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279234 tn?1363105249

A Week in the Hospital..and All I Got was Some Lousy Stockings LOL

Let me first say that I missed all you guys (My forum family). You guys are such wonderful people and you have helped me so much. As many of you know I'm not DX with anything but I know something isn't right. I watched my body, along with friends and family, change and not for the good. But my problem has been finding a good doctor that will work with this "puzzle" and figure things out. I've been told by doctors that "I have nothing" to, "we don't know what's going on" ,and my favorite"you must be suffering from stress". Well my body decided to give more "puzzle pieces" as evidence something is wrong. Is it all related? I don't know. That's the million dollar question.

A couple of weeks ago I started to feel dizzy which was new to me. Only when I stood up. I felt like I had one too many . The room would spin. I was fine sitting. Walking down the hallway was like going into a fun house. The hallway would turn on its side. This new symptom was also followed by another new one. When I would use the bathroom (urinate or bm) or even cough I would have pain/pressure in my lower abdomen and back. My lower abdomen began to swell which is funny because I had a hysterectomy years ago and it felt similar to uterine bloating but there's no uterus to swell. Then I began having trouble having bm (starting bowel movements) which was also strange since I had diarrhea. Finally, I started to run a low grade fever and I decided to make an appointment with my GP but she couldn't get me in until Thursday.

When I woke up Wednesday morning to get my kids of to school I couldn't walk. My left leg was in so much pain. This pain was different than anything I had felt before. It wasn't muscle spasms this time. I had a burning/ throbbing sensation from my hip all the way to my knee. Normally when I had trouble with my left leg it would hit my thigh but affect my ankle and toes. This time it involved the whole leg. I called my husband at work after I got the kids off to school and I told him there was no way that I could last until tomorrow for my appointment. The pain was too much for me to bare. He came home and we went to the ER.

My WBC was a little high. The docs ran a CT of my abdomen. I told them of all the neurological problems I have been having and how I don't have a DX. I had a team of doctors for every problem that I complained about. It was weird. I wasn't use to all the different doctors interested on what's going on. Then I noticed something weird with my left leg that never happened before. It began to swell and change to a dark purple. The docs ordered an ultra-sound of the legs.

To make a extremely long story shorter, I have unexplained blood clots in the left leg. I have several large DVTs in femoral artery. During the CT scan they also noticed that my bladder was enlarged and may be retaining urine and they notice a growth on one of my lungs that could be caused from an autoimmune disease or they said it could be nothing but I need to see a lung specialist. They scanned my bladder before and after I went to the bathroom. They said that the amount of urine I was holding was good but when I went to the bathroom I was left with the same % amount if not more, so I wasn't voiding good enough. I noticed when they gave me my Baclofen that it calmed down the bladder so I didn't have to go every hour. They did an MRI of the brain and an EEG. They said the MRI showed demyelinating process and that I needed to be evaluated by a neuro (DUH..that's what I've been trying to do).

They put me on Coumadin. I'm on the highest mg of Coumadin (10mg) because for some reason it wasn't showing up in my blood. They wanted my blood to be between a 2-3. For several days of being on the highest mg, it didn't even register so they made a deal with me. If I could get close to a 2, they would send me home. Yesterday I was a 1.9 and I got to leave (Thank God). I'm a little bruised from the shots in the belly and I'm in pain but hey I'm still here. I'm having problems with all the other neurological stuff acting up as well (left arm, right leg..etc). I'm not sure if it's because my body is in such stress or because I've been playing with a low grade fever off and on for days. Oh Well!

My friends and family came and saw me in the hospital since I had to spend Mother's Day and my 12 marriage anniversary in the hospital. I got flowers and 2 stuffed animal monkeys (which I love). My friend said I should have gotten a baby out of the deal since I was in the hospital for so long and I told her..no thanks..I have enough children. But I did get these SEXY thigh high stockings for blood clots LOL. My husband likes them. He's weird!! But I love him!

Is there a connection or is there mutiple things going wrong with me? Your thoughts would be appreciated. Was my body on the recall list and nobody told me (hehe)?
10 Responses
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476834 tn?1228398709
Hey just wondering

Could I borrow your socks???????  I hear there really comfy, and also VERY EXPENSIVE,,,, like 50 bucks a piece????

think about it ok????? lololol

Seriously,,

I"m glad your home..I hope your feeling better and know that your in my thoughts and Prayers,,

Ray:)
Helpful - 0
495035 tn?1221753092
welcome home hun :) and i hope you got all of us some nice socks it's only fair you know :)
CJ
Helpful - 0
147426 tn?1317265632
UHHH, the internist said your were too young or too old  to have a demyelinating process.  This - either way - is ridiculous.  MS has been confirmed as young as 18 months and onset well into the 70's.  What is he/she thinking?

