I was diagnosed on 4/13/10 at the age of 34. Had my first flare in 2008 but didn't know it at the time. My 1st time being seen by a dr for symptoms was in march 2010, diagnosed April 2010 and started rebif in April 2010.
But I am also currently in my 2nd flare since starting rebif. So that makes 3 so far this year.
dx's at 50 years old with secondary progressive MS.............
They also figure I have had it for a long time, and for some reason it decided to really kick up its heals just before my 50th birthday...... I am now 52 and still working out the Dr's sicuation.....
Hope this helps,
I was dx'd in 2007 at the age of 51. At first the neuro thought it couldn't be MS until he looked at my MRI and burst out with, "how in the heck did they miss this all these years?" and told me I have had MS for at least 25 years based on the MRI and accompanying symptoms.
Dx at age 58. Haven't asked the doctor for anything more specific. Taking Copaxone.
First definitive symptoms at age 38. Told it wasn't MS after MRI done. I tracked down that MRI and had it copied to a CD. My MS doc points out multiple lesions that were clearly present twenty years before diagnosis.
hi everyone, have only recently been diagnosed at 34. Not quite figured out how to deal with it yet, but in a way is good to have an answer! diagnosed on mri after getting double vision, but have had the electric shock symptoms on and off for a few years, and what was probably a CIS at 19. self diagnosis of 'faulty wiring' for as long as i can remember. Is age of onset as per the statistics valid at all??, i think i have always had rrms.. but maybe it's not until we get a bit older that our brains run out of re-routing options and start to cause more obvious problems?? Hope you all have a happy and healthier new year :-)
I was diagnosed at 15 with RR MS. it's been 12 years now. I was started On Avonex which didn't work for me then switched to copaxone for 5 years till it stopped workin at which time I switched to Tysabri for About another 5 years till that stopped workin. Started gilenya but it didn't work as I had 3 flairs and activity on my MRI in the 6 months I was on it. Thinkin about starting on Rituxan but am tryin to hear some personal experiences with it...sorry this is so long!
I was dx at 38 years old, six months after my first flare up. My dx was in march 2011. I do not know what kind of ms I have...guess I should ask my neurologist! I have tried betasaron and ivig. Currently on Copaxone daily and solumedrol monthly.
I turned 42 in late August & was just dx'd yesterday with RRMS. I have fought for a dx since I was 38 & probably had symptoms at 35 which I ignored. I'm supposed to start copaxone within the next 3 weeks.
Never saw this thread before... I was diagnosed with RRMS on 12/27/11, at age 36. I remember my first flare (or what I believe was my first flare), about 8 years ago. I didn't realize what it was at the time.
for the last three years i have had pins and needles mostly to right hand it went then came back more severe this time bringing pain my left eyelid flickers was sent to neuro was told i had migrain this kept on and was sent for brain scan wich showed white spots in brain i had a day of trouble with not focusing with left eye then that went i have blurry episodes now and again each time these syptoms come i get worse from knees down it feels at times like i ve been kicked in both legs and have difficulty walking i lose balance from time to time and fall doc sent me for a blood test finally after 3 yrs and it came back with vitamin b12 deficiancy some of the syptoms relate to that but the rest dont i saw another neurologyst on wednesday this week who was not sympathetic at all and said i am suffering from anxiety wich i dont think i am
I was dx @ age 28 w RRMS but am sure I had it for at least a couple years before that. Zero symptoms after no-sight-in-R-eye optic neuritis for about 10 years. Didn't even see a neuro - there was nothing they could do anyway.
After another bad bout of neuritis @ age 40, went on Avonex for 14 years. Now 3 months on Tysabri, Dr. trying to keep the next phase of MS away.
"Retired " @ age 40 after disastrous cognitive testing. I would be curious to hear how long it was for everyone between diagnosis and leaving work - if they have. For me it was 12 years. Thanks!
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