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At what age did you receive your MS Diagnosis?
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At what age did you receive your MS Diagnosis?

Just a little curious  at what age you were DX with MS & what type of MS?


                How many years have  you had your DX?


thanks
John...
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99 Comments Post a Comment
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667078_tn?1316004535
I was diagnosed at 45 with PPMS. All the neurologist say mine goes back to childhood because of documented brain stem involvement going back that far.

Alex
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Avatar_f_tn
Hi there

I was diagnosed at 44 with "mild" ms :)

It ain't mild now though! It got worse a few years ago and I'm now on a DMD, they say RRMS but I sometimes wonder if it may be SPMS.

Mand
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900662_tn?1380159390
50 years old  
DR says very mild RRMS,  but he local disagrees neuro thinks CIS, either way its MS

no DMD'S yet
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572651_tn?1333939396
Just two weeks shy of being 54- September 25, 2008.

Doctor calls it RRMS and says being on a DMD is not optional -

Looking back I am pretty sure my symptoms started in my 30's but I ignored them
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1040373_tn?1273691088
I was diagnosed with RRMS 8 months ago at age 28.
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Avatar_f_tn
I was diagnosed in January of 2009, at age 28, a few months before my 29th birthday. So its been a little over a year now. I started having neurological symptoms in the summer of 2008, so I got diagnosed about 6 months after start of symptoms, pretty quick I think.
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Avatar_f_tn
Sorry I spelled your name wrong. I forgot to add I was diagnosed with RRMS. I was originally on Betaseron, after 6 months we determined that wasn't working, and now I'm on Copaxone, which is definitely working!
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929431_tn?1247398532
46 less than a yr with rrms, but cant track it back till when i was 36
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198419_tn?1360245956
I was 38 and little over 3 yrs now
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382218_tn?1341185087
age 39 with RRMS
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635835_tn?1272542983
Pretty high average age here so far.  Interesting when compared to the literature statistics.
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808815_tn?1254305481
hi i was 39 last year july diagnosed with rrms
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627818_tn?1271780626
I was 29 when MS was first mentioned, but I didn't really have enough symptoms to clearly diagnose. At 35 I had an episode of slurred speech and this time I was told it was MS. But back in the late 70's and early 80's there wasn't much done about it. I was told it was benign. Since I never had anything else happen, I pretty much locked that info away in the Denial Closet of my brain. Fast forward to 2002 when my opthomolgist ordered an MRI because he wasn't liking what he was seeing from several tests. Bingo!! Off to a neurologist who told me that I truly did have MS and started me on Avonex. I was then 52 years old. I haven't had any symptoms worth noting since 1985 but about a month and a half ago I had a full blown attack - double vision, nystagmus, and ataxia. So, I probably have had MS for a very long time. RRMS.
Yes, interesting how many people diagnosed later in life, but probably had MS for a long time. It just never reared its ugly head.
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738075_tn?1330579444
I was 50 years old when diagnosed, though I've had symptoms since my teens and 20s that were so mild I blew them off.  Things got more serious in my 40s.  I'm on Tysabri.  RRMS.  
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Avatar_m_tn
depends on who you ask. we'll take the non-VA doctors for this question,

age=54
dx=rrMS

first onset of documented neuro problems, 1986 after a back injury and CSF infection.

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335728_tn?1331418012
It was in 1993 at the age of 30 years old.  I presented with Grand Mal Seizures and was diagnosed by way of MRI and Lumbar Puncture.  My disease was essentially dormant until 2006 when I presented with Trigeminal Neuralgia and progressed to speech, walking and vision trouble.  I am currently not on a DMD and will not be unless there is a change in my symptoms.  The neurologist has told me that the next step for my trigeminal neuralgia is neuro surgery as I have exhausted all medicinal options.

Rena705
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Avatar_f_tn
Dx July 2009 on my 59th birthday;  via MRI.  Had sensory symptoms at diagnosis, no hint of MS before that.

Started Rebif 2 months after diagnosis.  No relapse so far.  Next MRI will be this summer.
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1221035_tn?1301004108
dx at 46 with rrms

symptoms going back 10-15 years or more
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Avatar_f_tn
I was diagnosed with RRMS in July of 2009.I was 37.  First real symptoms were in 2008, tingly feet and legs,listing to the left when I walked. I have been on copaxone since beginning of August.

I had Vertigo/relapse 2 months ago..used IV Steroids for the first time which got rid of the Vertigo.
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1307298_tn?1305950451
I'm 38 and was just diagnosed in late February.  I also have epilepsy and based on my periodic MRIs for that, the MS docs said that I've had MS for at least 5 years.

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147426_tn?1317269232
Dx'ed at age 55 with symptoms dating to age 47.