Quix
Helpful - 0
279234 tn?1363105249
Zilla- I'll buy some socks next time LOL. I'm sure that these stockings are going to cost a lot.

Quix- They didn't mention anything about a clot causing the vertigo. I'm still having the vertigo but it's not as bad as it was. They did not do an MRA. All they mention about the brain MRI was that it was abnormal but he said it had to do with a demyelinating process. The internist said that he believed that I was too young to have a demyelinating process occurring.
Helpful - 0
147426 tn?1317265632
Multiple DVT's!!!!  Unnecessary!  You could have gotten sympathy from us with way less.

Siddy basically said what I was thinking.  Bigtime work up for those things that make the blood go clot.  Further work up of SS and things that go pop in the blood vessels.

Do they think you threw a clot starting the newest round of vertigo?  Did they do an MRA?

I am so sorry you have to go through all of this.   It is not fun.  Shoot!

Love ya, hon, take care.

Quix
Helpful - 0
220917 tn?1309784481
Man!  Next time just go BUY some socks!

What an ordeal!  I tried posting earler today, but it was lost in cyberspace somewhere...

I sure hope you get past this quickly, Slightly.  Boy!  It sounds horrendous.  

Please feel better nad tell us what's next.

Hugs,

Zilla*  (Hope they had some SX therapy for you while you were in the hospital!!)
Helpful - 0
279234 tn?1363105249
andie-  Thanks..I'm feeling better each day...it's just hard to get around right now. I'm just glad to be home and sleeping in my own bed.

Kathy- wouldn't be nice to have a Dr. House to figure out what's going on with you and in 60 minutes but I guess that just happens on TV lol. Thanks for the belated anniversary and Mother's day wishes even though I felt guilty about ruining it. I'm just glad I have my family and friends to help me through this and of course you guys :)

Marcie- thanks for the comments. Sorry to hear you had the dreaded DVTs. They are NOT fun. I know my doctors want to check me every week right now because of the high dosage of Coumadin. They don't want me to get too thin all of a sudden. I know the doctors sent away blood test to see if I have factor V-Leiden and other blood disorders that would cause this. Since my mother did the same thing back in the late 90's, they are assuming it's probably genetic or an underlining autoimmune disorder. My mother has suffered with multiple episodes of DVTs but her doctors believed at the time it was due to her Sjogrens Syndrome. My father has had several strokes so I guess I have a lot of genetic factors. They don't believe it was acquired because even though I've babied my left leg due to whatever is going on with me I'm still staying active. Just not as active as I used to be.
Helpful - 0
Avatar universal
I sympathize with you because I have been there and  done that - same thing in my left leg, the pain, everything. Hospitalized for one week - shots of Lovenox in belly for a week and then it took over 9 months on Coumadin to clear it.   Your blood should be checked every 2 weeks and your medication will be adjusted if necessary.

We had a discussion on this board about the V-Leiden factor and DVT's  and MS somewhere.   You will have to be careful in the future because statistics are against you -  if you have already had a clot -  for future clots. Probably after the clot(s) have cleared you will be put on Plavix or low dose aspirin.  

There are two types of blood clots, apparently. The genetic and the acquired.   Did they test you for factor V-Leiden? (genetic) or was this acquired, do you think?

Hope everything goes well and that the blood clots are absorbed back into the bloodstream with treatment.

By the way, my DVT happened 2 years before my dx of MS.

Good luck
Marcie
Helpful - 0
405614 tn?1329144114
I'm so glad you went to the ER!  DVT can be a verry very bad thing, as you know.  OMG, what an awful day, and an bunch more puzzle pieces.  Now we just need someone to put them all together.

I'm sorry for all the pain and discomfort and the weirdness of all the docs checking you out.  Shots in the belly?  Ouch!.  


So, when do you see the neuro?  I wish they had "big picture" doctors, don't you?  I hope you get some answers soon.  Hey, you can't be recalled if they didn't send you a notice in the mail.

Happy belated Mother's Day and Anniversary.  Thank heavens for friends and family to make things a little easier to bear.  I'm one '"forum family" member thats hoping you feel better soon, and that you gets some gosh darn answers.  Sounds like you got some big, clear puzzle pieces along with some real puzzlers.  

I'm glad you're home safe and sound with your husband; he sounds like a peach!

Take care,

Kathy
Helpful - 0
293157 tn?1285873439
wow, you sure have gone through alot at that hospital, It's a good thing you went when you did.  Hope you feel better soon and get some answers..

take care
andie
Helpful - 0
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