I was diagnosed PPMS in 2008 at the age of 51... they say I've probably had for 10-20 years. Diagnosed by MRI ,LP, and Neuropsych testing
Wow, this is a very intersting thread! Can't believe I've never seen it before.
Dx with ADEM 30 years ago at the age of 26.
Dx with RRMS 5 years ago when I was 51. 2 years later (2011) I retired early on disability.
Deb
dx age 20, but I think I would have been dx at age 17 if I'd been living in the city I'm now living in (in this city they're much more keen on an early dx) now I'm 23.
Dx'd with "probable MS" at age 37. Dx'd with RRMS at age 39.
Wow! Loads of comments! Interesting.
I was dx @ age 28 w RRMS but am sure I had it for at least a couple years before that. Zero symptoms after no-sight-in-R-eye optic neuritis for about 10 years. Didn't even see a neuro - there was nothing they could do anyway.
After another bad bout of neuritis @ age 40, went on Avonex for 14 years. Now 3 months on Tysabri, Dr. trying to keep the next phase of MS away.
"Retired " @ age 40 after disastrous cognitive testing. I would be curious to hear how long it was for everyone between diagnosis and leaving work - if they have. For me it was 12 years. Thanks!
How are you doing and what meds did they put you on?
I was dxed at 65 how are you doing now?
i havent been diagnosed but the syptoms are that it maybe ji just need to know if i fall into that catagorie
for the last three years i have had pins and needles mostly to right hand it went then came back more severe this time bringing pain my left eyelid flickers was sent to neuro was told i had migrain this kept on and was sent for brain scan wich showed white spots in brain i had a day of trouble with not focusing with left eye then that went i have blurry episodes now and again each time these syptoms come i get worse from knees down it feels at times like i ve been kicked in both legs and have difficulty walking i lose balance from time to time and fall doc sent me for a blood test finally after 3 yrs and it came back with vitamin b12 deficiancy some of the syptoms relate to that but the rest dont i saw another neurologyst on wednesday this week who was not sympathetic at all and said i am suffering from anxiety wich i dont think i am
Age 33 and I've been diagnosed for less than a year
Age 48 on 12/13/11 but looking back I had some sort of symptoms 10 years prior
PS 20 years ago it was likely RRMS. When I was diagnosed it had morphed into SPMS.
I was diagnosed at age 51, in October of 2011. Seems my symptoms started 20 years before that.
Kyle
Never thought about the age thing,
HAAAA, I assume all you ladies are telling the truth about your age. :-D
John... thanks to all
Dx offically a month ago at 28. Think now my first attack was at 24.
I found out when I was 20 or 21..it was right before my birthday.
Dx at 28 almost 2 yrs ago
symptoms started when I was 27
RRMS
Fantastic thread - vewy interesting...
First flare at 23, Dx @ 24 last year - RRMS
Started Rebif almost a month ago at 25
Never saw this thread before... I was diagnosed with RRMS on 12/27/11, at age 36. I remember my first flare (or what I believe was my first flare), about 8 years ago. I didn't realize what it was at the time.
69, they figure I'd had it for 30 yrs with no dx because some neuros got their license out of a cereal box :-)
RRMS
Age 18. Three days before my birthday.
I turned 42 in late August & was just dx'd yesterday with RRMS. I have fought for a dx since I was 38 & probably had symptoms at 35 which I ignored. I'm supposed to start copaxone within the next 3 weeks.
I was dx at 38 years old, six months after my first flare up. My dx was in march 2011. I do not know what kind of ms I have...guess I should ask my neurologist! I have tried betasaron and ivig. Currently on Copaxone daily and solumedrol monthly.