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900662 tn?1469393905
At what age did you receive your MS Diagnosis?
Just a little curious  at what age you were DX with MS & what type of MS?


                How many years have  you had your DX?


thanks
John...
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Avatar universal
I was diagnosed on 4/13/10 at the age of 34. Had my first flare in 2008 but didn't know it at the time. My 1st time being seen by a dr for symptoms was in march 2010, diagnosed April 2010 and started rebif in April 2010.

But I am also currently in my 2nd flare since starting rebif. So that makes 3 so far this year.
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I was diagnosed with "mild" MS at the age of 54.  Looking back, I've had episodes of numbness and tingling in my legs, with no disability.  Haven't started any treatment yet.  Just got the dx last week.
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DX in November 2010
First symptom:  Optic Neuritis September 2010
Age:  35
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1168718 tn?1464987135
dx's at 50 years old with secondary progressive MS.............

They also figure I have had it for a long time, and for some reason it decided to really kick up its heals just before my 50th birthday...... I am now 52 and still working out the Dr's sicuation.....
Hope this helps,

Cheers,
Candy
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1453990 tn?1329235026
48 "Probable" RRMS
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562511 tn?1285907760
Diagnosed at age 42 with RRMS, 10 years ago. (don't do the math :-)
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I was dx'd in 2007 at the age of 51. At first the neuro thought it couldn't be MS until he looked at my MRI and burst out with, "how in the heck did they miss this all these years?" and told me I have had MS for at least 25 years based on the MRI and accompanying symptoms.
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1116556 tn?1345119506
Dx at age 31 w/ RR.

1 yr later, SP

Drs say the lesions and black spots suggest I have been living with this a very long time.
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1529337 tn?1292262931
I was diagnosed yesterday which was Tuesday Dec 7th 2010 with MS I am 56
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1394601 tn?1328035908
Age 60 - Doctor said I have had it a long long time.
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1045086 tn?1332130022
Dx at age 58.  Haven't asked the doctor for anything more specific.  Taking Copaxone.

First definitive symptoms at age 38.  Told it wasn't MS after MRI done.  I tracked down that MRI and had it copied to a CD.  My MS doc points out multiple lesions that were clearly present twenty years before diagnosis.

Mary
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1396846 tn?1332463110
Age 38 still awating my DMD

Paula
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1466984 tn?1310564208
dx at 55 - less than a year ago
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hi everyone, have only recently been diagnosed at 34. Not quite figured out how to deal with it yet, but in a way is good to have an answer! diagnosed on mri after getting double vision, but have had the electric shock symptoms on and off for a few years, and what was probably a CIS at 19. self diagnosis of 'faulty wiring' for as long as i can remember. Is age of onset as per the statistics valid at all??, i think i have always had rrms.. but maybe it's not until we get a bit older that our brains run out of re-routing options and start to cause more obvious problems?? Hope you all have a happy and healthier new year :-)
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398059 tn?1447949233
43
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900662 tn?1469393905
bump--


there are so many new members..



Johnniebear
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572651 tn?1333939396
thanks, JB.  This is an excellent idea.
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900662 tn?1469393905
I thought I would bump this up,  its seems like we have so many new members.

Ok ladies,   you may fudge your  age a little bit,    :-D



thanks all

Johnniebear
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I was diagnosed at 15 with RR MS. it's been 12 years now. I was started On Avonex which didn't work for me then switched to copaxone for 5 years till it stopped workin at which time I switched to Tysabri for About another 5 years till that stopped workin. Started gilenya but it didn't work as I had 3 flairs and activity on my MRI in the 6 months I was on it. Thinkin about starting on Rituxan but am tryin to hear some personal experiences with it...sorry this is so long!
-Michelle
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I was diagnosed 4 months ago at 38.
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1710955 tn?1309450073
Age 32 with rrms.  I was just diagnosed in July of 2011, but docs believe I've had it for 10 yrs.
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572651 tn?1333939396
JB - I'm so glad to see this thread come up again.  It makes me think that perhaps it would be good to do it as a poll.  I will post one to go with this piece so we can see numbers/percentages.
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199882 tn?1310188142
I was dx at 43... My symptoms started when I was 30... DX - PPMS

Carol
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1734735 tn?1413781671
I was dx at 45 in Aug 2011 with RRMS at this stage. Injecting Copaxone daily.
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1453990 tn?1329235026
At 48. Nov 12, 2010 with RRMS.  On Copaxone.

