All

[vera from Hong Kong]

In this month, my husband and I are busy in studying all the past forum to see and learn from all of you. Especially Quix, you are just like a human web dictionary. You can answer all the questions and give us a sense of warm and feeling secure since our misery is being cleared.

Thank you all of you. And at this moment, the documents from our side are not yet received by the MS. The lady called Maria is very nice and I will keep you all informed once I have any further news.

God bless all of you here and thank you very much for all your cares to me and Kenneth.

[vera from Hong Kong]

Dear Quix,

Thank for your smartest advice. And I talk to my doctor this morning. She suggests me not to take a long flight. So we may go to Japan or Korea instead.

Kenneth is very happy to hear that he could have a chance to travel, especially the snowy environment.

My email is using savemyboy, then the symbol @, then at yahoo d com d hk. (I hope it work), you know the d is only a symbol.

For msn, I am using vera1997, then the symbol @, then hotmail, d com,

[Quixotic1]

The computer program that manages the forum here will not let you write your email address.  You have to trick it by writng each word.

You can reach my email by using my nickname neuroquix @ gmail period com.  Instead of "period" use the  .

Also leave out the spaces that I put in.

I hope this makes sense.  Would you tell us your email again, but write out the words?

Quix

[vera from Hong Kong]

Dear All,

It is really impressed of your love to Kenneth as well as me. And Kenneth really want to make friends to all your kids. But he said since he is not good in English, may be it would need a long time to finish a letter. And his letter would be very simple. He insist that he want to type and write by himself. So please tell me how can I get your emails?

On the other hand, thanked again for Quix professional advice. Since I think that my doctor dare not to give me any advise as they need to protect themselves. But your advice would enhance me to plan for his trip in Nov or Dec. We will check and see whether he can take long flight since it may take at least 13 hours to US from Hong Kong. Otherwise, the only choice for his snowy trip is Japan or Korea.

I have my msn chat also. ***@****. if you are free, you may add me, my nick is v v. But please tell me your name in the message, otherwise, I may not recognize and ignore you. Thanks!

Take care and have a great day, all nicest people here.

[Quixotic1]

Hi, again.  I hope this message finds your family well!  I think of you often.  With the docotr's approval, I think the enjoyment of some time in the snow would be wonderful.  Part of living with MS is learning to find and enjoy the little pleasures.

I found an article on "Pediatric MS" that I wanted to share with you.  The link to the artlicle is:

http://www.mscare.org/cmsc/images/pdf/PediatricMultipleSclerosis.pdf

Best regards, Quix and Friends

[pennst8r]

I wish I could play XBox - I stink at it (not good at all).

You would love snow - we get alot of snow in the winter here in Pennsylvania. My dog loves to play in it!

Do you like to watch soccer - or do they call it futball where you live? I am the biggest soccer fan. I used to be a coach and a referee!

Take care and try to have some FUN!

Penn

[grannyhotwheels]

Hey Kenneth, how's it going today?  I hope your feeling better.  Dude, I love the x-box.  I have all of the sports games.  What ones do you like to play?  Do you have the one where you can play against someone else on-line?  It would be kool if we could hook up and play some games together.  Well, I got to go so stay kool and I'll talk at you later.

Zach

[vera from Hong Kong]

Firstly, thank you all for your prayers. And my mom finally translated all your message to me. She is my secretary and she is typing what I say.

I am touched and I never feel lonely. I know that there are many friends who give my courage and stand by me anytime.

I live in Hong Kong and my room's window is facing to the sea...a very small sea since I can see building in the opposite side. I have a dog called Dic Dic. He is only five months old. My dad bought it to me and I love to play with him. Besides, I like to play the XBOX 360. I score much higher than my mom. Haha. It is the only one thing she defeated.

I like drawing, especially cartoons and playing cray. But I hate doing homework. It is really tired. I love to visit you all but my mom says we need to seek for the advice of the doctors. I never see snow and I hope to play with snow.

Thanked again and I really happy that I met you all in my life. Take care all.
Have a great day.

[grannyhotwheels]

Hi Kenneth,  My name is Zach.  My mom is a member of this group just like yours is.  She sure does spend a lot of time on the computer with these people.  Does your mom do that too?  My mom is sick a lot so she can't do things like she used to.  That just happens sometimes.

My Mom told me that you where having some problems and having to go to the doctor a lot.  She thought it would be nice if I wrote to you.  I'm 13 and I like to play football, baseball, and basketball.  My favorite is baseball.  I pitch and play anywhere else they need me.  My team went to the Cal Ripken Little League World Series this summer.  We did'nt do very good there but we won first in the state of Arkansas.  It was really cool.  Do you play baseball?  If you do maybe I could give you some pointers.

Okay dude, i'm gonna take off now but i'll write again later.  

see ya,  Zach

[Momzilla]

Hola! Aloha! hi! Kenneth
I just turned 11 a few months ago I'm also in 6th grade and used to be in the band i am Riley's big brother (he sent a letter before)(he has three other big brothers) Scott goes to the Wayne State University, Beau is in a band, Hunter is in two bands and on a freshman football team at Lutheran High Northwest.