Q
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Avatar_f_tn
In December 2005 I was dxed at 65 years of age with SPMS.   I am now lucky if I can take maybe 2 steps, or stand for 3 minutes and my left arm is useless.

No MS symptoms that I know of before the beginning of 2005.
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Avatar_f_tn
I was diagnosed 2 mths ago at age 49 with RRMS
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739070_tn?1338607002
Diagnosed at 51 with RRMS although in retrospect I can remember symptoms back to my early twenties that I always attributed to other things.

Ren
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1182479_tn?1273376014
I was 54 When Diagnosed


Tyler
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987762_tn?1331031553
Tally so far

Dx in their 20's = 2
Dx in their 30's = 5
Dx in their 40's = 5
Dx in their 50's = 9
Dx in their 60's = 1

Cheers....JJ
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1253197_tn?1331212710
I was 46 and dx'd 2 months ago with RRMS

Sarah
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645390_tn?1338558977
41 when DX with RRMS.

"possible" MS at age 39.

Michelle
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1322901_tn?1274618930
hello all,

new (today) to the forum... I am 32 and was just diagnosed with rrms about month ago now.  I woke up one day and my vision was literally double.  Tried to ignore this, maybe attribute it to lack of sleep, but by the 3rd day I was in the ER.  After the MRI I was admitted with a "rule out MS" diagnosis... then the lumbar puncture and another MRI of the spine confirmed it.  I had been having symptoms for the last couple years, but I work in the ER and am NOT a complainer.  I just popped some advil and went on my way.  This has been a game changer!

I'm pretty freaked out right now as I am an extremely active male with a full plate.  This diagnosis came out of nowhere, but I guess it was at about the average age/time from what I have been reading.  
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Avatar_f_tn
The beginning of this year at age 56 with PPMS.  
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620048_tn?1358021835
I was DX  February 24, 2009 with RRMS...I was 65...
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1149087_tn?1281145375
I was diagnosed with RRMS in February 2010 at age 34, in hindsight it seems I had the first episode with 32.
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1267037_tn?1274705094
rrms, diagnosed at age 28. symptoms going back 10 years. though an ms specialist (second opinion) said i'm borderline, so..
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Avatar_m_tn
I did not receive an "official" dx of RRMS until this pazst May 6th. My first MS symptoms, however, began in the winter of 1978 when I was 26.  I am now 57.  Starting back then I have had multiple diagnostic procedures, first with CAT scans and then MRI's later.  I had seen neurologists, neuro-opthamologist, neurosurgeons, and countless other doctors/specialities.  I waas basically told that because I have another neurological disorder (neurofibromatosis) that the chhance of my alaso having MS would be like having lightening strike twice in the same place.  
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755322_tn?1330272714
Officially diagnosed at 53 with RRMS in 2009, but had looking back had symptoms 10 years earlier and a bout of optic neuritis 7 years earlier. The big "flare" hit me when I was diagnosed with breast cancer and had to have double mastectomy, and went through Menopause at the same time. Stress probably flipped me over the edge.
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1316750_tn?1274210719
I was diagnosed just over a month now with RRMS. I'm 30.
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1230912_tn?1273496370
Diagnosed March 2010 at age 34 RRMS

Though I believe some of the problems I have been dealing with stemming back to right after my son was born in 2006 were from the early onset of MS - I still feel very lucky to have it diagnosed as early as it was though.
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338416_tn?1260996698
I started having symptoms at age 35, and was diagnosed in 2007 at age 36.
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634733_tn?1316629592
1st sx at age 34,
possible MS age 48
probable MS at age 53
definite RRMS at age 54
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Avatar_m_tn
2007: First symptom - MRIed for the wrong thing, no DX
2010 (June): Second symptom - RRMS confirmed by MRI.
Current age: 30
I'm 1 month into Avonex treatments.
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1312898_tn?1314571733
Diagnosed July 2010 with PPMS---53 years old
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Avatar_f_tn
Dx 49 yrs old
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1140169_tn?1370188676
Dx in 2010 at 53 yrs old.

RRMS I guess, he prescribed Rebif
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983008_tn?1329929430
dx last month at 45 with ''mild'' MS but symptoms go back at least 5 years
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1253197_tn?1331212710
Well I bet you have never managed to get so many women to tell you their age in such a short space of time!!

