is it was obviously written by someone who is not well versed in MS.  I flinch everytime I read one of these and there is always a reference to MS causing death.  This one also lists blindness as a problem.  I would much rather see these release talk about the symptoms that 95% of us suffer with - those are bad enough.  Ok, enough of my stand on the soap box.

be well,
Lulu
Helpful - 0
738075 tn?1330575844
Golly, that's so close to where I live!  I have a wonderful neuro, right now, but he's in his mid 70s and I'll probably head toward Stanford when he retires.

Mine's one of those old-school guys who wasn't afraid to diagnose someone over 50, and based his diagnosis on a careful, complete history and neurologic physical.  I have a bunch of old lesions on my brain MRI, and, even though most of my symptoms and neurologic findings indicate spinal problems, the C-Spine and T-Spine MRIs are clean.

Good luck, and cheers,
Guitar_grrrl
Helpful - 0
562511 tn?1285904160
Thanks for sharing.  Wouldn't it be wonderful if this inexpensive drug with few side effects works?  And even reverses damage?  

I think I want to be a lab rat on this one.  Where do I sign up?
Helpful - 0
667078 tn?1316000935
Good news.

Alex
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