Bob
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1713150 tn?1314470942
Dx at 28 yrs old, but everything started at about 14 yrs.
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I was dx at 38 years old, six months after my first flare up. My dx was in march 2011. I do not know what kind of ms I have...guess I should ask my neurologist! I have tried betasaron and ivig. Currently on Copaxone daily and solumedrol monthly.
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867787 tn?1318939830
I turned 42 in late August & was just dx'd yesterday with RRMS. I have fought for a dx since I was 38 & probably had symptoms at 35 which I ignored. I'm supposed to start copaxone within the next 3 weeks.
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Age 18.  Three days before my birthday.
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69, they figure I'd had it for 30 yrs with no dx because some neuros got their license out of a cereal box :-)
RRMS
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1936411 tn?1333835449
Never saw this thread before... I was diagnosed with RRMS on 12/27/11, at age 36. I remember my first flare (or what I believe was my first flare), about 8 years ago. I didn't realize what it was at the time.
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2078115 tn?1333930165
Fantastic thread - vewy interesting...

First flare at 23, Dx @ 24 last year - RRMS

Started Rebif almost a month ago at 25
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2146297 tn?1337574892
Dx at 28 almost 2 yrs ago
symptoms started when I was 27
RRMS
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2155343 tn?1336716915
I found out when I was 20 or 21..it was right before my birthday.
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1981227 tn?1336332038
Dx offically a month ago at 28. Think now my first attack was at 24.  
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900662 tn?1469393905
Never thought about the age thing,

HAAAA,   I assume all you ladies are telling the truth about your age.   :-D



John... thanks to all
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1831849 tn?1383231992
I was diagnosed at age 51, in October of 2011. Seems my symptoms started 20 years before that.

Kyle
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1831849 tn?1383231992
PS 20 years ago it was likely RRMS. When I was diagnosed it had morphed into SPMS.
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1760800 tn?1406757051
Age 48 on 12/13/11 but looking back I had some sort of symptoms 10 years prior
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1896537 tn?1381903609
Age 33 and I've been diagnosed for less than a year
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for the last three years i have had pins and needles mostly to right hand it went then came back more severe this time bringing pain  my left eyelid flickers  was sent to neuro was told i had migrain  this kept on and was sent for brain scan  wich showed white spots in brain  i had a day of trouble with not focusing with left eye  then that went i have blurry episodes now and again  each time these syptoms come i get worse  from knees down it feels at times like i ve been kicked in both legs and have difficulty walking i lose balance from time to time and fall  doc sent me for a blood test finally after 3 yrs and it came back with vitamin b12 deficiancy  some of the syptoms relate to that but the rest dont i saw another neurologyst on wednesday this week who was not sympathetic at all and said i am suffering from anxiety wich i dont think i am
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i havent been diagnosed but the syptoms are that it maybe ji just need to know if i fall into that catagorie
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I was dxed at 65 how are you doing now?
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620048 tn?1358021835
dx'd in Feb 09, I was 65
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How are you doing and what meds did they put you on?
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4461995 tn?1357958708
Wow! Loads of comments!  Interesting.

I was dx @ age 28 w RRMS but am sure I had it for at least a couple years before that.  Zero symptoms after no-sight-in-R-eye optic neuritis for about 10 years.  Didn't even see a neuro - there was nothing they could do anyway.
After another bad bout of neuritis @ age 40, went on Avonex for 14 years.  Now 3 months on Tysabri, Dr. trying to keep the next phase of MS away.

"Retired " @ age 40 after disastrous cognitive testing.  I would be curious to hear how long it was for everyone between diagnosis and leaving work - if they have.  For me it was 12 years.  Thanks!
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4446427 tn?1371218318
Dx'd with "probable MS" at age 37. Dx'd with RRMS at age 39.
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dx age 20, but I think I would have been dx at age 17 if I'd been living in the city I'm now living in (in this city they're much more keen on an early dx) now I'm 23.
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1337734 tn?1336238191
Wow, this is a very intersting thread! Can't believe I've never seen it before.

Dx with ADEM 30 years ago at the age of 26.

Dx with RRMS 5 years ago when I was 51. 2 years later (2011) I retired early on disability.
Deb
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749148 tn?1302864559
I was diagnosed PPMS in 2008 at the age of 51... they say I've probably had for 10-20 years.  Diagnosed by MRI ,LP, and Neuropsych testing
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