Anybody here with 17 or more o-bands and no Dx?

Well, since the title is the whole question, I thought I'd share a little work I've been doing on redefining some psychiatric terms frequently used to silence Limbolanders. My psychiatrist and therapist think they're hilarious. Somehow I'm doubting our intrepid neuros will be amused.

La (plus) belle indifference: Ceci n'est pas une In-valide sur la Divan.

Abstract: Proposed revisions to the current DSM IV-R (planned "Patient Edition") promise improved doctor/patient communication and streamlined DDx navigation.

Conversion Disorder (DSM IV-Revised PE):
The intrapsychic stress imposed by trying convert one's desire to throttle one's neurologist into more constructive, and legal, impulses. Often resulting in bouts of twitching, hypertension and other signs of CNS sympathetic arousal, elevated temperature, weeping, pleading, begging and in advanced stages, complete despondency.

Conversion disorder is a diagnosis of exclusion; the exclusion of the offending neurologist from the consulting room often results in complete remission.

There appears to be some overlap between Conversion and the later development of Demyelinating Disease; the disease mechanism is not fully appreciated but appears related to the uncontrolled release of glutamate in hyperarousal states peculiar to Conversion, resulting in cell apoptosis, CNS autoimmune response with gradual increase in intrathecal Ig. This may account for the statistical lag time of five or more years between appreciation of symptom and diagnosis of MS, DD or Epilepsy; five years of repeated neurologist mental assault appearing to be the watershed period for damage to accumulate into appreciable lesion.

La (plus) belle indifference (DSM IV-Revised PE):
Considered a professional courtesy among neurologists. The professional best practice exhibited by treating neurologists who maintain a high degree of suspicion regarding their patients' reports, history, narratives and actual clinical test results. [Ex: Dr. John rightly discounts the presence of 17 OCBs in a patient's recent LP, as well as definitive finding of eighth cranial nerve abnormality in vestibular testing, and the clear MRI of advancing Chiari malformation, as well as comprehensive neuropsychiatric reports quantifying focal damage, because he has already properly diagnosed Conversion Disorder.]

Would love to hear from folks about their o-band counts and what their neuros have said...

[HVAC]

I have 12-obands and was told I have had MS my whole life and because I only have 3 brain lesions, I have a little MS. Because in my case it is PPMS and I have had it since the age of 2  they are not treating it. I basically go in twice a year and they do a Neuro exam and make another appointment. I have been to most of the MS Specialists in our area.

Alex

[LisaJF]

You wrote this?

My are you quite the writer.  There are excellent writers here on this forum.  Quix, LuLu, drsdonthelp and many others.

You have a sense of humor which is a good thing because without it, you'd be giving up on yourself and life in general.  This shows tremendous strength and God bless you for it.

I'm sorry for the unfortunate trials and tribulations you have suffered during your process of diagnosis.  I can't lend any consolation in regard to your situation nor can I say that I have "0-bands" in my CSF, therefore I do not know or can not imagine what you're going through.

I do pray that someday you will finally find solace for your grief in regard to your path of diagnosis.

Lisa

[17o_bandslater]

Thanks for your support and feedback!

[RedFlame]

Very nicely done.  Perhaps next you could re-define 'Folie a deux.

Here is a start:

A shared delusionary disorder with a psychotic break from reality that is initiated by one individual (neurologist #1)  and then between two or more neurologists who form a

folie à trois, folie à quatre, folie en famille and then folie à plusieurs pattern.

Once the folie a plusieurs (delusionary disease by many) takes form it can be difficult if not impossible to engage such patients (neurologists)  in any form of therapy that would break them free from their delusions.  Typically, the delusion takes form in the context of those who believe they are above others in some way, for example all knowing.  Medical tests are often tossed aside in the belief that the neurologist is 'above all that stuff' and can determine a patients status by just looking at them in the waiting room.  In such cases, it is best for these patients be allowed to leave the detention (waiting room) and be allowed to find a doctor not yet infected with Folie a Plusieurs.  

If possible, these doctors should be mandated to advertise their illness in plain view of all who enter or call their office.  For example:  business cards should clearly state name and  disease

example:

Dr. No Nothing,
(with Folie a Plusieurs)

Neurologists often fall in to this illness if not dressed down early in their career by a mob of intelligent patients.  Specifically those with M.S.  

Red

[drsdonthelp]

LOL, first of all, I admire anyone that has such a great sense of humor, and like the rest of us, we need it to get through life with disease.

Thanks Lisa, for saying that I write good, lol , I have to laugh though because when I am going and going, I tend to repeat myself so much that when i reread, I delete delete delete!! Sometimes I don't even think what I say makes any sense at all!! ha ha

Right now, I have zilch bands !! so I cannot comment, however, I do want to copy this and bring it to my next appt with Dr. Dread!!!!!!!LOL

Pam

[RedFlame]

good idea Pam!  Laughing and using satire gets us through all of the painful things we are experiencing.  If I didn't laugh I don't know what I would do.  

You don't have to have O-bands to have MS.  

Hang in there!

Lois

[drsdonthelp]

Hi Lois, LOL, I tell ya, these darn doc's need swift kick in the a$$, they say laughter is the best medicine, so i guess they are helping us alittle because we tend to leave their office lauging so hard at them and their bullcrap!!!

I love this post, I just reread it! LOL
Thanks!!

[17o_bandslater]

You are hilarious. Keep those new diagnostic proposals coming. I'm committed to squashing them into medical-eze. Then I'm going to have them printed to look like traffic citations that we can give to our neurobots when they act out.

I'll print out chapbooks called the "DSM IV--Rev. PE" (PE= patient editions. These will come with a nifty new "Communication Management Tool" ( read: "Brick"), so that not only can we throw the book at them, we can be reasonably certain they've received it.

And if they say "OW!" we can ask them how long they have been mentally ill.