A different view on MS

[sbr497]

Hi,

I have often seen sources offering cure for MS. I have been a skeptic mostly due to the nature of explanation etc.
I came across this site today. I am still a skeptic but one thing that I have myself wondered these years was one of the basis of argument used here.

As most of MS suffers have noticed that there are some days when we feel quite normal.
In the initial few years, I have felt this many times. In the last 5 years or so, I have felt like this
probably 15-20 times. I have also wondered that if MS is due to destruction of Myelin and brain
tissues, how come some days we feel completely normal. After all, everything could not have healed overnight.
This is exactly the argument used here. Its not the myelin and brain tissue damage which is causing MS symptoms but it is something else that causes MS symptoms + myelin + brain tissue damage.
Of course, I still do not agree the theory that is being put forth by the author (looks too simple to be true frankly) but the basis of argument makes complete sense to me. Maybe his theory is wrong but his basis is probably right.

Have a look: http://www.ms-cure.com/indexCont.html

Regards,

[HVAC]

There are two things in MS Myelin damage which is permanent and inflammation  which can come and go. Myelin damage can take place with no symptoms at all this is why DMDs are important.

A book I recommend for understanging MS is Curing MS by Howard L. Weiner. He takes you through the research so far into MS. He has been a leading researcher for years. My MS Specialist had me read it when I was first diagnosed.

I went to the website . I think he is a snake oils salesman.

Alex

[sbr497]

As my disclaimer in the initial post, I am not convinced with what he says ...
But some of the arguments are worth analyzing ...
The myelin damage is not permanent but takes times to rebuilt ... cannot happen in a short time ...
Most of the motor problems people with MS have are due to inability of the signals from brain to reach the right points in the body ...
So when we have some good days, what could be the explanation for that.
Is it due to lack of inflammation?
Is it due to remyelination?

Maybe it probably does not matter as long as research to find its cure is in right direction ...

[HVAC]

Good days are when inflammation is down. Myelin except in the very beginning of MS can't repair itself or be rebuilt. Scientists are working there hearts out now to repair Myelin in mice with encephalitis. So far there is no repair of Myelin in MS. Hopefully a break through is around the corner.

The book I suggested helped me understand all this.

I am glad you are interested in understanding MS.

Alex

[essdipity]

Misaligned vertebrae do not cause MS, and therefore no form of chiropractic can help. I agree, snakeoil.

People with RRMS do not generally have individual 'good days' here and there. We have periods of remission, even partial remission, and of course that is better than none, before another attack of symptoms.

However, I have many days when I've gotten a really good night's sleep, days when paresthesias are less, days when for whatever reason I'm in a particularly good mood, days when I've just had physical therapy and my muscles are stretched out, days when I don't feel very tired. And so on. I don't think these are caused by miraculously healing myelin, and my MRIs bear this out.

My guess is that a subtle combination of factors come together on both good days and bad days, though I can't explain it beyond this. This, of course, is entirely apart from the relapses and remissions characteristic of MS for most people.

ess

[sbr497]

Yes, I am interested in understanding this.
One of the things I am trying to do is also to push some kind of open research in this area (cant reveal too much at this point)
This is driven by few important things:
1) lot of researchers can use technology & tools to do their work
2) currently these are almost negligible and what ever there is, is proprietary can cannot be used by everyone freely
3) one of the thing core researchers can do their job easily is to have models
through which they can build bigger models (say like models to mimic our immune
system).
4) this will help them to see cause and effect of different solutions and also
to understand the root cause of the issue easily.

Let us keep our fingers crossed. Either it will probably become the next big thing in medical research or is going to fizzle out. But I will never regret of not trying out, say 10 years from now...