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1744910 tn?1314203285
Are symptoms worse at night?
I usually make it through the day with minimal to moderate symptoms in my right leg but when I finally settle in for the evening, especially lying down in bed, both of my legs begin to ache and have restless leg-type symptoms.  Is this consistent with MS or TM?  

I am currently diagnosed with TM (transverse myelitis) but identify more with the symptoms of MS.
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1394601 tn?1328035908
The worse time of day for me is sleeping time.  I am to the point I hate it.  Period.  I wish we could skip it.  In fact, I often fall asleep at our table or my desk rather than put myself though the pain.  It just isn't worth the spasms and burning that I don't feel during the day because I have other thing to occupy my mind.  

And I have MS is you are taking an informal poll.
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1394601 tn?1328035908
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Maybe all the day's activities are wearing you out but you are ignoring them because you are so busy. Then when you get to relax, whammo. Ask your doctor for the pain relief you need, emphasizing that one that causes sleepiness would be ideal. I hope you can finally sleep through the actual symptoms. Whatever works.

ess
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I am not diagnosed but the dr gave me Baclofen and neurontin to tke at night since my legs are the worst at night and the mycologic jerks.

Hope that helps.

Kerri
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429700 tn?1308011423
I notice the spasticity when I'm down for the night.  Warm temperatures and cold temperatures makes it worse.  
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429700 tn?1308011423
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1748105 tn?1314476806
Yes! Every night when I lay down and try to sleep my legs start cramping and the restless leg sets in. Makes it very hard to sleep, but there are lots of meds to help.
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1748105 tn?1314476806
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1744910 tn?1314203285
I was on neurontin and it didn't like me.  Made me very irritable and angry and did little to help my symptoms.

What are some other med options?

Please note that I do not like to take meds of any kind and would prefer a natural alternative.
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1744910 tn?1314203285
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559187 tn?1330786456
You brought up a very interesting question that comes up from time to time.  Night pain vs. daytime pain.

I saw my rheumatologist yesterday because I wanted to know if the pain in my hips was being caused by arthritis or from my MS.  We tend to blame all our symptoms on MS and neglect the other reason that could be causing our problems.

He asked what time of the day is worse and I told him first thing in the morning and even worse when I went to bed.  He had an x-ray done in the office and my hips came out just fine, no arthritis.  So, this is MS afterall.  He said that the pain is likely spascicity which we tend to notice more at night.  

I take neurontin in conjunction with zanaflex.  This helps with the pain.  If you can't tolerate neurontin, you might talk to your doctor about baclofen.  I can't take baclofen, but hear it really helps a lot of people.    

I used to really enjoy my sleepy time.  Now all I can hope for at night is that the medications help me sleep through the spasms.  Keep looking for a med that will help you.  

Julie
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559187 tn?1330786456
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429700 tn?1308011423
I try to avoid medicine, too, but sometimes Baclofen helps when I'm having a string of nights with spasticity (like lately).  I think it's a medicine, however, that should be taken consecutively.  Below are some non-medication suggestions that help me:

Because temperature extremes make spasticity worse, I would make sure you have the right amount of coverings on you.  Too much in the winter will cause spasticity.  Being too cold, though, can make you really miserable.  Make sure that you have the room cool at night during the summer.  In the winter, make sure you have plenty of warmth, but not too much.  

Not having enough sleep causes spasticity.  Get a routine going and make sure you wake up and go to bed at the same time.  Read a boring book before sleeping, so that you can hit the pillow before you realize the spasticity is setting in.

Anxiety increases spasticity, so try to avoid this, too.  Get your mind on other things and remember routine helps decrease anxiety.  Get people to help you with things.

Don't over-do exercising or physical work.  I will always have spasticity after doing more housework than I normally do.  Get help where you can.  Know where your boundaries are in exercising and physical work and avoid going over this or you will pay at night.

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429700 tn?1308011423
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667078 tn?1316004535
Mine are worse because I overdo it and do not realize it and because when I am no longer busy I notice the pain. I use hypnosis to fall asleep it at least it helps to relax. If I awaken by a spasm that is when it is tough. I often sleep with my arms above my head grabbing onto the bed because of the spasms.

Alex
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667078 tn?1316004535
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1744910 tn?1314203285
Interesting you mention that temperature affects your spasticity.  It has been extremely hot and muggy in my neck of the woods for the last week or so, which may have brought on the symptom.  I have also noticed that I am colder at night than usual.

I appreciate the non-medicinal info.

Do you take the Baclofen as needed or regularly?
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1744910 tn?1314203285
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429700 tn?1308011423
As needed, but the bottle is prescribed (and probably should be taken) regularly.  Have you had your thyroid checked lately?  This can cause more spasticity and to be cold at night, too.  There are many people with MS that have thyroid issues.
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429700 tn?1308011423
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559187 tn?1330786456
Are you sure you have spascicity?  I can tell you that many of us with MS who do have it, there is just no other way to handle that type of pain other than using medicaitons. I am not a big medicine user either and am very happy that I'm only on a few meds for MS, but I am not going to make myself suffer when there is help out there.  Good-luck with the suggestions that were made and I hope they help you.
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559187 tn?1330786456
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572651 tn?1333939396
Recently I heard a therapist talk about dealing with this problem and it was strongly suggested that we take 20-30 minutes before bed to thoroughly stretch our legs to help with this problem.  It is a very common problems.  best, Lulu
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572651 tn?1333939396
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738075 tn?1330579444
I have spasticity and spasms day and night.  Temperature extremes compound the problem for me.  I take Baclofen (20 mg, 3x/day), and I often use medical MJ shortly before bedtime.  This has helped greatly with spasms.  

I totally agree with Lulu with stretching.  I do a full Yoga practice in the morning (helps energize me, too!), and stretch my legs again before bed.
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738075 tn?1330579444
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1744910 tn?1314203285
I have not been dx with spasticity as this is a brand new symptom for me.  I will be contacting neuro tomorrow with this update.

Thank you all for tor comments and suggestions.  I will look further into the med options and implement yoga and stretching.

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1744910 tn?1314203285
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Hi jorbsid, I'm very curious if you fond out if your leg pain at night was consistent with MS symptom or TM? I have had the exact same symptoms throughout the last year i.e. pain in one leg especially when I'm lying down in bed and night, and it's aggravated when I have been physically active during the day or if I'm tired.
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Thank you. That's exactly how I have felt during an episode. I have stayed up for 3 and 4 days to avoid the pain.
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I am still waiting on a dx - spinal MRI to come in January- but I definitely suffer from spasticity in my left hip and leg.  Its painful and i have almost constant pins and needles throughout the day, but when I lie down at night my pain levels go through the roof! I assume it's because I have flexor spasticity and my hips just DO NOT want to straighten out.  
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