I was dx'd this year with RRMS aged 46 just three weeks before I was 47. My neuro thinks I have probably had it for at least 5 years before but this is just based on my clinical history.,
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1373769_tn?1278607210
dx 6/28/10 31 years old - RRMS - on Copaxone
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Avatar_m_tn
Dx'd at 57 w/RRMS
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1323278_tn?1298126088
Long story short! ;)

.  First symptoms:  1999 - 23 years old.  Bilateral optic neuritis? Lightheadness?  Mild paresthesia?
.  Random paresthesia/headaches/lightheadness in the interim.
.  April 2010 - 34 years old:  Bout of optic neuritis in right eye.  Paresthesia.  Diagnosed with CIS, possible MS.  I'm on Copaxone since June.  Vision has improved, paresthesias refuse to entirely go away.  Headaches persist.
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900662_tn?1380159390
Never thought about the age thing,  LOL  I assume all you ladies are telling the truth about your age.   :-D



John... thanks to all
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Avatar_f_tn
I was diagnosed on 4/13/10 at the age of 34. Had my first flare in 2008 but didn't know it at the time. My 1st time being seen by a dr for symptoms was in march 2010, diagnosed April 2010 and started rebif in April 2010.

But I am also currently in my 2nd flare since starting rebif. So that makes 3 so far this year.
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Avatar_f_tn
I was diagnosed with "mild" MS at the age of 54.  Looking back, I've had episodes of numbness and tingling in my legs, with no disability.  Haven't started any treatment yet.  Just got the dx last week.
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Avatar_f_tn
DX in November 2010
First symptom:  Optic Neuritis September 2010
Age:  35
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1168718_tn?1366236035
dx's at 50 years old with secondary progressive MS.............

They also figure I have had it for a long time, and for some reason it decided to really kick up its heals just before my 50th birthday...... I am now 52 and still working out the Dr's sicuation.....
Hope this helps,

Cheers,
Candy
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1453990_tn?1329235026
48 "Probable" RRMS
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562511_tn?1285907760
Diagnosed at age 42 with RRMS, 10 years ago. (don't do the math :-)
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Avatar_f_tn
I was dx'd in 2007 at the age of 51. At first the neuro thought it couldn't be MS until he looked at my MRI and burst out with, "how in the heck did they miss this all these years?" and told me I have had MS for at least 25 years based on the MRI and accompanying symptoms.
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1116556_tn?1345119506
Dx at age 31 w/ RR.

1 yr later, SP

Drs say the lesions and black spots suggest I have been living with this a very long time.
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1529337_tn?1292262931
I was diagnosed yesterday which was Tuesday Dec 7th 2010 with MS I am 56
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1394601_tn?1328035908
Age 60 - Doctor said I have had it a long long time.
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1045086_tn?1332130022
Dx at age 58.  Haven't asked the doctor for anything more specific.  Taking Copaxone.

First definitive symptoms at age 38.  Told it wasn't MS after MRI done.  I tracked down that MRI and had it copied to a CD.  My MS doc points out multiple lesions that were clearly present twenty years before diagnosis.

Mary
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1396846_tn?1332463110
Age 38 still awating my DMD

Paula
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1466984_tn?1310564208
dx at 55 - less than a year ago
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Avatar_f_tn
hi everyone, have only recently been diagnosed at 34. Not quite figured out how to deal with it yet, but in a way is good to have an answer! diagnosed on mri after getting double vision, but have had the electric shock symptoms on and off for a few years, and what was probably a CIS at 19. self diagnosis of 'faulty wiring' for as long as i can remember. Is age of onset as per the statistics valid at all??, i think i have always had rrms.. but maybe it's not until we get a bit older that our brains run out of re-routing options and start to cause more obvious problems?? Hope you all have a happy and healthier new year :-)
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398059_tn?1312888668
43
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900662_tn?1380159390
bump--


there are so many new members..



Johnniebear
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572651_tn?1333939396
thanks, JB.  This is an excellent idea.
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900662_tn?1380159390
I thought I would bump this up,  its seems like we have so many new members.

Ok ladies,   you may fudge your  age a little bit,    :-D



thanks all

Johnniebear
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Avatar_f_tn
I was diagnosed at 15 with RR MS. it's been 12 years now. I was started On Avonex which didn't work for me then switched to copaxone for 5 years till it stopped workin at which time I switched to Tysabri for About another 5 years till that stopped workin. Started gilenya but it didn't work as I had 3 flairs and activity on my MRI in the 6 months I was on it. Thinkin about starting on Rituxan but am tryin to hear some personal experiences with it...sorry this is so long!
-Michelle
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Avatar_f_tn
I was diagnosed 4 months ago at 38.
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1710955_tn?1309450073
Age 32 with rrms.  I was just diagnosed in July of 2011, but docs believe I've had it for 10 yrs.
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572651_tn?1333939396
JB - I'm so glad to see this thread come up again.  It makes me think that perhaps it would be good to do it as a poll.  I will post one to go with this piece so we can see numbers/percentages.
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199882_tn?1310188142
I was dx at 43... My symptoms started when I was 30... DX - PPMS

Carol
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1734735_tn?1366329918
I was dx at 45 in Aug 2011 with RRMS at this stage. Injecting Copaxone daily.
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1453990_tn?1329235026
At 48. Nov 12, 2010 with RRMS.  On Copaxone.

