I was diagnosed in January of 2009, at age 28, a few months before my 29th birthday. So its been a little over a year now. I started having neurological symptoms in the summer of 2008, so I got diagnosed about 6 months after start of symptoms, pretty quick I think.
Sorry I spelled your name wrong. I forgot to add I was diagnosed with RRMS. I was originally on Betaseron, after 6 months we determined that wasn't working, and now I'm on Copaxone, which is definitely working!
I was 29 when MS was first mentioned, but I didn't really have enough symptoms to clearly diagnose. At 35 I had an episode of slurred speech and this time I was told it was MS. But back in the late 70's and early 80's there wasn't much done about it. I was told it was benign. Since I never had anything else happen, I pretty much locked that info away in the Denial Closet of my brain. Fast forward to 2002 when my opthomolgist ordered an MRI because he wasn't liking what he was seeing from several tests. Bingo!! Off to a neurologist who told me that I truly did have MS and started me on Avonex. I was then 52 years old. I haven't had any symptoms worth noting since 1985 but about a month and a half ago I had a full blown attack - double vision, nystagmus, and ataxia. So, I probably have had MS for a very long time. RRMS.
Yes, interesting how many people diagnosed later in life, but probably had MS for a long time. It just never reared its ugly head.
It was in 1993 at the age of 30 years old. I presented with Grand Mal Seizures and was diagnosed by way of MRI and Lumbar Puncture. My disease was essentially dormant until 2006 when I presented with Trigeminal Neuralgia and progressed to speech, walking and vision trouble. I am currently not on a DMD and will not be unless there is a change in my symptoms. The neurologist has told me that the next step for my trigeminal neuralgia is neuro surgery as I have exhausted all medicinal options.
new (today) to the forum... I am 32 and was just diagnosed with rrms about month ago now. I woke up one day and my vision was literally double. Tried to ignore this, maybe attribute it to lack of sleep, but by the 3rd day I was in the ER. After the MRI I was admitted with a "rule out MS" diagnosis... then the lumbar puncture and another MRI of the spine confirmed it. I had been having symptoms for the last couple years, but I work in the ER and am NOT a complainer. I just popped some advil and went on my way. This has been a game changer!
I'm pretty freaked out right now as I am an extremely active male with a full plate. This diagnosis came out of nowhere, but I guess it was at about the average age/time from what I have been reading.
I did not receive an "official" dx of RRMS until this pazst May 6th. My first MS symptoms, however, began in the winter of 1978 when I was 26. I am now 57. Starting back then I have had multiple diagnostic procedures, first with CAT scans and then MRI's later. I had seen neurologists, neuro-opthamologist, neurosurgeons, and countless other doctors/specialities. I waas basically told that because I have another neurological disorder (neurofibromatosis) that the chhance of my alaso having MS would be like having lightening strike twice in the same place.
Officially diagnosed at 53 with RRMS in 2009, but had looking back had symptoms 10 years earlier and a bout of optic neuritis 7 years earlier. The big "flare" hit me when I was diagnosed with breast cancer and had to have double mastectomy, and went through Menopause at the same time. Stress probably flipped me over the edge.
Though I believe some of the problems I have been dealing with stemming back to right after my son was born in 2006 were from the early onset of MS - I still feel very lucky to have it diagnosed as early as it was though.
. First symptoms: 1999 - 23 years old. Bilateral optic neuritis? Lightheadness? Mild paresthesia?
. Random paresthesia/headaches/lightheadness in the interim.
. April 2010 - 34 years old: Bout of optic neuritis in right eye. Paresthesia. Diagnosed with CIS, possible MS. I'm on Copaxone since June. Vision has improved, paresthesias refuse to entirely go away. Headaches persist.
I was diagnosed on 4/13/10 at the age of 34. Had my first flare in 2008 but didn't know it at the time. My 1st time being seen by a dr for symptoms was in march 2010, diagnosed April 2010 and started rebif in April 2010.
But I am also currently in my 2nd flare since starting rebif. So that makes 3 so far this year.
dx's at 50 years old with secondary progressive MS.............
They also figure I have had it for a long time, and for some reason it decided to really kick up its heals just before my 50th birthday...... I am now 52 and still working out the Dr's sicuation.....
Hope this helps,
I was dx'd in 2007 at the age of 51. At first the neuro thought it couldn't be MS until he looked at my MRI and burst out with, "how in the heck did they miss this all these years?" and told me I have had MS for at least 25 years based on the MRI and accompanying symptoms.
Dx at age 58. Haven't asked the doctor for anything more specific. Taking Copaxone.
First definitive symptoms at age 38. Told it wasn't MS after MRI done. I tracked down that MRI and had it copied to a CD. My MS doc points out multiple lesions that were clearly present twenty years before diagnosis.
hi everyone, have only recently been diagnosed at 34. Not quite figured out how to deal with it yet, but in a way is good to have an answer! diagnosed on mri after getting double vision, but have had the electric shock symptoms on and off for a few years, and what was probably a CIS at 19. self diagnosis of 'faulty wiring' for as long as i can remember. Is age of onset as per the statistics valid at all??, i think i have always had rrms.. but maybe it's not until we get a bit older that our brains run out of re-routing options and start to cause more obvious problems?? Hope you all have a happy and healthier new year :-)
I was diagnosed at 15 with RR MS. it's been 12 years now. I was started On Avonex which didn't work for me then switched to copaxone for 5 years till it stopped workin at which time I switched to Tysabri for About another 5 years till that stopped workin. Started gilenya but it didn't work as I had 3 flairs and activity on my MRI in the 6 months I was on it. Thinkin about starting on Rituxan but am tryin to hear some personal experiences with it...sorry this is so long!
I was dx at 38 years old, six months after my first flare up. My dx was in march 2011. I do not know what kind of ms I have...guess I should ask my neurologist! I have tried betasaron and ivig. Currently on Copaxone daily and solumedrol monthly.
I turned 42 in late August & was just dx'd yesterday with RRMS. I have fought for a dx since I was 38 & probably had symptoms at 35 which I ignored. I'm supposed to start copaxone within the next 3 weeks.
Never saw this thread before... I was diagnosed with RRMS on 12/27/11, at age 36. I remember my first flare (or what I believe was my first flare), about 8 years ago. I didn't realize what it was at the time.
for the last three years i have had pins and needles mostly to right hand it went then came back more severe this time bringing pain my left eyelid flickers was sent to neuro was told i had migrain this kept on and was sent for brain scan wich showed white spots in brain i had a day of trouble with not focusing with left eye then that went i have blurry episodes now and again each time these syptoms come i get worse from knees down it feels at times like i ve been kicked in both legs and have difficulty walking i lose balance from time to time and fall doc sent me for a blood test finally after 3 yrs and it came back with vitamin b12 deficiancy some of the syptoms relate to that but the rest dont i saw another neurologyst on wednesday this week who was not sympathetic at all and said i am suffering from anxiety wich i dont think i am
I was dx @ age 28 w RRMS but am sure I had it for at least a couple years before that. Zero symptoms after no-sight-in-R-eye optic neuritis for about 10 years. Didn't even see a neuro - there was nothing they could do anyway.
After another bad bout of neuritis @ age 40, went on Avonex for 14 years. Now 3 months on Tysabri, Dr. trying to keep the next phase of MS away.
"Retired " @ age 40 after disastrous cognitive testing. I would be curious to hear how long it was for everyone between diagnosis and leaving work - if they have. For me it was 12 years. Thanks!
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