So, how many friends ya got, 50,000, ahh... 1,000,000,000, you can add me to the list. if ya ever go to Michigan phone me up
                  
                                                                                        God's blessings, Hayden Lukas

[Momzilla]

Hi, Kenneth!

I'm Riley's mom.  Most people around here call me Momzilla!  It's a funny name my oldest son, Scott, made up for me.  He put together two words, "mom" and "Godzilla" the movie monster!  Maybe he thinks I'm a tough mom.  I try my best to be nice!  With five boys, I have to be a little tough.  Scott comes up with funny nicknames for everyone in our family, so I think it's just one of his funny names.

We live in a one of the 50 United States called Michigan.  It's shaped like a left mitten, so whenever someone asks where we live, we hold up our left hand, and point to just between the thumb and fingers.  That's where Detroit is, the city where a lot of cars are made.  Motor City.  Most people that live here are auto workers.

Our "mitten" is surrounded by beautiful huge lakes called the Great Lakes.  They're beautiful and freshwater, but you have to wait until they heat up before you can swim in them!  At least I do!  Brrrrr!  They're great for boating and fishing!  Besides the Great Lakes, Michigan is peppered with many. many small lakes inside the state!

I've lived here all my life and now live here with my husband and children.  It would be a lovely place for you to come visit someday!  I do hope you feel better and better, Kenneth.

I know your parents are doing all they can to take good care of you.  My boys and I are keeping you in our prayers.  Let us know how you are, and keep in touch!  Feel well!

Momzilla*  

[monotreme]

Hi Kenneth, my name is Craig and I live in Delaware, USA.  It is a very small state and has factories in the north part and beaches on the south part.  I have six children, three boys and three girls.  My sons like to build with K'nex, which are long flexible plastic tubes that you use to build things.  Do you like to build things?  I know your mom is taking  good care of you.  I wish you all the best!
Craig

[Nanners123]

Where were you thinking of taking him? I think cold white snow would be a blast for him if his doctor thinks he is up to it. My kids love playing in the snow. Sometimes they are out in the snow for a much longer time than they are in the summer heat. Although we do not always have snow in November or December. Sometimes we don't get snow until January or Feb. I live in Michigan and one never knows what the weather will be. We can have a 70 degree in Mid December and the next day it will be 32. Strange but lovely place to live.

I wish you all well.

Nancy

[T-lynn]

You have a remarkable young man.I thhink the trip would be awesome for him,but its always best to ask his DR.

[vera from Hong Kong]

Dear All,

Sorry for my late reply. Since it is the Mid-autumn Festival in Hong Kong. The kids will carry their lantern and going around at night. Kenneth do the same, of course, he is not walking too far away from home.

Thank you all of your kindness. But it really take time for me to translate your warm words to him. He is very happy and touched. His tears coming down and he thanked you all heartily. And he promises to try his best to fight for his future.

One more question, is it safe to take Kenneth a trip? Since he loves to see snow and he never see it before. I may plan to take him to snowy place in Nov or Dec. Please kindly advice.

Lastly, big hugs to all.

Vera

[Super_sally888]

Hi Kenneth,

My name is Sally and I live in Philippines, though I am an Australian.  I have been following your Mum's posts on how you're going and hoping that things will get better for you.  

I used to live in Hong Kong, for about 2 years, just during the handover period of 1997.  But then I moved to Philippines and I love it here and have so many friends.  I get to go to Hong Kong pretty often because my company has an office there.  Usually I get to go for meetings, and company special events and banquets.  I really like these 12 course Chinese banquets that you have in Hong Kong, though it is far too much to eat.  What is your favorite foods to eat.

Anyway, just wanted to let you know that you have a lot of people here looking out for you, praying, and wishing you and your family well.

Sally

[Ramraji]

Hello Kenneth! My name is Rick I'm 47 and I live in New York City. It is a big city like Hong Kong. I have a daughter named Ashley who is 17. You and your mom and dad sound like really wonderful people. I know it is a little scary to feeling the way you feel and not know why. Don't worry, so many people are praying for you and trying to get your parents the information that can help you. I know you will be feeling better in no time! Who knows maybe one day you will come to the US and see the "Big Apple" New York City.
Wishing you all the best, Rick

[doni54]

Hi, I hope you feel better today.  I am so sorry you have been so tired and haven't been feeling well. My name is Doni, and I live in Lincoln, Alabama, it is really hot here.  I have a son, Cory, who is 21.  He used to have problems with breathing because he had asthma and I worried about him all the time.  I know your mother and father worry about you and love you very much.

I am glad that your mother found this forum so that she could get information that could help you get to feeling better.  It is also nice when so many people want to be your friend, and I can see from all these posts that you have bunches of new friends and so does your mother and father.

Please feel better and take good care of yourself.  You and your mother and father have all our support and we are here for you when you need us.

