Multiple Sclerosis Community
Another Update....new tests....hopefully dx soon!
About This Community:

Our Patient-to-Patient MS Forum is where you can communicate with other people who share your interest in Multiple Sclerosis. This forum is not monitored by medical professionals.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Another Update....new tests....hopefully dx soon!

Hi everyone....

Thought I would write another update to save time when I get my test results in 2 weeks!

I am currently going to the Cleveland Clinic....PCP there sent me to an Endocrinologist and a neurologist for evaluation...All blood tests the PCP did were normal.... including Cortisol.

Saw the Endo....he wanted to know why the other docs wanted me to see him....lol! He is sending me for a bunch of blood work and 24 urine test...to test for adrenal tumor and carcinoid syndrome.

Saw Neuro the same day... :D .... she did a thorough exam....left side weakness is getting worse...told her all my symptoms, and she saw my Feb. brain MRI.....she is confident the lesions in my brainstem are causing all my problems..lol...(Big Neuro at UofM said they were nothing) anyway.....she said those lesions would explain all my  (MS) symptoms and autonomic symptoms.....

She couldn't believe no one has given me a spinal tap yet OR an MRA of my brain....so this Sat I go for an MRA and an MS protocol MRI of my brain.....then Mon the 17th I go for my spinal tap. I follow up with her the next week.

As far as my symptoms go....my hot flashes are getting better, but severe fatigue is taking over, (I just want to sleep....hard to keep my eyes focused!)..dizziness, along with bad leg pain and weakness, which makes it even more difficult to walk.

If all this comes back negative, I am asking them to test me for Mitochondrial disease.

I will write back when I get the results of the upcoming tests. Thank you to all of you for the support and encouragement!! It mean a lot!!!!

Hugs,
Laurie

Laurie :)
5 Comments Post a Comment
Blank
3942401_tn?1374351949
I'll keep my fingers crossed for you.  You deserve to finally have some answers and hopefully they can work towards fixing the problems (or at least slow things down if they can't).

Make sure you stay laying flat for a long time after your LP and drink lots of caffeine.  Hopefully you don't end up with the headache that I had.  Other than the dreaded headache, the rest of the procedure was no problem at all (even though my neuro was in the middle of a hot flash at the time).  I thought you had already had one but I guess not.

Good luck and let us know what happens.

Laura
Blank
3986919_tn?1352129583
Yes, I did have a spinal tap MANY years ago during my first "attack" back in 1993.

I didn't lay down long enough....I did get the dreaded headache! I will be a good girl this time!!  :)

They told me my LP was normal, but when I got the report my protein level was very high.....it will be interesting to see how it comes back this time!

I will let you know what happens!!

Laurie oxo
Blank
751951_tn?1406636463
Laying down was good, and everybody told me caffeine was good, but [Oh, my goodness!  When did they add spell-check here?  Nobody told me!] the most important thing was to DRINK LOTS OF LIQUIDS ALTOGETHER, ESPECIALLY WATER!  We will pray for a good outcome from all of the above.

Are you having all these tests @ Cleveland?
Blank
739070_tn?1338607002
Laurie,
I certainly hope this neuro can come up with a dx , if not the endo!! Sounds like you are in good hands fr now.

Please keep us updated! And, I will keep my fingers crossed!!!!!

Ren
Blank
3986919_tn?1352129583
Thanks Pastor Dan and Ren!

Yes, Pastor Dan I am having all the tests at the Cleveland Clinic....except the blood and urine tests.

Laurie :)
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Multiple Sclerosis Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
11 hrs ago by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
Avatar_f_tn
Blank
essdipity
987762_tn?1331031553
Blank
supermum_ms
Australia
572651_tn?1333939396
Blank
Lulu54
Dayton, OH
667078_tn?1316004535
Blank
HVAC
Durham, NC
1831849_tn?1383231992
Blank
kwarendorf
Great Neck, NY
Avatar_f_tn
Blank
SarahL2491
Alagash, ME