24/7 Paresthesias?

[LisaJF]

Has anyone ever had 24/7 (felt around the clock) paresthesias for over a month in both of your legs/feet?  

Has it gone away eventually?

I've had paresthesias before...but did not last over 3 days....

I hope this is not a permanent thing.

Lisa

[Guitar_grrrl]

Yep, paresthesias and dysesthesias every single day!  Some days are better than others.  I don't take anything for them.  They're just part of my landscape.  I feel them, acknowledge them, and just deal with them.  My friends get a good laugh when I whip off a shoe and sock to check if I have bugs crawling on my feet (especially my right foot). Nothin' there!

Sorry you're dealing with these, too.  Big hugs to you, Lisa!

[Dagun]

Hi Lisa, I´m sorry you have this, I sure hope it will go away.

I have it constant, it was my first symptom, it began in my toes on one side and then in 10 months it had gone to the other foot also, left hand, right hand and then left side of face. Finally it stop´t progressing and I don´t feel it in my face so much, but it is always in my feet and hands but sometimes worse here and there, like my whole leg few days ago. It´s really just my new "normal". Hope it will not be your normal!

When I was looking at my new MRI and reading about the areas of the brain, I could see all the little spots (lesions) on the top of my head, and it seems to fit for symptoms in hands and feet! But I could also be so wrong, just me guessing ;o)

My best to you,
Dagun  

[aspen2]

Not sure if it's the same thing, but I have had fasciculations since September 30.  When they are mild, I can't see them, but it feels like tingling or my skin crawling.  WHen they are yelling, lol, you can see and feel them if you touch the skin.  If it's something like this, gabapentin helps calm it down (sadly, I can't take gabapentin).  For me it's really only a problem at night because it interferes with sleep.

[LisaJF]

Thanks you all for your comments!  I appreciate the time you have taken to respond! You are all wonderful!

xxoo

I agree everyone is different -- however, it helps to know if someone is experiencing the same thing as you.

Yes things could be far worse.  I tried stopping medications to see if they were the root cause of the buzzing/tingling/vibrating sensation in legs...but to no avail.  It's still here.

I suppose a month is not bad....rather not have it though.  I do hope it will go away.  It is quite annoying (not painful just annoying)

Thank you all again!

My doctor told me to call him if it still remains...but forget if he gave me a time line. I saw him on Jan 29th ....

I asked him for prednisone...thinking maybe something was inflamed.  I got a "no". LOL

xxoo again

[doublevision1]

24/7 weirdness in hands and feet. Mild, waxing and waning in intensity in feet and right hand. Constant, unremitting, unrelenting discomfort and pain in my left hand. It feels simultaneously numb, burning, itching, crawling, rough like sandpaper, prickling, tight like it's swollen (but it's not), squeezing like MS hug of the hand, hypersensitive, tender like it's sunburned. Some of the sensations feel like they're in the skin, others feel deep within my hand. These weird sensations cause me to be awake at night, to be clumsy and drop things, to curse and on occasion want to scream (but I don't). Nominally helped by gabapentin and nortriptyline. This I've had 24/7 since March 2008. Haven't had one day of feeling normal since then.

Everyone is different. Some will have complete remission, some have partial remission, for some it never remits but stabilizes, and others like me will have it worsen with subsequent relapses. No way to predict who gets which outcome. Like ghost39 commented, if it doesn't remit, you do get used it and it becomes the new normal. One thing that helps when it's getting the best of me is to remind myself that things could be far worse.

[ghost39]

I have permanent tingling in both my legs every day.
You get used to it. Its sort of normal for me now :(

[supermum_ms]

Oh Lisa that would be driving you a bit mental! HUGS

The only thing that i've had 24/7 for months and months, was the time i had a couple of itchy splotches on my face. One of those splotches (partial upper eye lid and a little bit on the side of my nose) turned into a numb splotch after the itching eventually stopped, and occasionally and i do mean once in a blue moon, there is a weird sensation in that splotch for a few days.

Otherwise when i get any other parasthesia happening they have more or less come and go, for a block of time but nothing has lasted as long or as relentless as the itch and at most its been weeks not months. Oh I did have my heel burning and a bee sting thing in my heel, that was relentless for at least 6 months but i'd damaged my heel and had that oddly placed callus lump happening at the same time. That burning and bee sting improved though as the callus was reducing, so more than likely that was the cause and effect.

Have you had any solutions offered by your doctors?

Hugs............JJ

[essdipity]

Lisa, I'm sorry to read this--it must be nasty. I've never had anything 24/7, at least not at the same intensity.

For years now I've had tingling and a severe burning feeling in my legs, but much more on the right. Sometimes (rarely) this extends from my hip to my toes; mostly it's my foot and well up my shin. But for whatever reason, mornings to late afternoons or early evenings are fine, and then it sets in, every single day. I think others have symptoms only at certain times a day too, but why this is I have no idea.

ess