God Bless

Doni

[pneeb419]

Hi Kenneth!  My name is Patty.  I live in Ohio near Lake Erie.  I saw that someone else who wrote to you also lives near Lake Erie, but I also see that people from all over have written to you.  How's it feel to have friends from all over the world praying that you feel better real soon?  Pretty cool, huh?

I am 47.  When I was 9, I thought that if someone was 47, they were really really old.  And some days I do feel really really old.  Especially since I got sick with MS a couple of years ago.  But you can't let it stop you.  You just have to slow down a little bit sometimes.

I have a little boy too.  He HATES it when I call him my little boy cause he is 22 now.  But he will always be my little boy.  Your mom will be able to understand what I am saying, cause no matter how old you are, you will always be her little boy.  I remember when my son was your age, he never wanted to walk anywhere.  He always wanted to RUN.  So I think I understand how hard it must be to be too tired to do that right now.  I am praying that you will be able to again real soon.

I don't write a lot on this forum, but I read a lot of what everyone else writes.  I learn so much about the challenges that we all have faced or might face.  I was very sad when I learned I was sick, but just being able to be with friends here has helped me not be so sad all of the time.  If you are feeling sad or scared, everyone here will want to help you, so don't ever be afraid to ask for our help, okay?

And when you do feel better, let us know okay?  Or have your mom let us know.  That way, we'll all be able to cheer for you and send you 'high 5s'

Your friend from Ohio

Patty

[Momzilla]

Hi, Kenneth!

My name is Riley.  I'm 7 years old.  I don't have school today!  I have a day off.  Do you?    I really hope you feel better.  I hurt my eye last week, and  I have to take drops.  But I know you feel a lot worse and I'm sorry about that.  

What's your favorite food?  Mine's watermelon.  Do you like strawberries?  My mom says your mom takes good care of you and that's a good deal.  

Have you ever played chess?  I'm at the chess team at school.  It's really cool.  You should try it, if you don't play.  One time I went to another state, Indiana,  to play.  I tied one game and lost one game.  But I lost to  fifth grader when I was in Kindergarten, so my coach was very proud of me.  The game lasted over one hour.

I hope you feel well, Kenneth.  I will pray for you.

Love, Riley  (I'm typing by myself.  Mom's got me covered.)

[cooper214]

Hi Kenneth, welcome to the forum!!! I am sorry to hear you are not feeling well, but you will find this forum have alot of peopole that truely care, and that are so very helpful, I was was diagnosed 1 year ago as clinically possible ms, and to tell you the truth, I have learned more here in a week than I have in a year.. Quix is the best!! after reading these posts, I am like oh my gosh, that has either happened to me, or why the heck hasn't my doctor said that!! anyhow hope you fell better, and welcome again
T

[Nanners123]

I am happy that you are finding love, support and knowledge from this great bunch of family. There is so much to read and learn.

Kenneth, please know that all of us hear are praying for you and your family. You sound like a strong, strong boy. Remember that it is okay to feel upset and frustrated sometimes you are going through tough stuff. I know you are strong and can work through the pain and tiredness. What is your favorite thing to do to keep your mind happy?

You have a very loving mother and father who are learning lots about how to help you. Stay strong and remember to have fun in whatever way you can.

Ms. Nancy (that's what all the neighborhood kids call me)

[grannyhotwheels]

just bumping back up so nobody misses it.

[T-lynn]

I'm from Ohio,I live in a little town and its main income is farming.

I'm 41 and have had MS since I was 33.I know to you thats sounds old.

I have 4 children,my oldest 21 lives with her boyfriend. my 18 year old daughter is in the Navy and is studying electrical nuclear enginearing---she's vision impaired--so all things are possible.

I have a 16 year old son who plays football,wrestling and runs track,he broke his neck at the age of 2 and never thought he would walk again.Plus he has osgood slaughter disease and his elbows and knees are always in pain.But he enjoys his sports.

My youngest is a girl she's 12,she runs cross country and track and wants to be a jornalist when she grows up.

For me I have grown up in ohio and have lived in North carolina and Michigan----Now your gonna have to get a map out to see where we are all from.

I enjoy cooking,my flower gardens,my loveable dog and just relaxing with family.

MS at 9 must be rough,but I'm sure your a real strong strapping young man.We all have limitations and I wish you well and luck with all your indeavors.I'm sure you'll accomplish all that you want to acheive.With MS it just makes us stronger willed.

Nice meeting you.  

[6-paq]

Hi Kenneth!

My name is Pat and I am almost 45 years old.   I have 4 children.  I have 2 boys that are 15 and 3.  I have 2 girls that are about your age.  They are 8 and 10 years old.

I live in California.   It is usually very sunny here.  I live close to the ocean.  I can drive down to the ocean and drive to the mountains or the desert in the same day!

I am sorry that you are not feeling well.  I am also not feeling well and my doctors are trying to figure out if I have MS.   I hope and pray that the doctors from the United States can help your doctors make you feel better soon.

We would like to hear from you if you feel like writing us a note.  I wish you the best!
Pat :)