Bob
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1713150_tn?1314470942
Dx at 28 yrs old, but everything started at about 14 yrs.
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Avatar_f_tn
I was dx at 38 years old, six months after my first flare up. My dx was in march 2011. I do not know what kind of ms I have...guess I should ask my neurologist! I have tried betasaron and ivig. Currently on Copaxone daily and solumedrol monthly.
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867787_tn?1318939830
I turned 42 in late August & was just dx'd yesterday with RRMS. I have fought for a dx since I was 38 & probably had symptoms at 35 which I ignored. I'm supposed to start copaxone within the next 3 weeks.
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Avatar_f_tn
Age 18.  Three days before my birthday.
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Avatar_f_tn
69, they figure I'd had it for 30 yrs with no dx because some neuros got their license out of a cereal box :-)
RRMS
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1936411_tn?1333835449
Never saw this thread before... I was diagnosed with RRMS on 12/27/11, at age 36. I remember my first flare (or what I believe was my first flare), about 8 years ago. I didn't realize what it was at the time.
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2078115_tn?1333930165
Fantastic thread - vewy interesting...

First flare at 23, Dx @ 24 last year - RRMS

Started Rebif almost a month ago at 25
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2146297_tn?1337574892
Dx at 28 almost 2 yrs ago
symptoms started when I was 27
RRMS
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2155343_tn?1336716915
I found out when I was 20 or 21..it was right before my birthday.
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1981227_tn?1336332038
Dx offically a month ago at 28. Think now my first attack was at 24.  
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900662_tn?1380159390
Never thought about the age thing,

HAAAA,   I assume all you ladies are telling the truth about your age.   :-D



John... thanks to all
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1831849_tn?1383231992
I was diagnosed at age 51, in October of 2011. Seems my symptoms started 20 years before that.

Kyle
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1831849_tn?1383231992
PS 20 years ago it was likely RRMS. When I was diagnosed it had morphed into SPMS.
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1760800_tn?1337789449
Age 48 on 12/13/11 but looking back I had some sort of symptoms 10 years prior
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1896537_tn?1381903609
Age 33 and I've been diagnosed for less than a year
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Avatar_f_tn
for the last three years i have had pins and needles mostly to right hand it went then came back more severe this time bringing pain  my left eyelid flickers  was sent to neuro was told i had migrain  this kept on and was sent for brain scan  wich showed white spots in brain  i had a day of trouble with not focusing with left eye  then that went i have blurry episodes now and again  each time these syptoms (symptoms) come i get worse  from knees down it feels at times like i ve been kicked in both legs and have difficulty walking i lose balance from time to time and fall  doc sent me for a blood test finally after 3 yrs and it came back with vitamin b12 deficiancy  some of the syptoms (symptoms) relate to that but the rest dont i saw another neurologyst on wednesday this week who was not sympathetic at all and said i am suffering from anxiety wich i dont think i am
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Avatar_f_tn
i havent been diagnosed but the syptoms (symptoms) are that it maybe ji just need to know if i fall into that catagorie
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Avatar_n_tn
I was dxed at 65 how are you doing now?
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620048_tn?1358021835
dx'd in Feb 09, I was 65
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Avatar_n_tn
How are you doing and what meds did they put you on?
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4461995_tn?1357958708
Wow! Loads of comments!  Interesting.

I was dx @ age 28 w RRMS but am sure I had it for at least a couple years before that.  Zero symptoms after no-sight-in-R-eye optic neuritis for about 10 years.  Didn't even see a neuro - there was nothing they could do anyway.
After another bad bout of neuritis @ age 40, went on Avonex for 14 years.  Now 3 months on Tysabri, Dr. trying to keep the next phase of MS away.

"Retired " @ age 40 after disastrous cognitive testing.  I would be curious to hear how long it was for everyone between diagnosis and leaving work - if they have.  For me it was 12 years.  Thanks!
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4446427_tn?1371218318
Dx'd with "probable MS" at age 37. Dx'd with RRMS at age 39.
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Avatar_f_tn
dx age 20, but I think I would have been dx at age 17 if I'd been living in the city I'm now living in (in this city they're much more keen on an early dx) now I'm 23.
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1337734_tn?1336238191
Wow, this is a very intersting thread! Can't believe I've never seen it before.

Dx with ADEM 30 years ago at the age of 26.

Dx with RRMS 5 years ago when I was 51. 2 years later (2011) I retired early on disability.
Deb
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749148_tn?1302864559
I was diagnosed PPMS in 2008 at the age of 51... they say I've probably had for 10-20 years.  Diagnosed by MRI ,LP, and Neuropsych testing
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